中华护理杂志 ›› 2021, Vol. 56 ›› Issue (8): 1261-1266.DOI: 10.3761/j.issn.0254-1769.2021.08.023
收稿日期:2020-11-13
出版日期:2021-08-15
发布日期:2021-08-16
作者简介:顾嘉鑫:女,本科(硕士在读),护士,E-mail:
GU Jiaxin(
),WANG Ling,LIU Xiaoli,YAN Xia(
)
Received:2020-11-13
Online:2021-08-15
Published:2021-08-16
摘要:
白血病为儿童时期发病率最高的恶性肿瘤,评估症状群可以理解患儿经历的症状,有助于症状的联合管理。该文综述了国内外白血病患儿症状群评估工具的内容、特点及应用情况。建议根据现有普适性工具的特点并结合白血病患儿疾病特点,开发适合白血病患儿症状群的特异性评估工具,为通过有效管理提升患儿生活质量提供依据。
顾嘉鑫,王泠,刘晓黎,颜霞. 白血病患儿症状群评估工具的研究进展[J]. 中华护理杂志, 2021, 56(8): 1261-1266.
GU Jiaxin,WANG Ling,LIU Xiaoli,YAN Xia. Progress in the research of symptom clusters assessment tools in children with leukemia[J]. Chinese Journal of Nursing, 2021, 56(8): 1261-1266.
| [1] | 周平, 熊昊, 李建新, 等. 初诊儿童急性淋巴细胞白血病治疗相关死亡的危险因素的分析[J]. 中国实验血液学杂志, 2020, 28(6):1837-1841. |
| Zhou P, Xiong H, Li JX, et al. Effect of the risk factors for treatment-related death in children with acute lymphoblastic leukemia[J]. J Exp Hematol, 2020, 28(6):1837-1841. | |
| [2] | 王春立, 吴心怡, 王旭梅, 等. 白血病患儿鞘内注射后去枕平卧时间对并发症的影响研究[J]. 中华护理杂志, 2019, 54(1):25-30. |
| Wang CL, Wu XY, Wang XM, et al. Study on the effect of occiput-free and supine time after intrathecal injection in children with leukemia on complications[J]. Chin J Nurs, 2019, 54(1):25-30. | |
| [3] |
Zheng R, Peng X, Zeng H, et al. Incidence,mortality and survival of childhood cancer in China during 2000-2010 period:a population-based study[J]. Cancer Lett, 2015, 363(2):176-180.
DOI URL |
| [4] |
Tasian SK, Loh ML, Hunger SP. Childhood acute lymphoblastic leukemia:integrating genomics into therapy[J]. Cancer, 2015, 121(20):3577-3590.
DOI PMID |
| [5] | 郑渊, 刘可, 卜秀青, 等. 急性白血病患儿化疗期间症状群的调查分析[J]. 中华护理杂志, 2016, 51(11):1320-1324. |
| Zheng Y, Liu K, Bu XQ, et al. Survey and analysis of symptom clusters in children with acute leukemia during chemotherapy[J]. Chin J Nurs, 2016, 51(11):1320-1324. | |
| [6] | 唐慧, 杨艳, 李映兰, 等. 儿童早期预警评分在急性淋巴细胞白血病患儿中的应用[J]. 中华护理杂志, 2017, 52(12):1422-1426. |
| Tang H, Yang Y, Li YL, et al. Application of Early Warning Score in Children with acute lymphoblastic leukemia[J]. Chin J Nurs, 2017, 52(12):1422-1426. | |
| [7] |
Dodd MJ, Miaskowski C, Paul SM. Symptom clusters and their effect on the functional status of patients with cancer[J]. Oncol Nurs Forum, 2001, 28(3):465-470.
PMID |
| [8] | Kim HJ, McGuire DB, Tulman L, et al. Symptom clusters:concept analysis and clinical implications for cancer nursing[J]. Cancer Nurs, 2005, 28(4):270-284. |
| [9] | Miaskowski C, Barsevick A, Berger A, et al. Advancing symptom science through symptom cluster research:expert panel proceedings and recommendations[J]. J Natl Cancer Inst, 2017, 109(4):djw253. |
| [10] |
Collins JJ, Byrnes ME, Dunkel IJ, et al. The measurement of symptoms in children with cancer[J]. J Pain Symptom Manag, 2000, 19(5):363-377.
PMID |
| [11] |
Yeh CH, Chiang YC, Chien LC, et al. Symptom clustering in older Taiwanese children with cancer[J]. Oncol Nurs Forum, 2008, 35(2):273-281.
DOI URL |
| [12] |
Plenert E, Grimes A, Sugalski A, et al. Translating the Symptom Screening in Paediatrics Tool(SSPedi) into North American Spanish and among Spanish-speaking children receiving cancer treatments:evaluating understandability and cultural relevance in a multiple-phase descriptive study[J]. BMJ Open, 2020, 10(11):e037406.
DOI URL |
| [13] | 李蓉蓉, 马金玲, 阐玉英, 等. 急性淋巴细胞白血病患儿化疗期间症状群的纵向研究[J]. 护理学杂志, 2019, 34(16):5-9. |
| Li RR, Ma JL, Chan YY, et al. Symptom clusters among children with acute lymphocytic leukemia during chemotherapy:a longitudinal study[J]. J Nurs Sci, 2019, 34(16):5-9. | |
| [14] |
Portenoy RK, Thaler HT, Kornblith AB, et al. The Memorial Symptom Assessment Scale:an instrument for the evaluation of symptom prevalence,characteristics and distress[J]. Eur J Cancer, 1994, 30A(9):1326-1336.
PMID |
| [15] | 冯芳茗, 楼建华, 徐红, 等. 癌症患儿症状体验的现况调查[J]. 中国护理管理, 2012, 12(1):30-34. |
| Feng FM, Lou JH, Xu H, et al. Symptom experience among children with cancer:a cross-sectional study[J]. Chin Nurs Manag, 2012, 12(1):30-34. | |
| [16] |
Rodgers C, Highberger M, Powers K, et al. Symptom trajectories of adolescents during hematopoietic stem cell recovery[J]. Cancer Nurs, 2019, 42(6):468-474.
DOI PMID |
| [17] |
Yeh CH, Wang CH, Chiang YC, et al. Assessment of symptoms reported by 10 to 18-year-old cancer patients in Taiwan[J]. J Pain Symptom Manage, 2009, 38(5):738-746.
DOI URL |
| [18] |
Pöder U, Ljungman G, von Essen L. Parents’ perceptions of their children’s cancer-related symptoms during treatment:a prospective,longitudinal study[J]. J Pain Symptom Manage, 2010, 40(5):661-670.
DOI URL |
| [19] | Alhelih E, Ghazi Baker O, Aboshaiqah AE. Retracted:symptom trajectories and occurrence in older Saudi children with cancer during a course of chemotherapy[J]. Eur J Cancer Care(Engl), 2017, 26(4):e12555. |
| [20] |
Collins JJ, Devine TD, Dick GS, et al. The measurement of symptoms in young children with cancer:the validation of the Memorial Symptom Assessment Scale in children aged 7-12[J]. J Pain Symptom Manage, 2002, 23(1):10-16.
DOI URL |
| [21] |
Williams PD, Williams AR, Kelly KP, et al. A symptom checklist for children with cancer:the Therapy-Related Symptom Checklist-Children[J]. Cancer Nurs, 2012, 35(2):89-98.
DOI PMID |
| [22] |
Olagunju AT, Sarimiye FO, Olagunju TO, et al. Child’s symptom burden and depressive symptoms among caregivers of children with cancers:an argument for early integration of pediatric palliative care[J]. Ann Palliat Med, 2016, 5(3):157-165.
DOI PMID |
| [23] |
Linder LA, Al-Qaaydeh S, Donaldson G. Symptom characteristics among hospitalized children and adolescents with cancer[J]. Cancer Nurs, 2018, 41(1):23-32.
DOI PMID |
| [24] |
Abu-Saad Huijer H, Sagherian K, Tamim H. Quality of life and symptom prevalence as reported by children with cancer in Lebanon[J]. Eur J Oncol Nurs, 2013, 17(6):704-710.
DOI PMID |
| [25] |
Baggott C, Baird J, Hinds P, et al. Evaluation of Sisom:a computer-based animated tool to elicit symptoms and psychosocial concerns from children with cancer[J]. Eur J Oncol Nurs, 2015, 19(4):359-369.
DOI URL |
| [26] |
Williams PD, Schmideskamp J, Ridder EL, et al. Symptom monitoring and dependent care during cancer treatment in children:pilot study[J]. Cancer Nurs, 2006, 29(3):188-197.
PMID |
| [27] |
Williams PD, Piamjariyakul U, Shanberg R, et al. Monitoring and alleviation of symptom occurrence and severity among Thai children and adolescents during cancer treatments[J]. J Pediatr Oncol Nurs, 2015, 32(6):417-428.
DOI PMID |
| [28] | Williams PD, Robinson J, Williams AR. Symptom occurrence and severity on the therapy-related symptom checklist for children among Hispanic pediatric oncology outpatients[J]. Cancer Nurs, 2014, 37(3):E12-E20. |
| [29] | Mansouri A, Motaghedi R, Rashidian A, et al. Validity and reliability assessment of the Persian version of therapy-related symptom checklist[J]. Iran J Med Sci, 2017, 42(3):292-300. |
| [30] |
Xia W, Li HCW, Lam KWK, et al. The impact of hematologic cancer and its treatment on physical activity level and quality of life among children in mainland China:a descriptive study[J]. Cancer Nurs, 2019, 42(6):492-500.
DOI URL |
| [31] |
Tomlinson D, Dupuis LL, Gibson P, et al. Initial development of the symptom screening in pediatrics tool(SSPedi)[J]. Support Care Cancer, 2014, 22(1):71-75.
DOI PMID |
| [32] |
O’Sullivan C, Dupuis LL, Gibson P, et al. Refinement of the symptom screening in pediatrics tool(SSPedi)[J]. Br J Cancer, 2014, 111(7):1262-1268.
DOI URL |
| [33] |
Hyslop S, Dupuis LL, Baggott C, et al. Validation of the proxy version of symptom screening in pediatrics tool in children receiving cancer treatments[J]. J Pain Symptom Manage, 2018, 56(1):107-112.
DOI URL |
| [34] |
Cadamuro SA, Franco JO, Paiva CE, et al. Symptom screening in paediatrics tool for screening multiple symptoms in Brazilian patients with cancer:a cross-sectional validation study[J]. BMJ Open, 2019, 9(8):e028149.
DOI URL |
| [35] |
Larouche V, Revon-Rivière G, Johnston D, et al. Translating the Symptom Screening in Pediatrics Tool(SSPedi) into French and among French-speaking children receiving cancer treatments,evaluating understandability and cultural relevance in a multiple-phase descriptive study[J]. BMJ Open, 2020, 10(4):e035265.
DOI URL |
| [36] |
Johnston DL, Hyslop S, Tomlinson D, et al. Describing symptoms using the Symptom Screening in Pediatrics Tool in hospitalized children with cancer and hematopoietic stem cell transplant recipients[J]. Cancer Med, 2018, 7(5):1750-1755.
DOI URL |
| [37] |
Tomlinson D, Hyslop S, Stein E, et al. Development of mini-SSPedi for children 4-7 years of age receiving cancer treatments[J]. BMC Cancer, 2019, 19(1):32.
DOI PMID |
| [38] |
Loves R, Plenert E, Tomlinson V, et al. Changes in taste among pediatric patients with cancer and hematopoietic stem cell transplantation recipients[J]. Qual Life Res, 2019, 28(11):2941-2949.
DOI URL |
| [39] | 刘砚燕. 儿童自我报告结局测量信息系统在儿童癌症人群中的测评[D]. 上海:第二军医大学, 2013. |
| Liu YY. Measurement examination of Chinese version of pediatric PROMIS measures among children and adolescents with cancer[D]. Shanghai:Second Military Medical University, 2013. | |
| [40] |
Irwin DE, Stucky BD, Thissen D, et al. Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey[J]. Qual Life Res, 2010, 19(4):585-594.
DOI URL |
| [41] | 郭倩, 李丽, 侯黎莉. 口腔癌病人报告结局测评工具的研究进展[J]. 护理研究, 2019, 33(24):4261-4266. |
| Guo Q, Li L, Hou LL. Research progress on assessment tools for mouth neoplasms patient-reported outcome[J]. Chin Nurs Res, 2019, 33(24):4261-4266. | |
| [42] | 徐艳华, 沈南平, 袁长蓉, 等. 潜类别模型用于白血病患儿多症状特征分类研究[J]. 护理学杂志, 2018, 33(19):22-25. |
| Xu YH, Shen NP, Yuan CR, et al. Identifying typologies of symptoms in children with leukemia employing latent class analysis[J]. J Nurs Sci, 2018, 33(19):22-25. |
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