Abstract:

To summarize a young woman with delayed onset of laryngeal symptoms caused by synovitis，acne，pustulosis，hyperostosis，and osteitis（SAPHO） syndrome，which progressed to acute airway obstruction. Key nursing points：assessing the severity of airway risk，and developing an individualized difficult airway management plan；early warning identification of asphyxia risk and initiation of a multidisciplinary difficult airway management pathway；providing discharge education and continuity of care for patients discharged with a tracheostomy tube in place. With multidisciplinary treatment and meticulous nursing care，a tracheostomy was performed on day 10. The patient was transferred back to the general ward on day 11 and discharged on day 32 with the tube in place. At 6-month follow-up，the patient remained at home with the tube in situ，and overall symptoms were stable.

Key words: SAPHO Syndrome, Laryngeal Involvement, Vocal Cord Edema, Acute Airway Obstruction, Critical Care Nursing

摘要：

总结1例年轻女性SAPHO（synovitis, acne，pustulosis, hyperostosis，osteitis）综合征迟发性喉受累进行性加重致急性上气道梗阻的急救与护理。护理要点：评估气道风险程度，制订个性化困难气道管理策略；预警和识别窒息风险，启动多学科联动困难气道处置路径；落实气管切开携管患者的出院指导与延续护理。经过多学科的救治和精细化护理，患者第10天行气管切开，第11天转回普通病房，第32天携管出院。随访6个月，患者居家带管状态，症状总体稳定。

关键词: SAPHO综合征, 喉部病变, 声带水肿, 急性气道梗阻, 危重症护理