中华护理杂志 ›› 2025, Vol. 60 ›› Issue (9): 1050-1055.DOI: 10.3761/j.issn.0254-1769.2025.09.004
收稿日期:2024-07-10
出版日期:2025-05-10
发布日期:2025-05-08
通讯作者:
胡晓静,E-mail:humama2015@126.com作者简介:黄盼盼:女,硕士,主管护师,E-mail:panpanhuang0926@aliyun.com
基金资助:
HUANG Panpan(
), LI Liling, HU Xiaojing(
)
Received:2024-07-10
Online:2025-05-10
Published:2025-05-08
摘要:
由于基因异常、缺氧损伤或手术创伤等原因,部分先天性心脏病患儿存在神经发育障碍,主要表现为全身肌张力低下、运动发育迟缓。婴儿的神经可塑性较强,实施早期运动康复,有助于改善其运动功能及神经发育。该文对先天性心脏病婴儿早期运动康复的评估、实施、效果评价等内容进行综述,并提出促进其实施的护理对策,以期为临床护理实践提供参考。
黄盼盼, 李丽玲, 胡晓静. 先天性心脏病婴儿早期运动康复的研究进展[J]. 中华护理杂志, 2025, 60(9): 1050-1055.
HUANG Panpan, LI Liling, HU Xiaojing. Research progress of early exercise rehabilitation in infants with congenital heart disease[J]. Chinese Journal of Nursing, 2025, 60(9): 1050-1055.
| [1] |
Krasuski RA, Bashore TM. Congenital heart disease epidemiology in the United States:blindly feeling for the charging elephant[J]. Circulation, 2016, 134(2):110-113.
DOI PMID |
| [2] |
Marelli AJ, Ionescu-Ittu R, Mackie AS, et al. Lifetime prevalence of congenital heart disease in the general population from 2000 to 2010[J]. Circulation, 2014, 130(9):749-756.
DOI PMID |
| [3] |
Latal B. Neurodevelopmental outcomes of the child with congenital heart disease[J]. Clin Perinatol, 2016, 43(1):173-185.
DOI PMID |
| [4] |
Kaeslin R, Latal B, Mitteregger E. A systematic review of early motor interventions for infants with congenital heart disease and open-heart surgery[J]. Syst Rev, 2023, 12(1):149.
DOI PMID |
| [5] | Marino BS, Lipkin PH, Newburger JW, et al. Neurodevelopmental outcomes in children with congenital heart disease:evaluation and management:a scientific statement from the American Heart Association[J]. Circulation, 2012, 126(9):1143-1172. |
| [6] | 金泓丞, 诸纪华, 唐晓敏, 等. 运动康复在先天性心脏病术后患儿中的应用进展[J]. 中华急危重症护理杂志, 2024, 5(3):230-234. |
| Jin HC, Zhu JH, Tang XM, et al. Progress in the application of exercise rehabilitation in children with congenital heart disease after surgery[J]. Chin J Emerg Crit Care Nurs, 2024, 5(3):230-234. | |
| [7] | Morgan C, Fetters L, Adde L, et al. Early intervention for children aged 0 to 2 years with or at high risk of cerebral palsy:international clinical practice guideline based on systematic reviews[J]. JAMA Pediatr, 2021, 175(8):846-858. |
| [8] |
Takken T, Giardini A, Reybrouck T, et al. Recommendations for physical activity,recreation sport,and exercise training in pae-diatric patients with congenital heart disease:a report from the Exercise,Basic & Translational Research Section of the Euro-pean Association of Cardiovascular Prevention and Rehabilitation,the European Congenital Heart and Lung Exercise Group,and the Association for European Paediatric Cardiology[J]. Eur J Prev Cardiol, 2012, 19(5):1034-1065.
PMID |
| [9] | 中华护理学会老年护理专业委员会, 中国康复医学会心血管疾病预防与康复专业委员会, 中国老年保健协会脏器康复专业委员会. 心脏康复护理专家共识[J]. 中华护理杂志, 2022, 57(16):1937-1941. |
| Geriatric Nursing Committee of Chinese Nursing Association, Committee of Cardiac Rehabilitation and Prevention of Chinese Association of Rehabi-litation Medicine, Organ Rehabilitation Committee of Chinese Elder Health Care Association. Chinese expert consensus on cardiac rehabilitation nursing care[J]. Chin J Nurs, 2022, 57(16):1937-1941. | |
| [10] | 王诗瑜. 先天性心脏病患儿术后早期分级康复护理模式的构建及应用研究[D]. 北京: 北京协和医学院, 2023. |
| Wang SY. Construction and application of early postoperative graded rehabilitation nursing model for children with congenital heart disease[D]. Beijing: Peking Union Medical College, 2023. | |
| [11] | Jara AM, Jacobs JP, Reilly M. Physical therapy management of a critically-ill infant after cardiac surgery:a case report and literature review[J]. J Acute Care Phys Ther, 2018, 9(4):163-170. |
| [12] |
Long SH, Eldridge BJ, Harris SR, et al. Challenges in trying to implement an early intervention program for infants with congenital heart disease[J]. Pediatr Phys Ther, 2015, 27(1):38-43.
DOI PMID |
| [13] |
Haseba S, Sakakima H, Nakao S, et al. Early postoperative physical therapy for improving short-term gross motor outcome in infants with cyanotic and acyanotic congenital heart disease[J]. Disabil Rehabil, 2018, 40(14):1694-1701.
DOI PMID |
| [14] | Lambert LM, Pemberton VL, Trachtenberg FL, et al. Design and methods for the training in exercise activities and motion for growth(TEAM 4 growth) trial:a randomized controlled trial[J]. Int J Cardiol, 2022,359:28-34. |
| [15] | Du Q, Zhou X, Wang XQ, et al. Passive movement and active exercise for very young infants with congenital heart disease:a study protocol for a randomized controlled trial[J]. Trials, 2015,16:288. |
| [16] |
陈媛, 侯桂华, 韩琼, 等. 基于泰勒模式的心脏康复护士培训体系的构建[J]. 中华护理杂志, 2022, 57(20):2514-2521.
DOI |
|
Chen Y, Hou GH, Han Q, et al. Construction of a training system for cardiac rehabilitation nurses based on Taylor model[J]. Chin J Nurs, 2022, 57(20):2514-2521.
DOI |
|
| [17] | Du Q, Li X, Wang ZX, et al. Effects of 6-month customized home-based exercise on motor development,bone strength,and parental stress in children with simple congenital heart disease:a single-blinded randomized clinical trial[J]. BMC Med, 2024, 22(1):27. |
| [18] | 罗伯特·J,. 帕利萨诺, 马戈·N. 奥林,约瑟夫·施赖伯. 坎贝尔儿童物理治疗[M]. 魏国荣,译. 北京: 北京科学技术出版社, 2022. |
| Robert JP, Margo NO, Joseph S. Campbell’s physical therapy for children[M]. Wei GR,trans. Beijing: Beijing Science and Technology Press, 2022. | |
| [19] | Lisanti AJ, Uzark KC, Harrison TM, et al. Developmental care for hospitalized infants with complex congenital heart disease:a science advisory from the American Heart Association[J]. J Am Heart Assoc, 2023, 12(3):e028489. |
| [20] | Uzark K, Smith C, Yu S, et al. Evaluation of a “tummy time” intervention to improve motor skills in infants after cardiac surgery[J]. Cardiol Young, 2022, 32(8):1210-1215. |
| [21] |
Dagenais L, Materassi M, Desnous B, et al. Superior performance in prone in infants with congenital heart disease predicts an earlier onset of walking[J]. J Child Neurol, 2018, 33(14):894-900.
DOI PMID |
| [22] | Mendres-Smith AE, Borrero JC, Castillo MI, et al. Tummy time without the tears:the impact of parent positioning and play[J]. J Appl Behav Anal, 2020, 53(4):2090-2107. |
| [23] |
吴琼, 王晓彤, 黄艺文, 等. 婴儿俯卧活动指南[J]. 中国儿童保健杂志, 2024, 32(8):813-820.
DOI |
| Wu Q, Wang XT, Huang YW, et al. Infancy tummy time guideline[J]. Chin J Child Health Care, 2024, 32(8):813-820. | |
| [24] |
Mitteregger E, Dirks T, Theiler M, et al. The implementation of EMI-Heart,a family-tailored early motor intervention in infants with complex congenital heart disease,in practice:a feasibility RCT[J]. Pilot Feasibility Stud, 2024, 10(1):105.
DOI PMID |
| [25] | 福利奥, 菲威尔, 李明, 等. Peabody运动发育量表(第2版)[M]. 北京: 北京大学医学出版社, 2006. |
| Folio MR, Fewell RR, Li M, et al. Peabody Developmental Motor Scales(2nd edition)[M]. Beijing: Peking University Medical Press, 2006. | |
| [26] | Fourdain S, Simard MN, Dagenais L, et al. Gross motor development of children with congenital heart disease receiving early systematic surveillance and individualized intervention:brief report[J]. Dev Neurorehabil, 2021, 24(1):56-62. |
| [27] | Ramanan N, Lee S, Maharajh G, et al. Preventing sedentary lifestyles among young children born with congenital heart defects:a feasibility study of physical activity rehabilitation after surgical or catheterization intervention[J]. PLoS One, 2023, 18(8):e0284946. |
| [28] | Gallagher A, Dagenais L, Doussau A, et al. Significant motor improvement in an infant with congenital heart disease and a rolandic stroke:the impact of early intervention[J]. Dev Neurorehabilit, 2017, 20(3):165-168. |
| [29] | Pate RR, Hillman CH, Janz KF, et al. Physical activity and health in children younger than 6 years:a systematic review[J]. Med Sci Sports Exerc, 2019, 51(6):1282-1291. |
| [30] |
Williams TS, McDonald KP, Roberts SD, et al. From diagnoses to ongoing journey:parent experiences following congenital heart disease diagnoses[J]. J Pediatr Psychol, 2019, 44(8):924-936.
DOI PMID |
| [31] | 王姗姗, 周璇, 马飞, 等. 先天性心脏病儿童神经发育障碍的研究进展[J]. 教育生物学杂志, 2021, 9(4):328-332. |
| Wang SS, Zhou X, Ma F, et al. Advances in neurodevelopmental disorders in children with congenital heart disease[J]. J Bio Educ, 2021, 9(4):328-332. | |
| [32] | Soto CB, Olude O, Hoffmann RG, et al. Implementation of a routine developmental follow-up program for children with congenital heart disease:early results[J]. Congenit Heart Dis, 2011, 6(5):451-460. |
| [33] |
金建芬, 陆骏, 俞梦盈, 等. 虚拟现实技术在心脏康复患者中的应用进展[J]. 中华护理杂志, 2021, 56(2):206-211.
DOI |
| Jin JF, Lu J, Yu MY, et al. Application progress of virtual reality technology in patients’ cardiac rehabilitation[J]. Chin J Nurs, 2021, 56(2):206-211. | |
| [34] | Brosig C, Butcher J, Butler S, et al. Monitoring developmental risk and promoting success for children with congenital heart disease:recommendations for cardiac neurodevelopmental follow-up programs[J]. Clin Pract Pediatr Psychol, 2014, 2(2):153-165. |
| [35] | 张浩, 许官学, 王漫, 等. 数字健康技术在急性心肌梗死患者居家心脏康复中的研究进展[J]. 中华护理杂志, 2025, 60(3):373-378. |
| Zhang H, Xu GX, Wang M, et al. Advances in digital health technology in home-based cardiac rehabilitation for patients with acute myocardial infarction[J]. Chin J Nurs, 2025, 60(3):373-378. |
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