A qualitative research on perceptions and experience of adolescents with epilepsy

doi:10.3761/j.issn.0254-1769.2021.01.014

Abstract

Abstract:

Objective To explore the perceptions and experience of adolescents with epilepsy,in order to provide references for the development of nursing intervention strategies. Methods Semi-structured interviews were carried out from October to December 2019 by phenomenology. 13 adolescents with epilepsy from a level A tertiary hospital in Zhengzhou were recruited,and Colaizzi’s 7-step analysis method was applied to analyze,induce,and refine themes of interview data. Results 4 themes were extracted,namely theme 1:inadequate self-management of epilepsy;theme 2:decline in quality of life;theme 3:obviously self-perceived burden;theme 4:eager for understanding and social support. Conclusion Adolescents with epilepsy have multiple burdens and requirements in physical,psychological and social aspects.Nurses were advised to pay much more attention to the emotional and psychological response of them. Sufficient psychological guidance and multi-dimensional social support were also needed.

Key words: Qualitative Research, Nursing Care, Adolescents, Epilepsy, Perception, Experience, Qualitative Research, Nursing Care

摘要：

目的了解青少年癫痫患者的疾病感受和体验,旨在为青少年癫痫患者护理干预策略的制订提供参考依据。方法采用现象学研究法,选取2019年10月—12月在郑州市某三级甲等综合医院住院的13例青少年癫痫患者,对其进行半结构式深入访谈,并采用Colaizzi 7步分析法对访谈资料进行分析、归纳及提炼主题。结果青少年癫痫患者的疾病感受和体验可归纳为4个主题:①疾病自我管理能力不足;②生活质量下降;③自我感受负担明显;④期待理解与社会支持。结论青少年癫痫患者在生理、心理、社会等方面存在诸多负担和需求,护士应密切关注此类患者的情绪反应和心理感受,给予有针对性的心理疏导和多维度的社会支持。

关键词: 青少年, 癫痫, 感受, 体验, 质性研究, 护理

CAI Libai,LIU Yanjin,SUN Xiaoyin,DU Ruofei,GUO Yuanli,WANG Aixia,CUI Miaoran. A qualitative research on perceptions and experience of adolescents with epilepsy[J]. Chinese Journal of Nursing, 2021, 56(1): 86-90.

蔡立柏,刘延锦,孙箫音,杜若飞,郭园丽,王爱霞,崔妙然. 青少年癫痫患者疾病感受和体验的质性研究[J]. 中华护理杂志, 2021, 56(1): 86-90.

Figures/Tables 1

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