中华护理杂志 ›› 2022, Vol. 57 ›› Issue (2): 251-256.DOI: 10.3761/j.issn.0254-1769.2022.02.021
• 综述 • 上一篇
孙素亚(
), 陈亚梅(
), 林梦月, 陈伟仙, 薄瑾, 刘晓红, 黄燕
收稿日期:2021-06-03
出版日期:2022-01-20
发布日期:2022-01-20
通讯作者:
陈亚梅,E-mail: yezi807@163.com作者简介:孙素亚:女,本科(硕士在读),主管护师,E-mail: sun_suya90@126.com
基金资助:
SUN Suya(
), CHEN Yamei(
), LIN Mengyue, CHEN Weixian, BO Jin, LIU Xiaohong, HUANG Yan
Received:2021-06-03
Online:2022-01-20
Published:2022-01-20
摘要:
炎症性肠病患儿成长过渡期是影响其远期生活质量的重要阶段,然而大部分炎症性肠病患儿过渡期准备度较低,严重影响患儿的预后及生活质量。该文对炎症性肠病患儿过渡期准备的现状、影响因素、干预策略等方面的研究进行综述,提出目前研究、实践中的不足及建议,旨在为今后开展相关研究,提高炎症性肠病患儿过渡期准备度提供参考。
孙素亚, 陈亚梅, 林梦月, 陈伟仙, 薄瑾, 刘晓红, 黄燕. 炎症性肠病患儿成长过渡期准备的研究进展[J]. 中华护理杂志, 2022, 57(2): 251-256.
SUN Suya, CHEN Yamei, LIN Mengyue, CHEN Weixian, BO Jin, LIU Xiaohong, HUANG Yan. Research progress on transition readiness of children with inflammatory bowel disease[J]. Chinese Journal of Nursing, 2022, 57(2): 251-256.
| [1] | 中华医学会儿科学分会消化学组, 中华医学会儿科学分会临床营养学组. 儿童炎症性肠病诊断和治疗专家共识[J]. 中华儿科杂志, 2019, 57(7):501-507. |
| Gastroenterology Group,Pediatrics Branch of Chinese Medical Association,Clinical Nutrition Group,Pediatrics Branch of Chinese Medical Association. Expert consensus on the diagnosis and treatment of pediatric inflammatory bowel disease[J]. Chin J Pediatr, 2019, 57(7):501-507. | |
| [2] | Ng SC, Tang W, Ching JY, et al. Incidence and phenotype of inflammatory bowel disease based on results from the Asia-Pacific Crohn’s and colitis epidemiology study[J]. Gastroentero-logy, 2013, 145(1):158-165. |
| [3] |
Schiavone C, Romano M. Diagnosis and management of Crohn’s disease[J]. J Ultrasound, 2015, 18(1):1-2.
DOI PMID |
| [4] |
Wang XQ, Zhang Y, Xu CD, et al. Inflammatory bowel disease in Chinese children:a multicenter analysis over a decade from Shanghai[J]. Inflamm Bowel Dis, 2013, 19(2):423-428.
DOI URL |
| [5] |
Schwartz LA, Hamilton JL, Brumley LD, et al. Development and content validation of the transition readiness inventory item pool for adolescent and young adult survivors of childhood cancer[J]. J Pediatr Psychol, 2017, 42(9):983-994.
DOI PMID |
| [6] |
McKenzie RB, Sanders L, Bhattacharya J, et al. Health care sys-tem factors associated with transition preparation in youth with special health care needs[J]. Popul Health Manag, 2019, 22(1):63-73.
DOI URL |
| [7] |
Gumidyala AP, Greenley RN, Plevinsky JM, et al. Moving on:transition readiness in adolescents and young adults with IBD[J]. Inflamm Bowel Dis, 2018, 24(3):482-489.
DOI PMID |
| [8] |
Gumidyala AP, Plevinsky JM, Poulopoulos N, et al. What teens do not know can hurt them[J]. Inflamm Bowel Dis, 2017, 23(1):89-96.
DOI PMID |
| [9] |
Gray WN, Reed-Knight B, Morgan PJ, et al. Multi-site comparison of patient,parent,and pediatric provider perspectives on transition to adult care in IBD[J]. J Pediatr Nurs, 2018, 39:49-54.
DOI URL |
| [10] |
Sebastian S, Jenkins H, McCartney S, et al. The requirements and barriers to successful transition of adolescents with inflammatory bowel disease:differing perceptions from a survey of adult and paediatric gastroenterologists[J]. J Crohns Colitis, 2012, 6(8):830-844.
DOI PMID |
| [11] |
van Rheenen PF, Aloi M, Biron IA, et al. European Crohn’s and colitis organisation topical review on transitional care in inflammatory bowel disease[J]. J Crohns Colitis, 2017, 11(9):1032-1038.
DOI URL |
| [12] | 中华医学会消化病学分会炎症性肠病学组. 炎症性肠病诊断与治疗的共识意见(2018年·北京)[J]. 中华炎性肠病杂志, 2018, 2(3):173. |
| Inflammatory Bowel Disease Group,Chinese Society of Gastroenterology,Chinese Medical Association. Chinese consensus on diagnosis and treatment of inflammatory bowel disease(Beijing,2018)[J]. Chin J Inflamm Bowel Dis, 2018, 2(3):173. | |
| [13] | 许玲芬, 李静, 郭静, 等. 53例初诊儿童炎症性肠病临床分析[J]. 临床军医杂志, 2016, 44(4):393-397. |
| Xu LF, Li J, Guo J, et al. Clinical analysis of 53 children with inflammatory bowel disease[J]. Clin J Med Off, 2016, 44(4):393-397. | |
| [14] |
Greenley RN, Hommel KA, Nebel J, et al. A meta-analytic review of the psychosocial adjustment of youth with inflammatory bowel disease[J]. J Pediatr Psychol, 2010, 35(8):857-869.
DOI PMID |
| [15] |
Weitzman ER, Ziemnik RE, Huang Q, et al. Alcohol and marijuana use and treatment nonadherence among medically vulnerable youth[J]. Pediatrics, 2015, 136(3):450-457.
PMID |
| [16] |
Izaguirre MR, Keefer L. Development of a Self-efficacy Scale for Adolescents and Young Adults with Inflammatory Bowel Disease[J]. J Pediatr Gastroenterol Nutr, 2014, 59(1):29-32.
DOI URL |
| [17] |
Aburn G, Gott M, Hoare K. What is resilience? An integrative review of the empirical literature[J]. J Adv Nurs, 2016, 72(5):980-1000.
DOI URL |
| [18] |
Carlsen K, Haddad N, Gordon J, et al. Self-efficacy and resi-lience are useful predictors of transition readiness scores in adolescents with inflammatory bowel diseases[J]. Inflamm Bowel Dis, 2017, 23(3):341-346.
DOI URL |
| [19] | 吕蕊, 刘思含, 蒙娜, 等. 基于接纳与承诺疗法的护理干预在炎症性肠病患者中的应用[J]. 中华现代护理杂志, 2020, 26(36):5086-5090. |
| Lü R, Liu SH, Meng N, et al. Application of nursing intervention based on acceptance and commitment therapy in patients with inflammatory bowel disease[J]. Chin J Mod Nurs, 2020, 26(36):5086-5090. | |
| [20] | 刘丹凤, 王玉娜, 孙永梅. 正念减压疗法对乳腺癌术后化疗患者焦虑、抑郁的影响[J]. 中华现代护理杂志, 2018, 24(33):4069-4072. |
| Liu DF, Wang YN, Sun YM. Effects of mindfulness-based stress reduction on anxiety and depression among breast cancer patients undergoing postoperative chemotherapy[J]. Chin J Mod Nurs, 2018, 24(33):4069-4072. | |
| [21] |
Paine CW, Stollon NB, Lucas MS, et al. Barriers and facilitators to successful transition from pediatric to adult inflammatory bowel disease care from the perspectives of providers[J]. Inflamm Bowel Dis, 2014, 20(11):2083-2091.
DOI URL |
| [22] |
Wood DL, Sawicki GS, Miller MD, et al. The Transition Readi-ness Assessment Questionnaire(TRAQ):its factor structure,re-liability,and validity[J]. Acad Pediatr, 2014, 14(4):415-422.
DOI URL |
| [23] |
Arvanitis M, Hart LC, DeWalt DA, et al. Transition readiness not associated with measures of health in youth with IBD[J]. Inflamm Bowel Dis, 2021, 27(1):49-57.
DOI PMID |
| [24] |
Huang JS, Tobin A, Tompane T. Clinicians poorly assess health literacy-related readiness for transition to adult care in adolescents with inflammatory bowel disease[J]. Clin Gastroenterol Hepatol, 2012, 10(6):626-632.
DOI URL |
| [25] |
Kumagai H, Kudo T, Uchida K, et al. Adult gastroenterologists’ views on transitional care:results from a survey[J]. Pediatr Int, 2019, 61(8):817-822.
DOI PMID |
| [26] |
Zeisler B, Hyams JS. Transition of management in adolescents with IBD[J]. Nat Rev Gastroenterol Hepatol, 2014, 11(2):109-115.
DOI PMID |
| [27] |
Gray WN, Resmini AR, Baker KD, et al. Concerns,barriers,and recommendations to improve transition from pediatric to adult IBD care:perspectives of patients,parents,and health professionals[J]. Inflamm Bowel Dis, 2015, 21(7):1641-1651.
DOI URL |
| [28] | 周美景, 罗丹, 林征, 等. 炎症性肠病患者自我管理行为的影响因素分析[J]. 中华护理杂志, 2021, 56(4):550-555. |
| Zhou MJ, Luo D, Lin Z, et al. Analysis of influencing factors of self-management behavior in patients with inflammatory bowel disease[J]. Chin J Nurs, 2021, 56(4):550-555. | |
| [29] | 丁妮, 陈惠萍, 马利莹, 等. 克罗恩病患儿的护理[J]. 中国实用护理杂志, 2015, 31(29):2216-2218. |
| Ding N, Chen HP, Ma LY, et al. Care for children with Crohn’s disease[J]. Chin J Pract Nurs, 2015, 31(29):2216-2218. | |
| [30] | 罗丹, 林征, 卞秋桂, 等. 炎症性肠病患者感知病耻感现状及其对生活质量、服药依从性和心理状态的影响[J]. 中华护理杂志, 2018, 53(9):1078-1083. |
| Luo D, Lin Z, Bian QG, et al. Perceived stigma in patients with inflammatory bowel disease and its effect on psychology,medication compliance and quality of life[J]. Chin J Nurs, 2018, 53(9):1078-1083. | |
| [31] |
Shearer JL, Perry S, Lidyard N, et al. Evaluating a standardized transition of care process for pediatric inflammatory bowel disease patients[J]. Children, 2020, 7(12):271.
DOI URL |
| [32] |
Klostermann NR, McAlpine L, Wine E, et al. Assessing the tran-sition intervention needs of young adults with inflammatory bowel diseases[J]. J Pediatr Gastroenterol Nutr, 2018, 66(2):281-285.
DOI URL |
| [33] | Fishman LN, Ziniel SI, Adrichem ME, et al. Provider awareness alone does not improve transition readiness skills in adolescent patients with inflammatory bowel disease[J]. J Pediatr Gas-troenterol Nutr, 2014, 59(2):221-224. |
| [34] |
Gray WN, Holbrook E, Dykes D, et al. Improving IBD transition,self-management,and disease outcomes with an in-clinic transition coordinator[J]. J Pediatr Gastroenterol Nutr, 2019, 69(2):194-199.
DOI URL |
| [35] |
Gray WN, Wagoner ST, Schaefer MR, et al. Transition to adult IBD care:a pilot multi-site,telehealth hybrid intervention[J]. J Pediatr Psychol, 2021, 46(1):1-11.
DOI URL |
| [36] |
Cole R, Ashok D, Razack A, et al. Evaluation of outcomes in adolescent inflammatory bowel disease patients following transfer from pediatric to adult health care services:case for transition[J]. J Adolesc Health, 2015, 57(2):212-217.
DOI URL |
| [37] |
Gray WN, Maddux MH. Current transition practices in pediatric IBD:findings from a national survey of pediatric providers[J]. Inflamm Bowel Dis, 2016, 22(2):372-379.
DOI URL |
| [38] |
Schwartz LA, Tuchman LK, Hobbie WL, et al. A social-ecological model of readiness for transition to adult-oriented care for adolescents and young adults with chronic health conditions[J]. Child Care Health Dev, 2011, 37(6):883-895.
DOI URL |
| [39] | 商思懿, 徐林燕, 邹继华, 等. 青少年和青年慢性病患者过渡期准备度评估工具的研究进展[J]. 解放军护理杂志, 2020, 37(9):48-51,58. |
| Shang SY, Xu LY, Zou JH, et al. Research progress on transition readiness tools for adolescents and young adults with chronic illnesses[J]. Nurs J Chin PLA, 2020, 37(9):48-51,58. | |
| [40] | 蒋鑫鑫, 单岩, 明静祎, 等. 国外青少年慢性病患者医疗过渡准备评估工具的研究进展[J]. 护理学杂志, 2020, 35(12):110-113. |
| Jiang XX, Shan Y, Ming JY, et al. Research progress on assessment tools of transition readiness for adolescents with chronic disease outside China[J]. J Nurs Sci, 2020, 35(12):110-113. | |
| [41] | Hammerman O, Bayatra A, Turner D, et al. Initial development and validation of a Transition Readiness Scale for Adolescents with Inflammatory Bowel Disease[J]. Gastroenterol Res Pract, 2019, 15(10)1-6. |
| [42] |
McManus MA, Pollack LR, Cooley WC, et al. Current status of transition preparation among youth with special needs in the United States[J]. Pediatrics, 2013, 131(6):1090-1097.
DOI URL |
| [1] | 曾妃, 兰美娟, 顾培培, 梁江淑渊, 王衍蝶, 蔡凌云. 儿童双肺移植术后肺康复护理方案的构建及初步验证[J]. 中华护理杂志, 2025, 60(9): 1029-1035. |
| [2] | 阎寅至, 闻芳, 王敏, 周雪梅, 马金玲, 吴惠芳, 姚文英. 造血干细胞移植患儿运动康复分级护理方案的构建与应用研究[J]. 中华护理杂志, 2025, 60(9): 1036-1042. |
| [3] | 刘曦璇, 刘玉琳, 刘莎, 杨帆, 谢晓虹, 王紫娟, 刘丽芳, 魏红雨. 学龄期支气管哮喘患儿呼吸康复操的研制及效果评价[J]. 中华护理杂志, 2025, 60(9): 1043-1049. |
| [4] | 黄盼盼, 李丽玲, 胡晓静. 先天性心脏病婴儿早期运动康复的研究进展[J]. 中华护理杂志, 2025, 60(9): 1050-1055. |
| [5] | 陈丽鸥, 张文婷, 刘俊其, 王允琮, 王振霖, 齐赛, 杨娜. 肺叶体表投影定位结合肺段引流排痰技术对吸入性肺炎患者气道廓清的效果研究[J]. 中华护理杂志, 2025, 60(9): 1056-1061. |
| [6] | 杨娜娜, 程传丽, 曾慧, 符丹丹, 王燕, 陈悦, 冉宏敏, 范红静, 龙霞. 分级运动康复对慢性阻塞性肺疾病急性加重期患者的效果评价[J]. 中华护理杂志, 2025, 60(9): 1062-1067. |
| [7] | 曹云, 孙国珍, 陈凤, 季学丽, 闫梦婉, 敬雷, 钱堃. 改良式踝泵运动在脑卒中患者中的应用研究[J]. 中华护理杂志, 2025, 60(9): 1068-1074. |
| [8] | 谢敏, 漆文凯, 殷玲, 张旋, 赵如琴. 腹膜透析患者恐动症潜在剖面分析及影响因素研究[J]. 中华护理杂志, 2025, 60(9): 1080-1086. |
| [9] | 陈冰倩, 赵彬, 孙佳蓉, 郝四芳, 侯晓丽. 慢性牙周炎种植义齿患者口腔健康管理困境的质性研究[J]. 中华护理杂志, 2025, 60(9): 1087-1092. |
| [10] | 秦春兰, 吴振云, 钱红英, 赵茜, 孙锦庭. 慢性阻塞性肺疾病患者疾病自我控制体验的质性研究[J]. 中华护理杂志, 2025, 60(9): 1093-1098. |
| [11] | 李子崴, 冯丽娟, 陈旭升, 黄毅, 杨洁. PICC置管患者运动恐惧评估量表的编制及应用[J]. 中华护理杂志, 2025, 60(9): 1099-1106. |
| [12] | 程志强, 张宝珍, 汤利萍, 李静, 夏娇云, 魏雪岩, 龚智娴, 张美珍, 黎露思. 尿失禁患者疾病认知与态度量表的汉化及初步应用[J]. 中华护理杂志, 2025, 60(9): 1107-1112. |
| [13] | 杨静, 王华芬, 卢芳燕, 鲍瑞洁, 朱莉. 肝移植患儿术后营养状况变化的影响因素分析及护理启示[J]. 中华护理杂志, 2025, 60(9): 1113-1119. |
| [14] | 石美琴, 吴建芳, 张铎, 吴春萍, 陈玲, 陶磊. 1例全喉切除辅助发音管Ⅰ期植入患者术后喉功能康复的护理[J]. 中华护理杂志, 2025, 60(9): 1120-1123. |
| [15] | 谷茜, 黄玺, 施伟雄, 吴静, 谭若铭, 王枫. 1例T细胞免疫治疗后并发细胞因子释放综合征患者的护理[J]. 中华护理杂志, 2025, 60(9): 1124-1127. |
| 阅读次数 | ||||||
|
全文 |
|
|||||
|
摘要 |
|
|||||