Chinese Journal of Nursing ›› 2026, Vol. 61 ›› Issue (4): 530-535.DOI: 10.3761/j.issn.0254-1769.2026.04.013

• Specialist Nursing Practice and Research • Previous Articles     Next Articles

Experience of pregnant women with end-stage renal disease under multidisciplinary management:a qualitative study

QIN Yushuang1(), YU Lili1, CHENG Lili1, HUANG Juan2, XI Xin3, WANG Liyan4, TIAN En5, LIN Lirong5, FAN Yao6, YANG Jurong5, ZHOU Mingfang1,*()   

  1. 1. Obstetrics and Gynecology Centerthe Third Affiliated Hospital of Chongqing Medical UniversityChongqing 401120,China
    2. Department of Clinical Nutritionthe Third Affiliated Hospital of Chongqing Medical UniversityChongqing 401120,China
    3. Department of Pharmacythe Third Affiliated Hospital of Chongqing Medical UniversityChongqing 401120,China
    4. Pediatric Centerthe Third Affiliated Hospital of Chongqing Medical UniversityChongqing 401120,China
    5. Department of Nephrologythe Third Affiliated Hospital of Chongqing Medical UniversityChongqing 401120,China
    6. School of Public HealthChongqing Medical UniversityChongqing 401120,China
  • Received:2025-07-17 Online:2026-02-20 Published:2026-02-06
  • * Corresponding author: ZHOU Mingfang,E-mail:650939@hospital.cqmu.edu.cn
  • Funding program:
    Intramural Research Grant from the Third Affiliated Hospital of Chongqing Medical University(KY23066)

多学科管理下终末期肾病患者妊娠体验的质性研究

秦雨霜1(), 俞丽丽1, 程丽历1, 黄娟2, 奚鑫3, 王丽雁4, 田恩5, 林利容5, 范尧6, 杨聚荣5, 周明芳1,*()   

  1. 1.重庆医科大学附属第三医院妇产中心 重庆市 401120
    2.重庆医科大学附属第三医院临床营养科 重庆市 401120
    3.重庆医科大学附属第三医院药剂科 重庆市 401120
    4.重庆医科大学附属第三医院儿科中心 重庆市 401120
    5.重庆医科大学附属第三医院肾内科重庆市 401120
    6.重庆医科大学公共卫生学院 重庆市 401120

Abstract:

Objective To explore the experiences of pregnant patients with end-stage renal disease (ESRD) undergoing multidisciplinary precision management,providing evidence to optimize clinical multidisciplinary management protocols. Methods This study employed purposeful sampling methods. Semi-structured interviews were conducted from September 2021 to February 2025 with pregnant patients with ESRD who received full multidisciplinary precision management in a tertiary-level hospital in Chongqing,China. Data were analyzed using Colaizzi’s 7-step analysis method. Results This study involved in-depth interviews with 8 pregnant patients with ESRD,totaling approximately 370 minutes of interview time and yielding over 26,000 words in transcribed text. Totally 3 core themes and 6 sub-themes were extracted,namely the motivation to continue the pregnancy,multidimensional pregnancy management experience(comprehensive risk assessment and counseling,informed communication,continuous pregnancy monitoring,personalized nutritional support,individualized exercise guidance,continuous psychological support and companionship),transformation and maintenance of healthy behaviors. Conclusion The pregnancy journey for patients with ESRD is fraught with uncertainty and challenges. Future efforts should focus on achieving full-cycle empowerment management through continuous health education and family support mechanisms,ensuring the safety of both mothers and babies while enhancing patients’ quality of life.

Key words: End-Stage Renal Disease, Pregnancy, Multi-Disciplinary Management, Renal Replacement Therapy, Dialysis, Qualitative Research, Nursing Care

摘要:

目的 剖析多学科管理下终末期肾病患者的妊娠体验,为优化多学科管理方案提供参考。方法 采取目的抽样法,选取2021年9月—2025年2月在重庆市某三级甲等医院接受多学科管理的终末期肾病妊娠患者进行半结构式访谈,运用Colaizzi 7步分析法对资料进行分析。结果 共访谈8例终末期肾病妊娠患者,访谈总时长为370 min,转录2.6万余字。共提炼出3个核心主题及6个亚主题:①坚持妊娠的动机;②多维妊娠管理体验,包括全面的风险评估与咨询、充分的知情沟通、连续的妊娠管理、个性化的营养支持、差异化的运动指导、持续的心理支持与陪伴;③健康行为的转变与维持。结论 终末期肾病患者在妊娠过程中存在较大风险与挑战,未来需进一步加强健康教育与家庭支持,实现全周期的赋能管理,以保障母婴安全、提升患者的生活质量。

关键词: 终末期肾病, 妊娠, 多学科管理, 肾脏替代治疗, 透析, 质性研究, 护理