中华护理杂志 ›› 2022, Vol. 57 ›› Issue (2): 251-256.DOI: 10.3761/j.issn.0254-1769.2022.02.021
• 综述 • 上一篇
孙素亚(
), 陈亚梅(
), 林梦月, 陈伟仙, 薄瑾, 刘晓红, 黄燕
收稿日期:2021-06-03
出版日期:2022-01-20
发布日期:2022-01-20
*通讯作者:
陈亚梅,E-mail: yezi807@163.com作者简介:孙素亚:女,本科(硕士在读),主管护师,E-mail: sun_suya90@126.com
基金资助:
SUN Suya(
), CHEN Yamei(
), LIN Mengyue, CHEN Weixian, BO Jin, LIU Xiaohong, HUANG Yan
Received:2021-06-03
Online:2022-01-20
Published:2022-01-20
摘要:
炎症性肠病患儿成长过渡期是影响其远期生活质量的重要阶段,然而大部分炎症性肠病患儿过渡期准备度较低,严重影响患儿的预后及生活质量。该文对炎症性肠病患儿过渡期准备的现状、影响因素、干预策略等方面的研究进行综述,提出目前研究、实践中的不足及建议,旨在为今后开展相关研究,提高炎症性肠病患儿过渡期准备度提供参考。
孙素亚, 陈亚梅, 林梦月, 陈伟仙, 薄瑾, 刘晓红, 黄燕. 炎症性肠病患儿成长过渡期准备的研究进展[J]. 中华护理杂志, 2022, 57(2): 251-256.
SUN Suya, CHEN Yamei, LIN Mengyue, CHEN Weixian, BO Jin, LIU Xiaohong, HUANG Yan. Research progress on transition readiness of children with inflammatory bowel disease[J]. Chinese Journal of Nursing, 2022, 57(2): 251-256.
| [1] | 中华医学会儿科学分会消化学组, 中华医学会儿科学分会临床营养学组. 儿童炎症性肠病诊断和治疗专家共识[J]. 中华儿科杂志, 2019, 57(7):501-507. |
| Gastroenterology Group,Pediatrics Branch of Chinese Medical Association,Clinical Nutrition Group,Pediatrics Branch of Chinese Medical Association. Expert consensus on the diagnosis and treatment of pediatric inflammatory bowel disease[J]. Chin J Pediatr, 2019, 57(7):501-507. | |
| [2] | Ng SC, Tang W, Ching JY, et al. Incidence and phenotype of inflammatory bowel disease based on results from the Asia-Pacific Crohn’s and colitis epidemiology study[J]. Gastroentero-logy, 2013, 145(1):158-165. |
| [3] |
Schiavone C, Romano M. Diagnosis and management of Crohn’s disease[J]. J Ultrasound, 2015, 18(1):1-2.
DOI PMID |
| [4] |
Wang XQ, Zhang Y, Xu CD, et al. Inflammatory bowel disease in Chinese children:a multicenter analysis over a decade from Shanghai[J]. Inflamm Bowel Dis, 2013, 19(2):423-428.
DOI URL |
| [5] |
Schwartz LA, Hamilton JL, Brumley LD, et al. Development and content validation of the transition readiness inventory item pool for adolescent and young adult survivors of childhood cancer[J]. J Pediatr Psychol, 2017, 42(9):983-994.
DOI PMID |
| [6] |
McKenzie RB, Sanders L, Bhattacharya J, et al. Health care sys-tem factors associated with transition preparation in youth with special health care needs[J]. Popul Health Manag, 2019, 22(1):63-73.
DOI URL |
| [7] |
Gumidyala AP, Greenley RN, Plevinsky JM, et al. Moving on:transition readiness in adolescents and young adults with IBD[J]. Inflamm Bowel Dis, 2018, 24(3):482-489.
DOI PMID |
| [8] |
Gumidyala AP, Plevinsky JM, Poulopoulos N, et al. What teens do not know can hurt them[J]. Inflamm Bowel Dis, 2017, 23(1):89-96.
DOI PMID |
| [9] |
Gray WN, Reed-Knight B, Morgan PJ, et al. Multi-site comparison of patient,parent,and pediatric provider perspectives on transition to adult care in IBD[J]. J Pediatr Nurs, 2018, 39:49-54.
DOI URL |
| [10] |
Sebastian S, Jenkins H, McCartney S, et al. The requirements and barriers to successful transition of adolescents with inflammatory bowel disease:differing perceptions from a survey of adult and paediatric gastroenterologists[J]. J Crohns Colitis, 2012, 6(8):830-844.
DOI PMID |
| [11] |
van Rheenen PF, Aloi M, Biron IA, et al. European Crohn’s and colitis organisation topical review on transitional care in inflammatory bowel disease[J]. J Crohns Colitis, 2017, 11(9):1032-1038.
DOI URL |
| [12] | 中华医学会消化病学分会炎症性肠病学组. 炎症性肠病诊断与治疗的共识意见(2018年·北京)[J]. 中华炎性肠病杂志, 2018, 2(3):173. |
| Inflammatory Bowel Disease Group,Chinese Society of Gastroenterology,Chinese Medical Association. Chinese consensus on diagnosis and treatment of inflammatory bowel disease(Beijing,2018)[J]. Chin J Inflamm Bowel Dis, 2018, 2(3):173. | |
| [13] | 许玲芬, 李静, 郭静, 等. 53例初诊儿童炎症性肠病临床分析[J]. 临床军医杂志, 2016, 44(4):393-397. |
| Xu LF, Li J, Guo J, et al. Clinical analysis of 53 children with inflammatory bowel disease[J]. Clin J Med Off, 2016, 44(4):393-397. | |
| [14] |
Greenley RN, Hommel KA, Nebel J, et al. A meta-analytic review of the psychosocial adjustment of youth with inflammatory bowel disease[J]. J Pediatr Psychol, 2010, 35(8):857-869.
DOI PMID |
| [15] |
Weitzman ER, Ziemnik RE, Huang Q, et al. Alcohol and marijuana use and treatment nonadherence among medically vulnerable youth[J]. Pediatrics, 2015, 136(3):450-457.
PMID |
| [16] |
Izaguirre MR, Keefer L. Development of a Self-efficacy Scale for Adolescents and Young Adults with Inflammatory Bowel Disease[J]. J Pediatr Gastroenterol Nutr, 2014, 59(1):29-32.
DOI URL |
| [17] |
Aburn G, Gott M, Hoare K. What is resilience? An integrative review of the empirical literature[J]. J Adv Nurs, 2016, 72(5):980-1000.
DOI URL |
| [18] |
Carlsen K, Haddad N, Gordon J, et al. Self-efficacy and resi-lience are useful predictors of transition readiness scores in adolescents with inflammatory bowel diseases[J]. Inflamm Bowel Dis, 2017, 23(3):341-346.
DOI URL |
| [19] | 吕蕊, 刘思含, 蒙娜, 等. 基于接纳与承诺疗法的护理干预在炎症性肠病患者中的应用[J]. 中华现代护理杂志, 2020, 26(36):5086-5090. |
| Lü R, Liu SH, Meng N, et al. Application of nursing intervention based on acceptance and commitment therapy in patients with inflammatory bowel disease[J]. Chin J Mod Nurs, 2020, 26(36):5086-5090. | |
| [20] | 刘丹凤, 王玉娜, 孙永梅. 正念减压疗法对乳腺癌术后化疗患者焦虑、抑郁的影响[J]. 中华现代护理杂志, 2018, 24(33):4069-4072. |
| Liu DF, Wang YN, Sun YM. Effects of mindfulness-based stress reduction on anxiety and depression among breast cancer patients undergoing postoperative chemotherapy[J]. Chin J Mod Nurs, 2018, 24(33):4069-4072. | |
| [21] |
Paine CW, Stollon NB, Lucas MS, et al. Barriers and facilitators to successful transition from pediatric to adult inflammatory bowel disease care from the perspectives of providers[J]. Inflamm Bowel Dis, 2014, 20(11):2083-2091.
DOI URL |
| [22] |
Wood DL, Sawicki GS, Miller MD, et al. The Transition Readi-ness Assessment Questionnaire(TRAQ):its factor structure,re-liability,and validity[J]. Acad Pediatr, 2014, 14(4):415-422.
DOI URL |
| [23] |
Arvanitis M, Hart LC, DeWalt DA, et al. Transition readiness not associated with measures of health in youth with IBD[J]. Inflamm Bowel Dis, 2021, 27(1):49-57.
DOI PMID |
| [24] |
Huang JS, Tobin A, Tompane T. Clinicians poorly assess health literacy-related readiness for transition to adult care in adolescents with inflammatory bowel disease[J]. Clin Gastroenterol Hepatol, 2012, 10(6):626-632.
DOI URL |
| [25] |
Kumagai H, Kudo T, Uchida K, et al. Adult gastroenterologists’ views on transitional care:results from a survey[J]. Pediatr Int, 2019, 61(8):817-822.
DOI PMID |
| [26] |
Zeisler B, Hyams JS. Transition of management in adolescents with IBD[J]. Nat Rev Gastroenterol Hepatol, 2014, 11(2):109-115.
DOI PMID |
| [27] |
Gray WN, Resmini AR, Baker KD, et al. Concerns,barriers,and recommendations to improve transition from pediatric to adult IBD care:perspectives of patients,parents,and health professionals[J]. Inflamm Bowel Dis, 2015, 21(7):1641-1651.
DOI URL |
| [28] | 周美景, 罗丹, 林征, 等. 炎症性肠病患者自我管理行为的影响因素分析[J]. 中华护理杂志, 2021, 56(4):550-555. |
| Zhou MJ, Luo D, Lin Z, et al. Analysis of influencing factors of self-management behavior in patients with inflammatory bowel disease[J]. Chin J Nurs, 2021, 56(4):550-555. | |
| [29] | 丁妮, 陈惠萍, 马利莹, 等. 克罗恩病患儿的护理[J]. 中国实用护理杂志, 2015, 31(29):2216-2218. |
| Ding N, Chen HP, Ma LY, et al. Care for children with Crohn’s disease[J]. Chin J Pract Nurs, 2015, 31(29):2216-2218. | |
| [30] | 罗丹, 林征, 卞秋桂, 等. 炎症性肠病患者感知病耻感现状及其对生活质量、服药依从性和心理状态的影响[J]. 中华护理杂志, 2018, 53(9):1078-1083. |
| Luo D, Lin Z, Bian QG, et al. Perceived stigma in patients with inflammatory bowel disease and its effect on psychology,medication compliance and quality of life[J]. Chin J Nurs, 2018, 53(9):1078-1083. | |
| [31] |
Shearer JL, Perry S, Lidyard N, et al. Evaluating a standardized transition of care process for pediatric inflammatory bowel disease patients[J]. Children, 2020, 7(12):271.
DOI URL |
| [32] |
Klostermann NR, McAlpine L, Wine E, et al. Assessing the tran-sition intervention needs of young adults with inflammatory bowel diseases[J]. J Pediatr Gastroenterol Nutr, 2018, 66(2):281-285.
DOI URL |
| [33] | Fishman LN, Ziniel SI, Adrichem ME, et al. Provider awareness alone does not improve transition readiness skills in adolescent patients with inflammatory bowel disease[J]. J Pediatr Gas-troenterol Nutr, 2014, 59(2):221-224. |
| [34] |
Gray WN, Holbrook E, Dykes D, et al. Improving IBD transition,self-management,and disease outcomes with an in-clinic transition coordinator[J]. J Pediatr Gastroenterol Nutr, 2019, 69(2):194-199.
DOI URL |
| [35] |
Gray WN, Wagoner ST, Schaefer MR, et al. Transition to adult IBD care:a pilot multi-site,telehealth hybrid intervention[J]. J Pediatr Psychol, 2021, 46(1):1-11.
DOI URL |
| [36] |
Cole R, Ashok D, Razack A, et al. Evaluation of outcomes in adolescent inflammatory bowel disease patients following transfer from pediatric to adult health care services:case for transition[J]. J Adolesc Health, 2015, 57(2):212-217.
DOI URL |
| [37] |
Gray WN, Maddux MH. Current transition practices in pediatric IBD:findings from a national survey of pediatric providers[J]. Inflamm Bowel Dis, 2016, 22(2):372-379.
DOI URL |
| [38] |
Schwartz LA, Tuchman LK, Hobbie WL, et al. A social-ecological model of readiness for transition to adult-oriented care for adolescents and young adults with chronic health conditions[J]. Child Care Health Dev, 2011, 37(6):883-895.
DOI URL |
| [39] | 商思懿, 徐林燕, 邹继华, 等. 青少年和青年慢性病患者过渡期准备度评估工具的研究进展[J]. 解放军护理杂志, 2020, 37(9):48-51,58. |
| Shang SY, Xu LY, Zou JH, et al. Research progress on transition readiness tools for adolescents and young adults with chronic illnesses[J]. Nurs J Chin PLA, 2020, 37(9):48-51,58. | |
| [40] | 蒋鑫鑫, 单岩, 明静祎, 等. 国外青少年慢性病患者医疗过渡准备评估工具的研究进展[J]. 护理学杂志, 2020, 35(12):110-113. |
| Jiang XX, Shan Y, Ming JY, et al. Research progress on assessment tools of transition readiness for adolescents with chronic disease outside China[J]. J Nurs Sci, 2020, 35(12):110-113. | |
| [41] | Hammerman O, Bayatra A, Turner D, et al. Initial development and validation of a Transition Readiness Scale for Adolescents with Inflammatory Bowel Disease[J]. Gastroenterol Res Pract, 2019, 15(10)1-6. |
| [42] |
McManus MA, Pollack LR, Cooley WC, et al. Current status of transition preparation among youth with special needs in the United States[J]. Pediatrics, 2013, 131(6):1090-1097.
DOI URL |
| [1] | 中华护理学会静脉输液治疗专业委员会, 北京护理学会, (执笔:李佳, 李旭英, 覃惠英, 陈利芬, 吴珍明, 胡泽吟, 罗梦娜, 范育英, 吴嘉慧, 林宇萍, 王蕾, 孙文彦, 冯毕龙, 高伟, 李亚南, 侯罗娅, 李春燕. 中心静脉通路装置拔除护理专家共识[J]. 中华护理杂志, 2026, 61(9): 1157-1162. |
| [2] | 周霞, 马艳艳, 师正坤, 于海霞, 周艳, 胡红玲, 李莜, 陈思思, 张京慧. 隧道式经股静脉PICC置入术在困难静脉通路婴幼儿中的应用研究[J]. 中华护理杂志, 2026, 61(9): 1163-1170. |
| [3] | 黄萍, 李黎, 郭骊莉, 徐莹, 叶赟, 江淑芳. 与无针输液接头相关的导管相关性血流感染风险评估工具的构建与初步应用[J]. 中华护理杂志, 2026, 61(9): 1171-1179. |
| [4] | 李佳, 张玉玲, 邢乐, 张利峰, 牛秀峰, 许莉. 早产儿经上肢置入PICC尖端继发性异位风险预测模型的建立与验证[J]. 中华护理杂志, 2026, 61(9): 1180-1186. |
| [5] | 何娟, 赵蕾蕾, 叶冠军, 余艳芬, 傅晓君, 周琴. 1例双侧无名静脉及上腔静脉人工血管置换术后患者经上肢置入PICC的护理[J]. 中华护理杂志, 2026, 61(9): 1187-1191. |
| [6] | 梁江淑渊, 曾妃, 何鹏, 谢梦珊, 江悦, 蒋宗恒, 王建茗. 静脉-静脉体外膜肺氧合患者早期活动风险等级评估系统的构建及应用研究[J]. 中华护理杂志, 2026, 61(9): 1192-1199. |
| [7] | 陈晨, 顾肖, 郭凡, 王敏, 倪兴梅, 黄琴, 程念开. 3种衰弱评估工具对急诊老年创伤患者不良结局的预测价值[J]. 中华护理杂志, 2026, 61(9): 1200-1207. |
| [8] | 郑煜琳, 刘晋宁, 张静, 郭会敏, 谷艳梅, 张莉莉. 酒精性肝病患者肝移植术后再饮酒现状及其影响因素分析[J]. 中华护理杂志, 2026, 61(9): 1208-1214. |
| [9] | 叶俊霜, 沈丽佳, 孟霞靓, 张玉姣, 蔡根莲, 邵碧云, 周亚辉, 张柳倩, 应金萍. 维持性血液透析患者对口腔衰弱认知和体验的质性研究[J]. 中华护理杂志, 2026, 61(9): 1215-1220. |
| [10] | 王芸姣, 杨玉金, 郑春艳, 彭菲津, 王淑贞, 蒋喜露, 周为民, 王薇, 张娜. 糖尿病下肢动脉硬化闭塞症患者介入术后康复护理方案的构建及应用研究[J]. 中华护理杂志, 2026, 61(9): 1221-1229. |
| [11] | 杨明霞, 安冉, 臧金凤, 李春梅. 老年慢性病共病患者及照护者老老照护能力与自我忽视的相关性分析[J]. 中华护理杂志, 2026, 61(9): 1230-1236. |
| [12] | 梁和静, 许鹊, 史云霞, 祖金美, 黄文静, 杨春旭, 郭明华, 王磊. 颈动脉内膜剥脱术围手术期护理质量评价指标的构建[J]. 中华护理杂志, 2026, 61(9): 1237-1244. |
| [13] | 韩媛媛, 石玉竹, 尚文涵, 么莉. 870所三级甲等医院老年住院患者跌倒伤害发生现状与影响因素分析[J]. 中华护理杂志, 2026, 61(9): 1245-1252. |
| [14] | 夏云芳, 王洪, 崔岱, 付真真, 朱敏. 1例弥漫性毒性甲状腺肿合并超敏反应综合征青少年患者的护理[J]. 中华护理杂志, 2026, 61(9): 1253-1256. |
| [15] | 周益飞, 王海苹, 胡益环, 应莉, 罗松娜. 1例氢氟酸中毒并发呼吸心搏骤停患者的急救护理[J]. 中华护理杂志, 2026, 61(9): 1257-1260. |
| 阅读次数 | ||||||
|
全文 |
|
|||||
|
摘要 |
|
|||||