Chinese Journal of Nursing ›› 2022, Vol. 57 ›› Issue (1): 118-123.DOI: 10.3761/j.issn.0254-1769.2022.01.018
• Review • Previous Articles Next Articles
CHEN Haili(
), XIAO Zhitian(
), YE Jinghua, TIAN Xiaoqin
Received:2021-01-12
Online:2022-01-10
Published:2022-01-11
Contact:
XIAO Zhitian
通讯作者:
肖志田
作者简介:陈海丽:女,本科 (硕士在读),护士,E-mail: chl8894@163.com
基金资助:CHEN Haili, XIAO Zhitian, YE Jinghua, TIAN Xiaoqin. Research progress on nursing care for epilepsy patients from adolescents to adults[J]. Chinese Journal of Nursing, 2022, 57(1): 118-123.
陈海丽, 肖志田, 叶敬花, 田小琴. 癫痫患者从青少年到成人过渡期护理的研究进展[J]. 中华护理杂志, 2022, 57(1): 118-123.
Add to citation manager EndNote|Ris|BibTeX
URL: https://zh.zhhlzzs.com/EN/10.3761/j.issn.0254-1769.2022.01.018
| [1] | 中国抗癫痫协会. 临床诊疗指南(癫痫分册)[M]. 北京: 人民卫生出版社, 2015:15-19. |
| China Association Against Epilepsy. Clinical guidelines for diagnosis and treatment(epilepsy fascicle)[M]. Beijing: People’s Medical Publishing House, 2015:15-19. | |
| [2] |
Verrotti A, Matricardi S, Rinaldi VE, et al. Neuropsychological impairment in childhood absence epilepsy:review of the literature[J]. J Neurol Sci, 2015, 359(1/2):59-66.
DOI URL |
| [3] | 江载芳, 申昆玲, 沈颖. 诸福棠实用儿科学[M]. 北京: 人民卫生出版社, 2015. |
| Jiang ZF, Shen KL, Shen Y. Zhu Futang practice of pediatrics[M]. Beijing: People’s Medical Publishing House, 2015. | |
| [4] |
Camfield PR, Bahi-Buisson N, Trinka E. Transition issues for children with diffuse cortical malformations,multifocal postnatal lesions,(infectious and traumatic) and Lennox-Gastaut and similar syndromes[J]. Epilepsia, 2014, 55(Suppl 3):24-28.
DOI URL |
| [5] |
Reger KL, Hughes-Scalise A, O’Connor MA. Development of the transition-age program(TAP):review of a pilot psychosocial multidisciplinary transition program in a level 4 epilepsy center[J]. Epilepsy Behav, 2018, 89:153-158.
DOI URL |
| [6] |
Gray V, Palmer L, Whelby K, et al. Exploring the role of know-ledge of condition and psycho-social profiles of young people with epilepsy during transition[J]. Epilepsy Behav, 2017, 73:156-160.
DOI URL |
| [7] |
Jurasek L, Ray L, Quigley D. Development and implementation of an adolescent epilepsy transition clinic[J]. J Neurosci Nurs, 2010, 42(4):181-189.
PMID |
| [8] |
Mc Govern EM, Maillart E, Bourgninaud M, et al. Making a ‘JUMP’ from paediatric to adult healthcare:a transitional program for young adults with chronic neurological disease[J]. J Neurol Sci, 2018, 395:77-83.
DOI PMID |
| [9] |
Blum RW, Garell D, Hodgman CH, et al. Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the society for adolescent medicine[J]. J Adolesc Health, 1993, 14(7):570-576.
DOI URL |
| [10] |
American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians-American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs[J]. Pediatrics, 2002, 110(6 Pt 2):1304-1306.
DOI URL |
| [11] |
Camfield PR, Andrade D, Camfield CS, et al. How can transition to adult care be best orchestrated for adolescents with epilepsy?[J]. Epilepsy Behav, 2019, 93:138-147.
DOI PMID |
| [12] |
Brown LW, Camfield P, Capers M, et al. The neurologist’s role in supporting transition to adult health care:a consensus statement[J]. Neurology, 2016, 87(8):835-840.
DOI URL |
| [13] |
Willis ER, McDonagh JE. Transition from children’s to adults’ services for young people using health or social care services (NICE Guideline NG43)[J]. Arch Dis Child Educ Pract Ed, 2018, 103(5):253-256.
DOI PMID |
| [14] |
American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, et al. Supporting the health care transition from adolescence to adulthood in the medical home[J]. Pediatrics, 2011, 128(1):182-200.
DOI URL |
| [15] |
Andrade DM, Bassett AS, Bercovici E, et al. Epilepsy:transition from pediatric to adult care. Recommendations of the Ontario epilepsy implementation task force[J]. Epilepsia, 2017, 58(9):1502-1517.
DOI URL |
| [16] |
Crowley SL, Byrne S, McNulty S, et al. The temple star transitional model of care for epilepsy;the outcome of a quality improvement project[J]. Epilepsy Behav, 2018, 79:4-8.
DOI URL |
| [17] |
Sawicki GS, Lukens-Bull K, Yin X, et al. Measuring the transition readiness of youth with special healthcare needs:validation of the TRAQ:Transition Readiness Assessment Questionnaire[J]. J Pediatr Psychol, 2011, 36(2):160-171.
DOI URL |
| [18] |
Wood DL, Sawicki GS, Miller MD, et al. The Transition Rea-diness Assessment Questionnaire(TRAQ):its factor structure,reliability,and validity[J]. Acad Pediatr, 2014, 14(4):415-422.
DOI URL |
| [19] |
Sato Y, Ochiai R, Ishizaki Y, et al. Validation of the Japanese Transition Readiness Assessment Questionnaire[J]. Pediatr Int, 2020, 62(2):221-228.
DOI URL |
| [20] |
Anelli CG, Len CA, Terreri MTRA, et al. Translation and validation of the transition readiness assessment questionnaire (TRAQ)[J]. J Pediatr (Rio J), 2019, 95(2):180-187.
DOI URL |
| [21] | González F, Roizen M, Rodríguez Celin ML, et al. Validation of the Argentine Spanish version of Transition Readiness Assessment Questionnaire for adolescents with chronic conditions[J]. Arch Argent Pediatr, 2017, 115(1):18-27. |
| [22] |
Jensen PT, Paul GV, LaCount S, et al. Assessment of transition readiness in adolescents and young adults with chronic health conditions[J]. Pediatr Rheumatol Online J, 2017, 15(1):70.
DOI PMID |
| [23] | Roth JD, Szymanski KM, Cain MP, et al. Factors impacting transition readiness in young adults with neuropathic bladder[J]. J Pediatr Urol, 2020, 16(1):45.e1-45.e7. |
| [24] |
Philpott JR, Kurowski JA. Challenges in transitional care in inflammatory bowel disease:a review of the current literature in transition readiness and outcomes[J]. Inflamm Bowel Dis, 2019, 25(1):45-55.
DOI PMID |
| [25] |
Zhang LF, Ho JS, Kennedy SE. A systematic review of the psychometric properties of transition readiness assessment tools in adolescents with chronic disease[J]. BMC Pediatr, 2014, 14:4.
DOI URL |
| [26] |
Ferris ME, Harward DH, Bickford K, et al. A clinical tool to measure the components of health-care transition from pediatric care to adult care:the UNC TR(x)ANSITION Scale[J]. Ren Fail, 2012, 34(6):744-753.
DOI PMID |
| [27] |
Zhong Y, Gilleskie DB, van Tilburg MAL, et al. Longitudinal self-management and/or transition readiness per the TRxANSITION index among patients with chronic conditions in pediatric or adult care settings[J]. J Pediatr, 2018, 203:361-370.
DOI URL |
| [28] | Crosby LE, Hood A, Kidwell K, et al. Improving self-management in adolescents with sickle cell disease[J]. Pediatr Blood Cancer, 2020, 67(10):e28492. |
| [29] |
Ferris M, Cohen S, Haberman C, et al. Self-management and transition readiness assessment:development,reliability,and factor structure of the STARx questionnaire[J]. J Pediatr Nurs, 2015, 30(5):691-699.
DOI PMID |
| [30] | UNC STARx Program. Versions of the STARx Questionnaire[EB/OL].(2018-03-21)[2021-05-25]. https://www.med.unc.edu/transition/transition-tools/trxansition-scale/. |
| [31] |
Nazareth M, Hart L, Ferris M, et al. A parental report of youth transition readiness:the parent STARx questionnaire (STARx-P) and Re-evaluation of the STARx child report[J]. J Pediatr Nurs, 2018, 38:122-126.
DOI PMID |
| [32] | Ma J, Yu Q, Ding W, et al. Psychometric properties of the ‘Self-Management and Transition to Adulthood with Rx = Treatment Questionnaire’ in Chinese children and young people with chronic diseases[J]. Int J Nurs Pract, 2021, 27(2):e12880. |
| [33] |
Clark SJ, Beimer NJ, Gebremariam A, et al. Validation of EpiTRAQ,a transition readiness assessment tool for adolescents and young adults with epilepsy[J]. Epilepsia Open, 2020, 5(3):487-495.
DOI URL |
| [34] |
Wohlrab GC, Rinnert S, Bettendorf U, et al. Famoses:a modular educational program for children with epilepsy and their parents[J]. Epilepsy Behav, 2007, 10(1):44-48.
DOI URL |
| [35] | Weissberg-Benchell J, Shapiro JB. A review of interventions aimed at facilitating successful transition planning and transfer to adult care among youth with chronic illness[J]. Pediatr Ann, 2017, 46(5):e182-e187. |
| [36] |
Suzuki S, Kita S, Morisaki M, et al. Nurses’ perceptions regarding transitional care for adolescents and young adults with childhood- onset chronic diseases[J]. Jpn J Nurs Sci, 2020, 17(3):e12323.
DOI PMID |
| [37] | Nabbout R, Teng T, Chemaly N, et al. Transition of patients with childhood onset epilepsy:perspectives from pediatric and adult neurologists[J]. Epilepsy Behav, 2020, 104(pt a):106889. |
| [38] | Boyce DM, Devinsky O, Meskis MA. Barriers to transition from pediatric to adult care for patients with Dravet syndrome:a focus group study of caregivers[J]. Epilepsy Behav, 2020, 109:107096. |
| [39] | 崔璀, 陈文劲, 李双子. 癫痫青少年参与健康照护行为意向影响因素的质性研究[J]. 护士进修杂志, 2021, 36(4):317-322. |
| Cui C, Chen WJ, Li SZ. Qualitative research for the influencing factors of adolescents patients with epilepsy participated in health care[J]. J Nurses Train, 2021, 36(4):317-322. | |
| [40] |
Chabrol B, Milh M. Transition from paediatric to adult care in adolescents with neurological diseases and handicap[J]. Rev Neurol (Paris), 2020, 176(1/2):37-42.
DOI URL |
| [41] | 蔡立柏, 刘延锦, 孙箫音, 等. 青少年癫痫患者疾病感受和体验的质性研究[J]. 中华护理杂志, 2021, 56(1):86-91. |
| Cai LB, Liu YJ, Sun XY, et al. A qualitative research on perceptions and experience of adolescents with epilepsy[J]. Chin J Nurs, 2021, 56(1):86-91. | |
| [42] | 杜宜修, 吴芳琴, 卢晓英, 等. 多学科团队延续性护理模式在心房颤动患者中的应用研究[J]. 中华护理杂志, 2020, 55(7):969-974. |
| Du YX, Wu FQ, Lu XY, et al. The application effects of continuous nursing care in management of patients with atrial fibrillation by a nurse-led multidisciplinary team[J]. Chin J Nurs, 2020, 55(7):969-974. | |
| [43] | 董婷, 刘素珍, 李继平, 等. 社区护士主导的团队对高血压患者的管理及效果评价[J]. 中华护理杂志, 2017, 52(6):680-685. |
| Dong T, Liu SZ, Li JP, et al. Effects of nurse-led team management on self-management and hypertension control of hypertensive patients[J]. Chin J Nurs, 2017, 52(6):680-685. |
| [1] | HUANG Panpan, LI Liling, HU Xiaojing. Research progress of early exercise rehabilitation in infants with congenital heart disease [J]. Chinese Journal of Nursing, 2025, 60(9): 1050-1055. |
| [2] | CHEN Liou, ZHANG Wenting, LIU Junqi, WANG Yuncong, WANG Zhenlin, QI Sai, YANG Na. Study on the effect of pulmonary lobes surface projection localization combined with pulmonary segment drainage and sputum expectoration technique on airway clearance in patients with aspiration pneumonia [J]. Chinese Journal of Nursing, 2025, 60(9): 1056-1061. |
| [3] | YANG Nana, CHENG Chuanli, ZENG Hui, FU Dandan, WANG Yan, CHEN Yue, RAN Hongmin, FAN Hongjing, LONG Xia. Evaluation of the effect of graded exercise rehabilitation on patients with acute exacerbation of chronic obstructive pulmonary disease [J]. Chinese Journal of Nursing, 2025, 60(9): 1062-1067. |
| [4] | CAO Yun, SUN Guozhen, CHEN Feng, JI Xueli, YAN Mengwan, JING Lei, QIAN Kun. A study of modified ankle pump exercise in stroke patients [J]. Chinese Journal of Nursing, 2025, 60(9): 1068-1074. |
| [5] | XIE Min, QI Wenkai, YIN Ling, ZHANG Xuan, ZHAO Ruqin. Potential profile analysis and influencing factors of kinesiophobia in patients with peritoneal dialysis [J]. Chinese Journal of Nursing, 2025, 60(9): 1080-1086. |
| [6] | CHEN Bingqian, ZHAO Bin, SUN Jiarong, HAO Sifang, HOU Xiaoli. Oral health management dilemmas of chronic periodontitis patients with implant dentures:a qualitative study [J]. Chinese Journal of Nursing, 2025, 60(9): 1087-1092. |
| [7] | QIN Chunlan, WU Zhenyun, QIAN Hongying, ZHAO Qian, SUN Jinting. Experiences of disease self-control among patients with chronic obstructive pulmonary disease:a qualitative study [J]. Chinese Journal of Nursing, 2025, 60(9): 1093-1098. |
| [8] | LI Ziwei, FENG Lijuan, CHEN Xusheng, HUANG Yi, YANG Jie. Development and application of a Fear of Movement Assessment Scale for patients with peripherally inserted central catheters [J]. Chinese Journal of Nursing, 2025, 60(9): 1099-1106. |
| [9] | CHENG Zhiqiang, ZHANG Baozhen, TANG Liping, LI Jing, XIA Jiaoyun, WEI Xueyan, GONG Zhixian, ZHANG Meizhen, LI Lusi. Reliability and validity test of the Chinese version of the Urinary Incontinence Awareness and Attitude Scale [J]. Chinese Journal of Nursing, 2025, 60(9): 1107-1112. |
| [10] | SHI Meiqin, WU Jianfang, ZHANG Duo, WU Chunping, CHEN Ling, TAO Lei. Nursing care for postoperative laryngeal function rehabilitation in a patient undergoing primary voice prosthesis implantation after total laryngectomy [J]. Chinese Journal of Nursing, 2025, 60(9): 1120-1123. |
| [11] | GU Qian, HUANG Xi, SHI Weixiong, WU Jing, TAN Ruoming, WANG Feng. Nursing care for a patient with cytokine release syndrome following T-cell immunotherapy [J]. Chinese Journal of Nursing, 2025, 60(9): 1124-1127. |
| [12] | ZHOU Miao, CHEN Xing, PENG Fei, SUN Shangxue, LI Yangyang. Systematic review of risk prediction instruments for central line associated bloodstream infections in ICU patients [J]. Chinese Journal of Nursing, 2025, 60(9): 1132-1139. |
| [13] | PENG Yingjie, LIU Aihong, ZHU Wenli, MEI Yuxin, ZHOU Meng, GUAN Wenjing. Systematic review of readiness assessment tools for advance care planning in older adults [J]. Chinese Journal of Nursing, 2025, 60(9): 1146-1153. |
| [14] | RAN Lingxiao, WANG Dongmin, XU Ke, WANG Cong, CAO Hua, CUN Wei, JIANG Yan. Application of biomechanical simulation based on three-dimensional human body model in preventing pressure ulcers:a scoping review [J]. Chinese Journal of Nursing, 2025, 60(8): 1012-1018. |
| [15] | JIN Yujia, JIANG Hu, WANG Xiaoxuan, YI Jingna, MEI Yongxia, GUO Zhiting, ZHANG Zhenxiang, LIN Beilei. Application of information-based risk communication in primary prevention of cardiovascular diseases:a scoping review [J]. Chinese Journal of Nursing, 2025, 60(8): 1019-1025. |
| Viewed | ||||||
|
Full text |
|
|||||
|
Abstract |
|
|||||