Chinese Journal of Nursing ›› 2020, Vol. 55 ›› Issue (8): 1260-1264.DOI: 10.3761/j.issn.0254-1769.2020.08.028
• Review • Previous Articles Next Articles
Received:
2019-08-02
Online:
2020-08-15
Published:
2020-08-06
通讯作者:
袁长蓉
作者简介:
宋莉娟:女,硕士(博士在读),讲师,E-mail:jer- <email>1208@163.com</email>
基金资助:
宋莉娟, 袁长蓉. 美国围产期姑息照护服务的研究进展[J]. 中华护理杂志, 2020, 55(8): 1260-1264.
Add to citation manager EndNote|Ris|BibTeX
URL: https://zh.zhhlzzs.com/EN/10.3761/j.issn.0254-1769.2020.08.028
[1] | Osterman MJ, Kochanek KD, MacDorman MF, et al. Annual sum-mary of vital statistics:2012-2013[J]. Pediatrics, 2015,135(6):1115-1125. |
[2] | Barfield WD, The Committee on Fetus and Newborn. Standard terminology for fetal,infant,and perinatal deaths[J]. Pediatrics, 2016,137(5):e20160551. |
[3] |
Munson D, Leuthner SR. Palliative care for the family carrying a fetus with a life-limiting diagnosis[J]. Pediatr Clin North Am, 2007, 54(5):787-798,xii.
DOI URL PMID |
[4] | Balaguer A, Martín-Ancel A, Ortigoza-Escobar D, et al. The model of palliative care in the perinatal setting:a review of the literature[J]. BMC Pediatr, 2012,12:25. |
[5] |
Wool C, Côté-Arsenault D, Perry Black B, et al. Provision of services in perinatal palliative care:a multicenter survey in the United States[J]. J Palliat Med, 2016,19(3):279-285.
DOI URL PMID |
[6] | National Consensus Project for Quality Palliative Care:Clinical Practice Guidelines for Quality Palliative Care. 3rd ed Pittsburgh, PA:National Consensus Project for Quality Palliative Care[EB/OL].( 2015 -06-16)[2019-11-12]. http://www.nationalconsensusproject.org. |
[7] |
Wool C. State of the science on perinatal palliative care[J]. J Obstet Gynecol Neonatal Nurs, 2013, 42(3):372-382; quiz E54-55.
DOI URL PMID |
[8] | Leong Marc-Aurele K, Nelesen R. A five-year review of referrals for perinatal palliative care[J]. J Palliat Med, 2013,16(10):1232-1236. |
[9] |
Black B, Sandelowski M. Personal growth after severe fetal diagnosis[J]. West J Nurs Res, 2010,32(8):1011-1030.
URL PMID |
[10] |
Nancarrow SA, Booth A, Ariss S, et al. Ten principles of good interdisciplinary team work[J]. Hum Resour Health, 2013,11:19.
DOI URL PMID |
[11] |
Engelder S, Davies K, Zeilinger T, et al. A model program for perinatal palliative services[J]. Adv Neonatal Care, 2012,12(1):28-36.
URL PMID |
[12] |
Wool C. Instrument development:parental satisfaction and qua-lity indicators of perinatal palliative care[J]. J Hosp Palliat Nurs, 2015,17(4):301-308.
DOI URL |
[13] | Dy SM, Kiley KB, Ast K, et al. Measuring what matters:top-ranked quality indicators for hospice and palliative care from the American Academy of Hospice and Palliative Medicine and Hospice and Palliative Nurses Association[J]. J Pain Sym-ptom Manage, 2015,49(4):773-781. |
[14] |
Denney-Koelsch E, Black BP, Côté-Arsenault D, et al. A survey of perinatal palliative care programs in the United States:structure,processes,and outcomes[J]. J Palliat Med, 2016,19(10):1080-1086.
DOI URL PMID |
[15] | Lathrop A, Vandevusse L. Affirming motherhood:validation and invalidation in women’s perinatal hospice narratives[J]. Birth, 2011,38(3):256-265. |
[16] |
Wool C. Instrument psychometrics:parental satisfaction and qua-lity indicators of perinatal palliative care[J]. J Palliat Med, 2015,18(10):872-877.
URL PMID |
[17] | Miquel-Verges F, Woods SL, Aucott SW, et al. Prenatal consultation with a neonatologist for congenital anomalies:parental perceptions[J]. Pediatrics, 2009,124(4):e573-e579. |
[18] |
Inati V, Matic M, Phillips C, et al. A survey of the experiences of families with bereavement support services following a perinatal loss[J]. Aust N Z J Obstet Gynaecol, 2018,58(1):54-63.
DOI URL PMID |
[19] | Gold KJ, Leon I, Boggs ME, et al. Depression and posttraumatic stress symptoms after perinatal loss in a population-based sample[J]. J Womens Health(Larchmt), 2016,25(3):263-269. |
[20] | 曾巍, 钱小芳, 刘桂华, 等. 胎儿畸形选择引产孕妇心理准备的质性研究[J]. 中华现代护理杂志, 2017,23(3):345-349. |
[21] | Toedter LJ, Lasker JN, Alhadeff JM. The Perinatal Grief Scale:development and initial validation[J]. Am J Orthopsychiatry, 1988,58(3):435-449. |
[22] |
Hutti MH, Armstrong DS, Myers J. Evaluation of the perinatal grief intensity scale in the subsequent pregnancy after perinatal loss[J]. J Obstet Gynecol Neonatal Nurs, 2013,42(6):697-706.
DOI URL PMID |
[23] | 刘颖, 赵敏慧. 对围产期丧失胎儿或新生儿家庭进行悲伤支持的研究进展[J]. 中华护理杂志, 2019,54(1):125-130. |
[24] |
LeDuff LD, Bradshaw WT, Blake SM. Transitional objects to faciliate grieving following perinatal loss[J]. Adv Neonatal Care, 2017,17(5):347-353.
URL PMID |
[25] |
Fonseca A, Nazaré B, Canavarro MC. Clinical determinants of parents’ emotional reactions to the disclosure of a diagnosis of congenital anomaly[J]. J Obstet Gynecol Neonatal Nurs, 2013,42(2):178-190.
DOI URL PMID |
[26] | Einaudi MA, Le Coz P, Malzac P, et al. Parental experience following perinatal death:exploring the issues to make progress[J]. Eur J Obstet Gynecol Reprod Biol, 2010,151(2):143-148. |
[27] | Heazell AEP, Siassakos D, Blencowe H, et al. Stillbirths:econo-mic and psychosocial consequences[J]. Lancet, 2016,387(10018):604-616. |
[28] | Lalor J, Begley CM, Galavan E. Recasting Hope:a process of adaptation following fetal anomaly diagnosis[J]. Soc Sci Med, 2009,68(3):462-472. |
[29] | Lathrop A, VandeVusse L. Continuity and change in mothers’ narratives of perinatal hospice[J]. J Perinat Neonatal Nurs, 2011,25(1):21-31. |
[30] | Marty CM, Carter BS. Ethics and palliative care in the perinatal world[J]. Semin Fetal Neonatal Med, 2018,23(1):35-38. |
[31] | Steven JR, Steven RL, Douglas SD, et al. Clinical report:maternal-fetal intervention and fetal care centers[J]. Pediatrics, 2011,128(2), e473-e478. |
[1] | ZHAO Xinmiao, SHAN Siyu, BAI Ruxue, CHENG Yifan, XIA Chunling. Qualitative study on health education and psychosocial support demand of twins pregnancy women [J]. Chinese Journal of Nursing, 2024, 59(8): 960-966. |
[2] | LI Weitao, WANG Jinyan, WU Huiling, ZHANG Fei, YANG Changjie, WU Liping. A qualitative study on the post-traumatic growth course for women with termination of pregnancy due to fetal abnormalities [J]. Chinese Journal of Nursing, 2024, 59(8): 967-973. |
[3] | TANG Yalin, WEI Lili, LI Qianqian, KUANG Guofang, YUE Chongyu, ZHANG Xinwei, ZHANG Yan, GU Ruting, LÜ Bohan, ZHAO Yafei. Analysis on the current situation and influencing factors of social network among pregnant women with gestational diabetes mellitus [J]. Chinese Journal of Nursing, 2024, 59(6): 685-690. |
[4] | WANG Qiaosong, ZHANG Kun, ZHENG Qirong, LIN Jingjing, ZHANG Xueling, FANG Yan, YANG Jingping, LIN Rong, LIN Rongjin. Evidence summary for maternal postpartum management of gestational diabetes mellitus [J]. Chinese Journal of Nursing, 2024, 59(6): 691-698. |
[5] | GUO Junchen, XU Xianghua, LIU Chaoyi, WANG Ying, LIU Junqingzhao, CHEN Yongyi, ZHU Lihui, XIAO Yazhou, LIU Yang. Construction and preliminary application of a telemedicine-based home care program for hospice patients [J]. Chinese Journal of Nursing, 2024, 59(5): 517-525. |
[6] | PENG Mengyun, HARADA Nahoko, SAITO Shinya. Introduction of palliative care for patients with cardiovascular diseases in Japan and its implication for China [J]. Chinese Journal of Nursing, 2024, 59(5): 533-539. |
[7] | CHENG Lin, LI Yuanyuan, PEI Bei, LI Huan, LIU Jinlong, XU Yulu, FENG Xinyue, LOU Yan. The volunteering experience of palliative care volunteers:a meta-synthesis of qualitative studies [J]. Chinese Journal of Nursing, 2024, 59(5): 547-555. |
[8] | ZHANG Miaomiao, ZHANG Li, YAN Rong, DING Min, MENG Xiangmin, XU Ping. Application progress of online grief counseling in palliative care [J]. Chinese Journal of Nursing, 2024, 59(5): 556-561. |
[9] | YU Xiaojing, XU Xuefen, XU Lili, TIAN Yanping, FAN Danfeng, FENG Suwen. Construction and application of prenatal health education curriculum based on virtual simulation technology [J]. Chinese Journal of Nursing, 2024, 59(2): 184-190. |
[10] | GUO Junchen, LIU Chaoyi, XU Xianghua, DAI Yunyun, YANG Suo, CHEN Yongyi, XIAO Yazhou. Construction and application of a telemedicine-based home care system of palliative care for end-of-life cancer patients [J]. Chinese Journal of Nursing, 2024, 59(16): 1925-1933. |
[11] | ZHOU Yun, YANG Li, LING Jing, WEI Xiaoming, HUANG Luyao, QIN Pengjing. Research on the application of nursing intervention of Internet + whole course breastfeeding support in cesarean section women [J]. Chinese Journal of Nursing, 2024, 59(16): 1933-1941. |
[12] | XU Yanan, YUAN Ling, WU Ligui, LIU Yahui, KANG Yubiao. The experience of medical staff participating in remote home palliative care:a qualitative Meta-synthesis [J]. Chinese Journal of Nursing, 2024, 59(15): 1900-1907. |
[13] | WU Xuefei, ZOU Shengqiang, GE Chunhua, MAN Changfeng, LI Jiahui, XIE Jing, LIU Xiyang. Research progress of screening tools for palliative care needs in emergency patients before referral at home and abroad [J]. Chinese Journal of Nursing, 2024, 59(14): 1786-1793. |
[14] | CHU Yunyi, JIANG Zifang, HE Zefan, ZHANG Jiaxin, CHEN Yanfei. Palliative care quality assessment tools based on the cancer patient experience:a systematic review [J]. Chinese Journal of Nursing, 2024, 59(13): 1657-1665. |
[15] | SUN Tong, WEI Lili, KUANG Guofang, ZHANG Yan, GU Ruting, WANG Jingyuan, WANG Zihan, YU Shui. Establishment and application of an evaluation index system for health literacy among gestational diabetes mellitus patients [J]. Chinese Journal of Nursing, 2023, 58(5): 565-571. |
Viewed | ||||||
Full text |
|
|||||
Abstract |
|
|||||