Abstract:

Objective To systematically evaluate the qualitative studies on the care experience of caregivers for primary malignant bone tumors patients，in order to provide references for the construction of bone tumor support care system. Methods The Cochrane Library，PubMed，Embase，CNKI，Wanfang Database，VIP database，and China Biomedical Literature Database were searched by computer to collect qualitative studies on the care experience of caregivers of malignant bone tumors patients from the establishment of the databases to November 2022. The quality of the literature was evaluated using the Joanna Briggs Institute（JBI） Quality Evaluation Criteria for Quality Research in Evidence-Based Health Care Centers（2016），and the results were integrated by a pooled integration approach. Results A total of 12 studies were included；48 themes were extracted and summarized into 9 categories，which were combined into 3 integrated results. Integration result 1 is obvious physical and mental disturbance. Integration result 2 is multiple role maladaptation. Integration result 3 is positive growth after adjustment. Conclusion Caregivers of patients with malignant bone tumors have serious physical and mental burden and are eager for multiple support. It is suggested that medical staff pay attention to the multi-dimensional needs of patients，formulate personalized support strategies，help caregivers adapt and transform their roles，and promote the post-traumatic growth of caregivers.

Key words: Bone Neoplasms, Caregivers, Experience, Qualitative Research, Evidence-Based Nursing

摘要：

目的 系统评价恶性骨肿瘤患者照护者的真实照护体验。 方法 计算机检索Cochrane Library、PubMed、Embase、中国知网、万方数据库、维普数据库、中国生物医学文献数据库，检索从建库至2022年11月关于恶性骨肿瘤患者照护者照护体验的质性研究。采用澳大利亚乔安娜布里格斯研究所（Joanna Briggs Institute，JBI）循证卫生保健中心质性研究质量评价标准（2016）对文献进行质量评价，并采用汇集性整合方法对结果进行整合。 结果 共纳入12项研究，提炼出48个主题，归纳形成9个类别，合并为3个整合结果：身心困扰明显；多重角色适应不良；积极调适，获得成长。 结论 恶性骨肿瘤患者照护者身心困扰明显，渴望多方支持，建议医护人员重视患者多维度需求，制订多元支持策略，帮助照护者角色适应和转换，促进照护者创伤后成长。

关键词: 骨肿瘤, 照护者, 真实体验, 质性研究, 循证护理学