癌症患儿家庭复原力现状及影响因素研究

doi:10.3761/j.issn.0254-1769.2025.04.009

摘要/Abstract

摘要：

目的调查癌症患儿家庭复原力的现状，并分析其影响因素，为医护人员制订干预方案提供依据。方法采用便利抽样法，选取2024年1月—4月在河南省2所三级甲等医院住院的癌症患儿及其主要照顾者作为调查对象，采用一般资料调查表、家庭复原力评定量表、照顾者生活质量量表、护理者负担量表、社会支持评定量表进行调查，了解癌症患儿家庭复原力的现状，并采用单因素分析、相关分析及多元逐步线性回归分析探究其影响因素。结果共发放问卷280份，回收有效问卷265份，有效问卷回收率为94.64%。癌症患儿家庭复原力评定量表总分为（185.63±30.66）分。多元逐步线性回归分析结果显示，患儿的生活自理能力、照顾者的工作状态、家庭照顾负担和社会支持水平是癌症患儿家庭复原力的影响因素（P<0.05），可解释总变异的51.3%。结论癌症患儿家庭复原力处于中等水平。患儿的自理能力越差、家庭照顾负担越重，家庭复原力越低；而主要照顾者处于在职工作状态和良好的社会支持有助于促进家庭复原。医护人员应针对以上因素制订干预方案，以提升癌症患儿的家庭复原力。

关键词: 癌症, 家庭复原力, 影响因素分析, 儿科护理学

Abstract:

Objective To investigate the current status of family resilience of children with cancer and analyze its influencing factors，to provide a basis for medical staff to formulate intervention plans. Methods Using a convenient sampling method，children with cancer who were hospitalized in 2 tertiary hospitals in Henan Province from January to April 2024 were selected for the survey. A general information questionnaire，family resilience assessment scale，quality of life family version，ZBI caregiver burden interview，and social support rating scale were used to understand the current status of family resilience of children with cancer and to explore the related influencing factors by univariate analysis and multiple stepwise linear regression analysis. Results A total of 280 questionnaires were distributed and 265 valid questionnaires were recovered，with a valid questionnaire recovery rate of 94.64%. The total score of family resilience for primary caregivers of children with cancer was（185.63±30.66）. The multiple stepwise linear regression analysis results showed that the children’s self-care ability，caregiver’s work status，family care burden，and social support level were the influencing factors for family resilience of children with cancer（P<0.05），and the explanatory variance was 51.3%. Conclusion The family resilience of children with cancer is at a medium level. The worse the children’s self-care ability and the heavier the family care burden，the worse the family resilience；the caregiver’s work status and good social support are helpful for the family resilience of children with cancer. Healthcare workers should develop intervention programs to address these factors to enhance the family resilience of children with cancer.

Key words: Cancer, Family Resilience, Root Cause Analysis, Pediatric Nursing

杨福娜, 杨瑞, 秦妍, 陈军翰, 郭兰伟, 王永琦, 何家欣, 刘琪, 毛婷, 梅萧萧, 王文颖, 徐晓霞, 石红英. 癌症患儿家庭复原力现状及影响因素研究[J]. 中华护理杂志, 2025, 60(4): 446-452.

YANG Funa, YANG Rui, QIN Yan, CHEN Junhan, GUO Lanwei, WANG Yongqi, HO Kayan, LIU Qi, MAO Ting, MEI Xiaoxiao, WANG Wenying, XU Xiaoxia, SHI Hongying. Current situation and influencing factors of family resilience of children with cancer[J]. Chinese Journal of Nursing, 2025, 60(4): 446-452.

图/表 4

表1 癌症患儿及其主要照顾者的一般资料、家庭复原力的单因素分析结果（n=265）

Table 1 General data of children and caregivers with cancer and univariate analysis of family resilience scores（n=265）

表2 癌症患儿家庭复原力与照顾者生活质量、家庭照顾负担、社会支持水平的相关分析结果（n=265）

Table 2 Correlation analysis of family resilience with caregiver quality of life, family care burden, and social support in children with cancer（n=265）

表3 自变量赋值方式

Table 3 Variable assignments of factors

表4 癌症患儿家庭复原力影响因素的多元逐步线性回归分析结果（n=265）

Table 4 Multiple linear stepwise regression analysis on influencing factors of family resilience in children with cancer（n=265）

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