银屑病患者自我报告结局评估工具测量学属性的评价及护理启示

doi:10.3761/j.issn.0254-1769.2026.08.016

中华护理杂志 ›› 2026, Vol. 61 ›› Issue (8): 1117-1124.DOI: 10.3761/j.issn.0254-1769.2026.08.016

银屑病患者自我报告结局评估工具测量学属性的评价及护理启示

黄璇¹(), 郭书萍², カルデナス暁東³, 谢云影¹, 王瀚敏¹, 张玉美¹, 刘焘丽⁴, 李莉⁴^,^*()

¹ 山西医科大学护理学院太原市 030001
² 山西医科大学第一医院皮肤科太原市 030001
³ 日本红十字丰田看护大学护理学院日本丰田市 471-8565
⁴ 山西医科大学第一医院护理部太原市 030001

收稿日期:2025-07-10 出版日期:2026-04-20 发布日期:2026-04-22
*通讯作者: 李莉，E-mail：lili3213@163.com
作者简介:黄璇：女，本科（硕士在读），护士，E-mail：202400831051@sxmu.edu.cn
第一联系人：作者贡献声明
黄璇：论文撰写与修改、资料提取、质量评价；郭书萍、カルデナス暁東：选题指导、论文修改；谢云影、王瀚敏：文献收集、资料审校；张玉美、刘焘丽：质量评价、论文审阅与修改；李莉：基金支持、选题设计、论文审阅与修改
基金资助:
山西省专利转化计划项目(202406021)

Systematic review of measurement properties of psoriasis patient specific self-reported outcome assessment tools and nursing implications

HUANG Xuan¹(), GUO Shuping², Caldenas Xiaodong³, XIE Yunying¹, WANG Hanmin¹, ZHANG Yumei¹, LIU Taoli⁴, LI Li⁴^,^*()

¹ School of Nursing， the Shanxi Medical University， Taiyuan 030001， China
² Department of Dermatology， the First Hospital of Shanxi Medical University， Taiyuan 030001， China
³ School of Nursing， the Toyota Red Cross College of Nursing， Toyota 471-8565， Japan
⁴ Department of Nursing， the First Hospital of Shanxi Medical University， Taiyuan 030001， China

Received:2025-07-10 Online:2026-04-20 Published:2026-04-22
* Corresponding author: LI Li，E-mail：lili3213@163.com
Funding program:
Shanxi Province Patent Transformation Plan Project(202406021)

摘要/Abstract

摘要：

目的对银屑病患者自我报告结局评估工具进行测量学属性的评价和研究方法学质量评价，为临床推荐适用的评价工具提供依据。方法检索PubMed、Embase、CINAHL、Web of Science、Cochrane Library、中国知网、维普数据库、万方数据库和中国生物医学文献数据库等，检索建库至2025年6月1日发表的关于银屑病患者自我报告结局评估工具开发或验证的研究，由2名研究人员独立检索和提取文献，对纳入文献的方法学和评估工具的测量学属性等进行评价，并得出推荐意见。结果共纳入12项研究，涵盖10种银屑病患者自我报告结局评估工具。其中银屑病关节炎疾病影响问卷和银屑病与银屑病关节炎甲病变生活质量量表在内容效度与内部一致性方面均被评为“充分”，A级推荐；其余8种工具评为B级推荐。结论银屑病关节炎疾病影响问卷和银屑病与银屑病关节炎甲病变生活质量量表的整体方法学质量与测量学属性较好，建议在临床中优先选用，但仍需进一步开展验证研究。

关键词: 银屑病, 银屑病关节炎, 患者自我报告结局, 评估工具, 测量学属性, 系统评价, 循证护理学

Abstract:

Objective To conduct a systematic performance evaluation and methodological quality assessment of patient-reported outcome measures（PROMs） specific to psoriasis，thereby providing evidence to support clinical recommendations for appropriate tools. Methods Databases including PubMed，Embase，CINAHL，Web of Science，Cochrane Library，CNKI，VIP，Wanfang，and CBM were searched from inception to June 1，2025 for studies on the development or validation of psoriasis-specific PROMs. A total of 2 researchers independently conducted the literature search and extraction. The COSMIN bias risk checklist and quality assessment criteria were employed to evaluate the methodological quality of the included studies and psychometric properties of the instruments，with recommendations subsequently formulated. Results 12 studies covering 10 psoriasis-specific PROM tools were included. Among these，the Psoriasis Arthritis Disease Impact Questionnaire（PsAID） and the Nail Psoriasis and Psoriatic Arthritis Quality of Life Scale（NAPPA-QoL） were rated as ‘adequate’ for both content validity and internal consistency，receiving an ‘A’ grade recommendation. The remaining 8 tools were rated as ‘B’ grade. Conclusion PsAID and NAPPA-QoL demonstrate favourable overall methodological quality and measurement performance，warranting priority use in clinical practice. However，further validation studies remain necessary.

Key words: Psoriasis, Psoriatic Arthritis, Patient Self-Reported Outcome, Assessment Tool, Measurement Properties, Systematic Review, Evidence-Based Nursing

黄璇, 郭书萍, カルデナス暁東, 谢云影, 王瀚敏, 张玉美, 刘焘丽, 李莉. 银屑病患者自我报告结局评估工具测量学属性的评价及护理启示[J]. 中华护理杂志, 2026, 61(8): 1117-1124.

HUANG Xuan, GUO Shuping, Caldenas Xiaodong, XIE Yunying, WANG Hanmin, ZHANG Yumei, LIU Taoli, LI Li. Systematic review of measurement properties of psoriasis patient specific self-reported outcome assessment tools and nursing implications[J]. Chinese Journal of Nursing, 2026, 61(8): 1117-1124.

图/表 4

图1 文献筛选流程

Figure 1 Flow chart of literature screening

表1 纳入文献及银屑病PROMs评估工具的基本特征（n=12）

Table 1 General characteristics of the included literature（n=12）

表2 纳入评估工具的方法学质量和测量学属性的质量评价（n=12）

Table 2 Methodological quality and psychometric properties evaluation of the included scales（n=12）

表3 纳入评估工具的证据质量及推荐意见（n=12）

Table 3 Quality of evidence level of the included PROMs and the formation of recommendations（n=12）

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银屑病患者自我报告结局评估工具测量学属性的评价及护理启示

Systematic review of measurement properties of psoriasis patient specific self-reported outcome assessment tools and nursing implications

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