Chinese Journal of Nursing ›› 2023, Vol. 58 ›› Issue (15): 1815-1820.DOI: 10.3761/j.issn.0254-1769.2023.15.004

• Special Planning—Pulmonary Rehabilitation Nursing Care • Previous Articles     Next Articles

Experiences and coping styles of dyspnea-related fear among patients with chronic obstructive pulmonary disease:a qualitative research

MIAO Xiaolang(), NIU Mei’e(), HAN Yanxia, ZHANG Beilei, ZHAO Qian, LU Xiangmin   

  • Received:2023-02-22 Online:2023-08-10 Published:2023-08-04
  • Contact: NIU Mei’e

慢性阻塞性肺疾病患者呼吸困难恐惧体验及应对的质性研究

缪小浪(), 钮美娥(), 韩燕霞, 张蓓蕾, 赵茜, 卢向敏   

  1. 215006 苏州市 苏州大学附属第一医院呼吸与危重症医学科(缪小浪,韩燕霞,张蓓蕾,赵茜,卢向敏),护理部(钮美娥)
  • 通讯作者: 钮美娥
  • 作者简介:缪小浪:女,本科(硕士在读),副主任护师,E-mail:506703898@qq.com
  • 基金资助:
    国家自然科学基金青年基金(72204182);苏州市科技发展计划项目(SKY2022122);博习培育计划自然科学基金项目(BXQN202116)

Abstract:

Objective This qualitative research aimed to explore the experiences of dyspnea-related fear among patients with COPD. Methods We performed in-depth interviews guided of behavioral-event-interview and analyzed the experiences of 18 inpatients who underwent dyspnea-related fear that came from a tertiary hospital in Suzhou from June to September 2022. Results 3 themes and 7 sub-themes were analyzed and summarized,including experiences of dyspnea-related fear(dyspnea-related fear affected daily routines,and symptoms perception exacerbated experiences of dyspnea-related fear),coping styles of dyspnea-related fear(positive coping and negative coping),support demands to alleviate dyspnea-related fear(eager to receive professional support,looking forward to family support,urgent demands for social support). Conclusion Nursing staff should pay attention to patients’ experiences of dyspnea-related fear,weaken their fear experiences by accepting themselves and reducing their perception of dyspnea,promote positive coping by improving cognition and enhancing self-efficiency,meet the diverse demands to alleviate dyspnea-related fear by strengthening hospital-community-family support,ultimately improve their qualities of life and outcomes.

Key words: Pulmonary Disease, Chronic Obstructive, Dyspnea-Related Fear, Avoidance Behavior, Support Demands, Qualitative Research, Nursing Care

摘要:

目的 了解COPD患者呼吸困难恐惧的心理体验,并分析其应对行为。 方法 采用关键事件访谈法,对2022年6月—9月苏州市某三级甲等医院呼吸与危重症医学科收治的18例COPD患者进行深入访谈,通过内容分析法对访谈资料进行分析、归纳与提炼。 结果 归纳出3个主题,7个亚主题,包括呼吸困难恐惧的体验(呼吸困难恐惧影响日常生活、症状感知加重呼吸困难恐惧体验)、呼吸困难恐惧的应对(积极应对、消极回避)、缓解呼吸困难恐惧的支持需求(渴望得到专业支持、期盼获得家庭支持、亟需社会支持)。 结论 护理人员应当重视COPD患者呼吸困难恐惧的心理体验,通过接纳自我、降低症状感知以弱化其恐惧体验,改善认知、提高自我效能以促进其积极应对,加强专业人员、家庭、社会的多方支持以满足其呼吸困难恐惧缓解的多样化需求,改善患者的生活质量和不良结局。

关键词: 肺疾病, 慢性阻塞性, 呼吸困难恐惧, 回避行为, 支持需求, 质性研究, 护理