关键词: 癌症, 病情沟通, 亲子沟通, 描述性现象学, 质性研究, 儿科护理学

Abstract:

Objective To explore the lived experiences of children with cancer in communicating with their parents about their illness from children’s perspectives，in order to provide a basis for constructing personalized parent-child communication intervention programs. Methods A descriptive phenomenological study was conducted using semi-structured interviews with 21 children（aged 8~17 years） from the pediatric surgical oncology and hematological oncology departments of a tertiary grade A children’s hospital in Shanghai. The data were analyzed using Colaizzi’s seven-step phenomenological analysis. Results 4 themes were extracted：①acceptance and isolation：information exchange in parent-child illness communication. ②expression and suppression：emotional interaction in parent-child illness communication. ③expectation and ambivalence：future planning in parent-child illness communication. ④craving and anxiety：information needs in parent-child illness communication. Conclusion The illness communication between children with cancer and their parents demonstrated a dynamic balance of disclosure and silence. This reflects the children’s information needs and emotional demands，as well as the unique patterns of parent-child interaction in the context of illness. Future research could focus on the evolving communication needs of children at different stages of illness and explore child-centered，personalized guidance for communication about the disease between parents and children. This could promote high-quality dialogue between parents and children about the illness，thereby enhancing the children’s psychological well-being and improving the quality of family care.

Key words: Cancer, Illness Communication, Parent-Child Communication, Descriptive Phenomenology, Qualitative Research, Pediatric Nursing