Abstract:

Objective To revise the Chinese version of the Problems and Needs in Palliative Care Questionnaire and to test its reliability and validity. Methods The questionnaire items were supplemented based on the previous interview results of 15 patients with advanced cancer,and the questionnaire was revised by 7 experts. A total of 584 outpatients were recruited by convenience sampling from 6 tertiary A hospitals and 1 secondary A hospital in Guangdong Province between May 2020 and November 2021. Results The revised questionnaire contained 2 parts with 36 items. Exploratory factor analysis extracted 7 common factors. The cumulative variance contribution rates of the “problem aspect” was 61.54%. The Cronbach’s α coefficient of the “problem aspect” was 0.884;the Cronbach’s α coefficient for each domain ranged from 0.668 to 0.893;the test-retest reliability was 0.856;the SCVI value of the questionnaire was 0.908;the average SCVI ranged from 0.832 to 1.000. The cumulative variance contribution rate of the “Need for care aspect” was 60.25%. The Cronbach’s α coefficient of the “Problem aspect” was 0.873;the Cronbach’s α coefficient for each domain ranged from 0.673 to 0.894;the test-retest reliability was 0.879;the SCVI value of the questionnaire was 0.916;the average SCVI ranged from 0.837 to 1.000. Confirmatory factor analysis showed that the 7 common factors had good fitting degree. Conclusion The revised Chinese version of the Problems and Needs in Palliative Care Questionnaire has good reliability and validity. It can be used as a valuable tool to evaluate the palliative home care needs of cancer patients.

Key words: Palliative Care, Carcinoma, Home-Based, Health Services Needs and Demands, Reliability, Validity, Nursing Care

摘要：

目的 修订中文版安宁疗护问题与需求问卷,并检验其在居家癌症患者中的信效度。 方法 根据15例晚期癌症患者对居家安宁疗护需求的访谈结果,结合7名安宁疗护专家的意见对问卷条目进行修订,补充居家安宁疗护相关条目。采用便利抽样法,选取2020年5月—2021年11月在广东省6所三级甲等医院和1所二级甲等医院门诊就诊的584例癌症患者进行问卷调查,检验问卷的信效度。 结果 修订后问卷包括2个部分、共36个条目。探索性因子分析均提取7个公因子,问题部分累计方差贡献率为61.54%,Cronbach’s α系数为0.884,各维度的Cronbach’s α系数为0.668~0.893,重测信度为0.856,内容效度指数为0.908,各条目的内容效度指数为0.832~1.000;需求部分累计方差贡献率为60.25%,Cronbach’s α系数为0.873,各维度的Cronbach’s α系数为0.673~0.894,重测信度为0.879,内容效度指数为0.916,各条目的内容效度指数为0.837~1.000。验证性因子分析结果显示,模型拟合度较好。 结论 修订后的中文版安宁疗护问题与需求问卷具有良好的信效度,可作为癌症患者居家安宁疗护需求的评估工具。

关键词: 安宁疗护, 癌, 居家, 卫生服务需求, 信度, 效度, 护理