Abstract:

Objective To explore the experience of social isolation among caregivers of stroke patients，and to provide corresponding references for the development of targeted intervention strategies. Methods A descriptive qualitative study was used to select 14 caregivers of hospitalized stroke patients attending the Department of Neurology and Neurosurgery of a tertiary-level hospital in Kunming City from September to November 2023 through purposive sampling method，and the data were analyzed using traditional content analysis. Results A total of 3 themes and 10 sub-themes were extracted，including characterization of social alienation（accumulation of negative emotions，limited social contact，dissolution of self-identity），drivers of social alienation（limitations of disease perception，multiple role conflicts，lack of support resources，constraints of caregiving responsibilities），and coping needs for social alienation（craving for informational support，appeal for emotional support，and expectation of policy support）. Conclusion Caregivers of stroke patients are socially alienated due to limited social contact，multiple role conflicts，and lack of support resources，etc. Healthcare professionals should conduct regular assessments，provide targeted education and training，and strengthen multidimensional support in order to help them reintegrate into society and improve the overall quality of life of stroke families.

Key words: Stroke, Caregivers, Social Isolation, Qualitative Research, Nursing Care

摘要： 目的 探讨脑卒中患者照顾者社会疏离的体验，为制订针对性的干预策略提供参考。方法 采用描述性质性研究，通过目的抽样法，选取2023年9月—11月就诊于昆明市某三级甲等医院神经内科、神经外科的14名住院脑卒中患者照顾者作为研究对象，进行半结构式访谈，使用传统内容分析法分析资料。结果 共提炼出3个主题10个亚主题：社会疏离的表征（负性情绪累积、社会接触受限、自我身份消解），社会疏离的驱动因素（疾病认知局限、多重角色冲突、支持资源匮乏、照顾责任束缚），社会疏离的应对需求（信息支持渴求、情感支持诉求、政策支持期待）。结论 脑卒中患者照顾者因社会接触受限、多重角色冲突、支持资源匮乏等而产生社会疏离，医护人员应定期评估，提供针对性的教育与培训，强化多维支持，以帮助其重返社会，提高脑卒中家庭整体生活质量。

关键词: 脑卒中, 照顾者, 社会疏离, 质性研究, 护理