Abstract:

Objective The purpose of writing the “expert consensus on humanistic care for patients in hospice care”（hereinafter referred to as the “consensus”） aims to standardize the practice of humanistic care in the field of hospice care，ensuring that humanistic care is integrated throughout the entire service process for hospice care patients and their families. Methods A systematic search was conducted in domestic and foreign databases for literature related to hospice care and humanistic care，including guidelines，expert consensuses，systematic reviews or Meta-analyses，and evidence summaries. High-quality evidence was evaluated，extracted，and summarized to form the initial draft of the “consensus”. From June to October 2024，20 experts from the fields of hospice care，nursing humanities，and evidence-based nursing were invited to participate in 1 round of expert consultation. Among them，13 experts were selected for 2 rounds of expert demonstration meetings. After collating and analyzing the experts’ opinions，the initial draft was revised and refined，ultimately resulting in the final version of the “consensus”. Results The effective response rate of the consultation questionnaire was 100%，with expert authority coefficient of 0.880，judgment coefficient of 0.935，and familiarity level of 0.825. The Kendall harmony coefficient of the expert consultation was 0.134（P<0.05）. The “consensus” consisted of 13 aspects，including the targets and objectives，principles，institutional guarantees，environmental requirements，etc. Conclusion This “consensus” possesses strong scientific rigor and practicality，which can provide guidance and references for the practice of humanistic care in the field of hospice care，promoting the standardization and humanization of hospice care services.

Key words: Hospice Care, Humanistic Care, Expert Consensus, Evidence-Based Nursing

摘要：

目的 编写“安宁疗护患者人文关怀专家共识”（以下简称“共识”），旨在规范安宁疗护领域的人文关怀实践，将人文关怀贯穿安宁疗护患者及其家属的服务全流程。 方法 系统检索国内外数据库中与安宁疗护及人文关怀相关的指南、专家共识、系统评价或Meta分析、证据总结等文献，评价、提取及汇总高质量证据，形成“共识”初稿。2024年6—10月，邀请来自安宁疗护、护理人文及循证护理等领域的20名专家开展1轮专家咨询，选取其中13名专家开展2轮专家论证，整理分析专家意见后修改、完善初稿内容，并形成“共识”终稿。 结果 咨询问卷的有效回收率为100%，专家的权威系数为0.880，判断依据系数为0.935，熟悉程度系数为0.825。专家意见的肯德尔和谐系数为0.134（P<0.05）。“共识”包括对象及目标、原则、制度保障、环境要求等13个方面的内容。 结论 该“共识”具有较强的科学性及适用性，可为安宁疗护领域的人文关怀实践提供指导和参考，促进安宁疗护服务的规范化和人性化发展。

关键词: 安宁疗护, 人文关怀, 专家共识, 循证护理学