doi:10.3761/j.issn.0254-1769.2020.08.028

Abstract

Key words: Peripartum Period, Palliative Care, Life-limiting Condition, Fetus, Obstetrical Nursing

摘要：

对美国围产期姑息照护服务的起源和理念发展、围产期姑息照护服务项目的现状进行综述。根据美国国家共识项目关于照护的结构和过程、生理症状的照护、心理和精神的照护、社会支持、灵性宗教和存在主义方面的照护、文化照护、临终期患者的照护、伦理与法律方面的照护共8个领域分析阐述美国围产期姑息照护服务的发展现状与建议,以期为中国围产期姑息照护的发展与研究提供参考和借鉴,提高围产期母婴的生命质量。

关键词: 围产期, 姑息照护, 生命周期有限, 胎儿, 产科护理

宋莉娟, 袁长蓉. 美国围产期姑息照护服务的研究进展[J]. 中华护理杂志, 2020, 55(8): 1260-1264.

References 31

[1]	Osterman MJ, Kochanek KD, MacDorman MF, et al. Annual sum-mary of vital statistics:2012-2013[J]. Pediatrics, 2015,135(6):1115-1125.
[2]	Barfield WD, The Committee on Fetus and Newborn. Standard terminology for fetal,infant,and perinatal deaths[J]. Pediatrics, 2016,137(5):e20160551.
[3]	Munson D, Leuthner SR. Palliative care for the family carrying a fetus with a life-limiting diagnosis[J]. Pediatr Clin North Am, 2007, 54(5):787-798,xii. DOI URL PMID
[4]	Balaguer A, Martín-Ancel A, Ortigoza-Escobar D, et al. The model of palliative care in the perinatal setting:a review of the literature[J]. BMC Pediatr, 2012,12:25.
[5]	Wool C, Côté-Arsenault D, Perry Black B, et al. Provision of services in perinatal palliative care:a multicenter survey in the United States[J]. J Palliat Med, 2016,19(3):279-285. DOI URL PMID
[6]	National Consensus Project for Quality Palliative Care:Clinical Practice Guidelines for Quality Palliative Care. 3rd ed Pittsburgh, PA:National Consensus Project for Quality Palliative Care[EB/OL].( 2015 -06-16)[2019-11-12]. http://www.nationalconsensusproject.org.
[7]	Wool C. State of the science on perinatal palliative care[J]. J Obstet Gynecol Neonatal Nurs, 2013, 42(3):372-382; quiz E54-55. DOI URL PMID
[8]	Leong Marc-Aurele K, Nelesen R. A five-year review of referrals for perinatal palliative care[J]. J Palliat Med, 2013,16(10):1232-1236.
[9]	Black B, Sandelowski M. Personal growth after severe fetal diagnosis[J]. West J Nurs Res, 2010,32(8):1011-1030. URL PMID
[10]	Nancarrow SA, Booth A, Ariss S, et al. Ten principles of good interdisciplinary team work[J]. Hum Resour Health, 2013,11:19. DOI URL PMID
[11]	Engelder S, Davies K, Zeilinger T, et al. A model program for perinatal palliative services[J]. Adv Neonatal Care, 2012,12(1):28-36. URL PMID
[12]	Wool C. Instrument development:parental satisfaction and qua-lity indicators of perinatal palliative care[J]. J Hosp Palliat Nurs, 2015,17(4):301-308. DOI URL
[13]	Dy SM, Kiley KB, Ast K, et al. Measuring what matters:top-ranked quality indicators for hospice and palliative care from the American Academy of Hospice and Palliative Medicine and Hospice and Palliative Nurses Association[J]. J Pain Sym-ptom Manage, 2015,49(4):773-781.
[14]	Denney-Koelsch E, Black BP, Côté-Arsenault D, et al. A survey of perinatal palliative care programs in the United States:structure,processes,and outcomes[J]. J Palliat Med, 2016,19(10):1080-1086. DOI URL PMID
[15]	Lathrop A, Vandevusse L. Affirming motherhood:validation and invalidation in women’s perinatal hospice narratives[J]. Birth, 2011,38(3):256-265.
[16]	Wool C. Instrument psychometrics:parental satisfaction and qua-lity indicators of perinatal palliative care[J]. J Palliat Med, 2015,18(10):872-877. URL PMID
[17]	Miquel-Verges F, Woods SL, Aucott SW, et al. Prenatal consultation with a neonatologist for congenital anomalies:parental perceptions[J]. Pediatrics, 2009,124(4):e573-e579.
[18]	Inati V, Matic M, Phillips C, et al. A survey of the experiences of families with bereavement support services following a perinatal loss[J]. Aust N Z J Obstet Gynaecol, 2018,58(1):54-63. DOI URL PMID
[19]	Gold KJ, Leon I, Boggs ME, et al. Depression and posttraumatic stress symptoms after perinatal loss in a population-based sample[J]. J Womens Health(Larchmt), 2016,25(3):263-269.
[20]	曾巍, 钱小芳, 刘桂华, 等. 胎儿畸形选择引产孕妇心理准备的质性研究[J]. 中华现代护理杂志, 2017,23(3):345-349.
[21]	Toedter LJ, Lasker JN, Alhadeff JM. The Perinatal Grief Scale:development and initial validation[J]. Am J Orthopsychiatry, 1988,58(3):435-449.
[22]	Hutti MH, Armstrong DS, Myers J. Evaluation of the perinatal grief intensity scale in the subsequent pregnancy after perinatal loss[J]. J Obstet Gynecol Neonatal Nurs, 2013,42(6):697-706. DOI URL PMID
[23]	刘颖, 赵敏慧. 对围产期丧失胎儿或新生儿家庭进行悲伤支持的研究进展[J]. 中华护理杂志, 2019,54(1):125-130.
[24]	LeDuff LD, Bradshaw WT, Blake SM. Transitional objects to faciliate grieving following perinatal loss[J]. Adv Neonatal Care, 2017,17(5):347-353. URL PMID
[25]	Fonseca A, Nazaré B, Canavarro MC. Clinical determinants of parents’ emotional reactions to the disclosure of a diagnosis of congenital anomaly[J]. J Obstet Gynecol Neonatal Nurs, 2013,42(2):178-190. DOI URL PMID
[26]	Einaudi MA, Le Coz P, Malzac P, et al. Parental experience following perinatal death:exploring the issues to make progress[J]. Eur J Obstet Gynecol Reprod Biol, 2010,151(2):143-148.
[27]	Heazell AEP, Siassakos D, Blencowe H, et al. Stillbirths:econo-mic and psychosocial consequences[J]. Lancet, 2016,387(10018):604-616.
[28]	Lalor J, Begley CM, Galavan E. Recasting Hope:a process of adaptation following fetal anomaly diagnosis[J]. Soc Sci Med, 2009,68(3):462-472.
[29]	Lathrop A, VandeVusse L. Continuity and change in mothers’ narratives of perinatal hospice[J]. J Perinat Neonatal Nurs, 2011,25(1):21-31.
[30]	Marty CM, Carter BS. Ethics and palliative care in the perinatal world[J]. Semin Fetal Neonatal Med, 2018,23(1):35-38.
[31]	Steven JR, Steven RL, Douglas SD, et al. Clinical report:maternal-fetal intervention and fetal care centers[J]. Pediatrics, 2011,128(2), e473-e478.

美国围产期姑息照护服务的研究进展

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