A systematic review of quality assessment tools for pediatric palliative care based on COSMlN guidelines

doi:10.3761/j.issn.0254-1769.2025.05.015

Abstract

Abstract:

Objective To evaluate the methodological quality and measurement attribute quality of the evaluation tool for pediatric palliative care quality assessment tools，and to provide references for medical staff to select the best assessment tools. Methods The PubMed，Embase，Cochrane Library，Web of Science，CINAHL，Scopus，China National Knowledge Infrastructure（CNKI），Wanfang Database，VIP Database，Chinese Biomedical Literature Database，GIN，NGC，NICE，NRAO，medlive，WHO，AAHPM，WHPCA，APHN were searched from inception to March 28，2024. Data were screened and extracted independently by 2 researchers. The consensus-based standards for the selection of health measurement instruments（COSMIN） checklist and quality criteria were employed to evaluate the methodological quality and psychometric properties of the included pediatric palliative care quality assessment tools. Finally，recommendations were formulated based on these evaluations. Results A total of 13 articles were included，involving 9 pediatric palliative care quality assessment tools. Among them，the PICU-QODD，PaPEQu and QCPCI demonstrated good content validity and internal consistency，and are recommended as Grade A. The remaining assessment tools are recommended as Grade B or C. Conclusion The PICU-QODD，PaPEQu and QCPCI are recommended for use，but further validation of their psychometric properties is still needed.

Key words: Child, Palliative Care, Quality, Assessment Tools, Systematic Review, Evidence-Based Nursing, Pediatric Nursing

摘要：

目的系统评价儿童安宁疗护质量评估工具的方法学质量和测量学属性，为医护人员合理选择评估工具提供依据。方法系统检索PubMed、Embase、Cochrane Library、Web of Science、CINAHL、Scopus、中国知网、万方数据库、维普数据库、中国生物医学文献数据库、国际指南网、美国国立实践技术指南库、英国国家卫生与临床优化研究所网站、加拿大安大略省注册护士协会网站、医脉通、世界卫生组织网站、美国临终关怀医学会网站、全球安宁疗护联盟网站、亚太地区安宁疗护网站，收集儿童安宁疗护质量评估工具，检索时限为建库至2024年3月28日。由2名研究者独立进行文献筛选和资料提取，使用“基于共识的健康测量工具选择标准”偏倚风险评估清单及质量标准，评价纳入文献的方法学质量及评估工具的测量学属性，并形成最终的推荐意见。结果共纳入13篇文献，涉及9个儿童安宁疗护质量评估工具。其中，儿科重症监护病房死亡质量量表、父母对儿童临终关怀的体验问卷和儿童安宁疗护质量量表的内容效度和内部一致性较好，为A级推荐，其余评估工具为B级或C级推荐。结论推荐使用儿科重症监护病房死亡质量量表、父母对儿童临终关怀的体验问卷和儿童安宁疗护质量量表，但仍需进一步验证其测量学属性。

关键词: 儿童, 安宁疗护, 质量, 评估工具, 系统评价, 循证护理学, 儿科护理学

JIANG Sishan, CHENG Qinqin, LUO Tingwei, ZHANG Na, GUO Junchen, LI Dongya, LI Dandan, ZHU Lihui. A systematic review of quality assessment tools for pediatric palliative care based on COSMlN guidelines[J]. Chinese Journal of Nursing, 2025, 60(5): 611-618.

蒋思珊, 成琴琴, 罗听薇, 张娜, 郭俊晨, 李东雅, 李丹丹, 朱丽辉. 儿童安宁疗护质量评估工具的系统评价[J]. 中华护理杂志, 2025, 60(5): 611-618.

Figures/Tables 4

Figure 1 Flow chart of literature selection

Table 1 General characteristics of the included literature（n=13）

Table 2 Psychometric properties and methodological quality evaluation of the included scales（n=13）

Table 3 Synthesis of the psychometric properties of the included scales and the formation of recommendations（n=9）

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