Chinese Journal of Nursing ›› 2025, Vol. 60 ›› Issue (18): 2294-2299.DOI: 10.3761/j.issn.0254-1769.2025.18.019
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Received:2024-12-10
Online:2025-09-20
Published:2025-09-12
Contact:
LU Fangyan
通讯作者:
卢芳燕
作者简介:谢仕龙:男,本科,主管护师,E-mail:584460871@qq.com
XIE Shilong, LU Fangyan. Progress in the implementation and management of home parenteral nutrition in patients with short bowel syndrome[J]. Chinese Journal of Nursing, 2025, 60(18): 2294-2299.
谢仕龙, 卢芳燕. 短肠综合征患者家庭肠外营养实施及管理的研究进展[J]. 中华护理杂志, 2025, 60(18): 2294-2299.
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| [11] | 褚怡青, 冯海霞, 陶怡菁, 等. 小儿肠衰竭实施家庭营养支持探索十例临床分析[J]. 中华临床营养杂志, 2021, 29(4):226-231. |
| Chu YQ, Feng HX, Tao YJ, et al. Exploration of home nu-trition support in children with intestinal failure and clinical experience with 10 cases[J]. Chin J Clin Nutr, 2021, 29(4):226-231. | |
| [12] | 蔚田, 于健春. 中国家庭肠外肠内营养支持治疗的前景与模式探索[J]. 中华普通外科杂志, 2024, 39(3):221-224. |
| Wei T, Yu JC. The prospect and model of parenteral nutrition support therapy in Chinese families[J]. Chin J Gen Surg, 2024, 39(3):221-224. | |
| [13] | Li WQ, Guo HF, Li LY, et al. Cost-effectiveness analyses of home parenteral nutrition for incurable gastrointestinal cancer pa-tients[J]. Front Oncol, 2022,12:858712. |
| [14] |
Pironi L, Steiger E, Brandt C, et al. Home parenteral nutrition provision modalities for chronic intestinal failure in adult patients:an international survey[J]. Clin Nutr, 2020, 39(2):585-591.
DOI PMID |
| [15] |
Pironi L, Cuerda C, Jeppesen PB, et al. ESPEN guideline on chronic intestinal failure in adults:update 2023[J]. Clin Nutr, 2023, 42(10):1940-2021.
DOI PMID |
| [16] | Joly F, Nuzzo A, Bozzetti F, et al. A multi-national survey of experience and attitudes towards managing catheter related blood stream infections for home parenteral nutrition[J]. Clin Nutr ESPEN, 2023,57:126-130. |
| [17] | Dashti HS, Leong A, Mogensen KM, et al. Glycemic and sleep effects of daytime compared with those of overnight infusions of home parenteral nutrition in adults with short bowel syn-drome:a quasi-experimental pilot trial[J]. Am J Clin Nutr, 2024, 119(2):569-577. |
| [18] | Jeppesen PB, Shahraz S, Hopkins T, et al. Impact of intestinal failure and parenteral support on adult patients with short-bowel syndrome:a multinational,noninterventional,cross-sectio-nal survey[J]. JPEN J Parenter Enteral Nutr, 2022, 46(7):1650-1659. |
| [19] | Dashti HS, Rhyner JJ, Mogensen KM, et al. Infusion timing and sleep habits of adults receiving home parenteral and enteral nutrition:a patient-oriented survey study[J]. JPEN J Parenter En-teral Nutr, 2023, 47(1):130-139. |
| [1] | 李幼生, 蔡威, 藜介寿, 等. 中国短肠综合征诊疗共识(2016年版)[J]. 中华医学杂志, 2017, 97(8):569-576. |
| Li YS, Cai W, Li JS, et al. Consensus on diagnosis and treatment of short bowel syndrome in China(2016 edition)[J]. Natl Med J China, 2017, 97(8):569-576. | |
| [2] | Massironi S, Cavalcoli F, Rausa E, et al. Understanding short bowel syndrome:Current status and future perspectives[J]. Dig Liver Dis, 2020, 52(3):253-261. |
| [3] |
Pironi L, Boeykens K, Bozzetti F, et al. ESPEN practical guide-line:Home parenteral nutrition[J]. Clin Nutr, 2023, 42(3):411-430.
DOI PMID |
| [4] | 中华医学会肠外肠内营养学分会. 成人家庭肠外营养中国专家共识[J]. 中国实用外科杂志, 2017, 37(4):406-411. |
| Chinese Society of Parenteral and Enteral Nutrition. Chinese expert consensus on adult parenteral nutrition[J]. Chin J Pract Surg, 2017, 37(4):406-411. | |
| [5] |
梅伶俐, 凌云, 胡艳, 等. 短肠综合征继发肠衰竭患儿父母营养照护体验的质性研究[J]. 中华护理杂志, 2023, 58(20):2452-2458.
DOI |
| Mei LL, Ling Y, Hu Y, et al. The nutritional care experience of families of children with intestinal failure secondary to short bowel syndrome:a qualitative study[J]. Chin J Nurs, 2023, 58(20):2452-2458. | |
| [6] | 沈如婷, 黄迎春, 陈静, 等. 短肠综合征患者家庭肠外营养体验的质性研究[J]. 护理学杂志, 2023, 38(3):113-116. |
| Shen RT, Huang YC, Chen J, et al. Qualitative study of home parenteral nutrition experience in patients with short bowel syndrome[J]. J Nurs Sci, 2023, 38(3):113-116. | |
| [7] | Folwarski M, Kłęk S, Szlagatys-Sidorkiewicz A, et al. Trend obser-vations in home parenteral nutrition. Prevalence,hospitalizations and costs:results from a nationwide analysis of health care provider data[J]. Nutrients, 2021, 13(10):3465. |
| [20] | Gatti S, Quattrini S, Palpacelli A, et al. Metabolic bone disease in children with intestinal failure and long-term parenteral nutrition:a systematic review[J]. Nutrients, 2022, 14(5):995. |
| [21] | 何盼盼, 卢芳燕. 小肠移植受者再次行肝肠联合移植的术后护理[J]. 中华急危重症护理杂志, 2022, 3(4):345-347. |
| He PP, Lu FY. Postoperative nursing care of a recipient of small bowel transplantation underwent second liver-intestine transplantation[J]. Chin J Emerg Crit Care Nurs, 2022, 3(4):345-347. | |
| [22] | Mundi MS, Mohamed Elfadil O, Hurt RT, et al. Management of long-term home parenteral nutrition:historical perspective,common complications,and patient education and training[J]. JPEN J Parenter Enteral Nutr, 2023, 47(Suppl 1):S24-S34. |
| [23] | Brandt CF, Tribler S, Hvistendahl M, et al. Home parenteral nutrition in adult patients with chronic intestinal failure:catheter-related complications over 4 decades at the main Danish tertiary referral center[J]. JPEN J Parenter Enteral Nutr, 2018, 42(1):95-103. |
| [24] | Simó Servat A, López Urdiales R, Planas-Vilaseca A, et al. Parenteral domiciliary nutrition program:32 years of clinical experience[J]. Nutr Hosp, 2019, 36(5):1011-1018. |
| [25] |
中华护理学会医院感染管理专业委员会, 中华护理学会静脉治疗专业委员会. 输液连接装置安全管理专家共识[J]. 中华护理杂志, 2022, 57(23):2821-2824.
DOI |
|
Chinese Nursing Association Hospital Infection Management Committee, Chinese Nursing Association Intravenous Therapy Committee. Expert consensus on safety management of infu-sion connection device[J]. Chin J Nurs, 2022, 57(23):2821-2824.
DOI |
|
| [26] |
王霞, 邵欣, 旷璐, 等. 183所三级医院ICU中心静脉导管相关血流感染防控护理实践的调查[J]. 中华护理杂志, 2022, 57(11):1371-1377.
DOI |
|
Wang X, Shao X, Kuang L, et al. Investigation of nursing prevention and control practice of central line-associated bloodstream infections in ICU of 183 tertiary hospitals[J]. Chin J Nurs, 2022, 57(11):1371-1377.
DOI |
|
| [27] | Xue ZG, Coughlin R, Amorosa V, et al. Factors associated with central line-associated bloodstream infections in a cohort of adult home parenteral nutrition patients[J]. JPEN J Parenter Enteral Nutr, 2020, 44(8):1388-1396. |
| [8] | Naghibi M, Toskas A, Willsmore J, et al. United Kingdom arti-ficial nutrition database:the changing landscape of adult home parenteral support[J]. JPEN J Parenter Enteral Nutr, 2023, 47(5):635-645. |
| [9] | Goulet O, Breton A, Coste ME, et al. Pediatric home parenteral nutrition in France:a six years national survey[J]. Clin Nutr, 2021, 40(10):5278-5287. |
| [10] |
Wu GH, Jiang Y, Zhu XP, et al. Prevalence and risk factors for complications in adult patients with short bowel syndrome receiving long-term home parenteral nutrition[J]. Asia Pac J Clin Nutr, 2017, 26(4):591-597.
DOI PMID |
| [28] | 中华医学会肠外肠内营养学分会儿科学组,儿童短肠综合征诊断治疗专家共识工作组. 儿童短肠综合征诊断治疗专家共识(2023版)[J]. 中国循证儿科杂志, 2024, 19(3):161-172. |
| Expert Consensus Working Group on Diagnosis and Treat-ment of Short Bowel Syndrome in Children,Pediatrics Group,Chinese Association of Parenteral and Enteral Nutrition So-ciety. Expert consensus on diagnosis and treatment of short bowel syndrome in children(2023 edition)[J]. Chin J Evid Based Pediatr, 2024, 19(3):161-172. | |
| [29] | Vlug LE, Nagelkerke SCJ, Jonkers-Schuitema CF, et al. The role of a nutrition support team in the management of intestinal failure patients[J]. Nutrients, 2020, 12(1):172. |
| [30] |
French C, Lal S, Jones D, et al. Impact of home parenteral nutrition on family members:a national multi-centre cross-sectional study[J]. Clin Nutr, 2022, 41(2):500-507.
DOI PMID |
| [31] | Smith CE, Yadrich D, Wright S, et al. Themes of stressors,emotional fatigue,and communication challenges found in mobile care discussion sessions with patients requiring life-long home parenteral nutrition infusions[J]. JPEN J Parenter En-teral Nutr, 2021, 45(3):499-506. |
| [32] | Carey S, Brown S, Ferrie S. The role of the social worker in the assessment and management of adults receiving home parenteral nutrition[J]. Eur J Clin Nutr, 2025. |
| [33] |
田君叶, 王艳玲, 郭爱敏, 等. 61 562名专科护士再培训需求的调查研究[J]. 中华护理杂志, 2024, 59(23):2821-2826.
DOI |
|
Tian JY, Wang YL, Guo AM, et al. Investigation of 61 562 specialty nurses needs for the retraining[J]. Chin J Nurs, 2024, 59(23):2821-2826.
DOI |
|
| [34] |
Raphael BP, Takvorian-Bené M, Gallotto M, et al. Learning gaps and family experience,nurse-facilitated home parenteral nutri-tion simulation-based discharge training:proof-of-concept study[J]. Nutr Clin Pract, 2021, 36(2):489-496.
DOI |
| [35] |
Pierik A, Martins DS, Casey L, et al. Use of instructional videos to reduce central venous catheter complications in children with intestinal failure receiving home parenteral nutrition[J]. Nutr Clin Pract, 2021, 36(4):872-876.
DOI PMID |
| [36] |
梅伶俐, 陈朔晖, 胡艳, 等. 社会生态系统理论视角下短肠综合征患儿照护者负担体验的质性研究[J]. 中华护理杂志, 2022, 57(6):718-723.
DOI |
| Mei LL, Chen SH, Hu Y, et al. Caring experience of caregi-vers of children with short bowel syndrome based on the so-cial ecological theory:a qualitative study[J]. Chin J Nurs, 2022, 57(6):718-723. | |
| [37] | Adams SC, Gura KM, Seres DS, et al. Safe care transitions for patients receiving parenteral nutrition[J]. Nutr Clin Pract, 2022, 37(3):493-508. |
| [38] | 李鹤, 卢芳燕, 章梅云, 等. 癌性疼痛患者出院随访的最佳证据总结[J]. 中华急危重症护理杂志, 2023, 4(7):653-659. |
| Li H, Lu FY, Zhang MY, et al. Evidence summary for dis-charge follow-up of patients with cancer pain[J]. Chin J Emerg Crit Care Nurs, 2023, 4(7):653-659. | |
| [39] | Cloutier A, Bond A, Taylor MI, et al. Successful implementa-tion of remote video consultations for patients receiving home parenteral nutrition in a national UK Centre[J]. Frontline Gas-troenterol, 2019, 11(4):280-284. |
| [40] | 凌云, 梅伶俐, 诸纪华, 等. 智能化随访系统的研发及在短肠综合征患儿中的应用[J]. 中华急危重症护理杂志, 2023, 4(10):887-892. |
| Ling Y, Mei LL, Zhu JH, et al. Development of an intelligent follow-up system and management practice in children with short bowel syndrome[J]. Chin J Emerg Crit Care Nurs, 2023, 4(10):887-892. |
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