中华护理杂志 ›› 2022, Vol. 57 ›› Issue (2): 251-256.DOI: 10.3761/j.issn.0254-1769.2022.02.021
• 综述 • 上一篇
孙素亚(), 陈亚梅(), 林梦月, 陈伟仙, 薄瑾, 刘晓红, 黄燕
收稿日期:
2021-06-03
出版日期:
2022-01-20
发布日期:
2022-01-20
通讯作者:
陈亚梅,E-mail: yezi807@163.com作者简介:
孙素亚:女,本科(硕士在读),主管护师,E-mail: sun_suya90@126.com
基金资助:
SUN Suya(), CHEN Yamei(), LIN Mengyue, CHEN Weixian, BO Jin, LIU Xiaohong, HUANG Yan
Received:
2021-06-03
Online:
2022-01-20
Published:
2022-01-20
摘要:
炎症性肠病患儿成长过渡期是影响其远期生活质量的重要阶段,然而大部分炎症性肠病患儿过渡期准备度较低,严重影响患儿的预后及生活质量。该文对炎症性肠病患儿过渡期准备的现状、影响因素、干预策略等方面的研究进行综述,提出目前研究、实践中的不足及建议,旨在为今后开展相关研究,提高炎症性肠病患儿过渡期准备度提供参考。
孙素亚, 陈亚梅, 林梦月, 陈伟仙, 薄瑾, 刘晓红, 黄燕. 炎症性肠病患儿成长过渡期准备的研究进展[J]. 中华护理杂志, 2022, 57(2): 251-256.
SUN Suya, CHEN Yamei, LIN Mengyue, CHEN Weixian, BO Jin, LIU Xiaohong, HUANG Yan. Research progress on transition readiness of children with inflammatory bowel disease[J]. Chinese Journal of Nursing, 2022, 57(2): 251-256.
[1] | 中华医学会儿科学分会消化学组, 中华医学会儿科学分会临床营养学组. 儿童炎症性肠病诊断和治疗专家共识[J]. 中华儿科杂志, 2019, 57(7):501-507. |
Gastroenterology Group,Pediatrics Branch of Chinese Medical Association,Clinical Nutrition Group,Pediatrics Branch of Chinese Medical Association. Expert consensus on the diagnosis and treatment of pediatric inflammatory bowel disease[J]. Chin J Pediatr, 2019, 57(7):501-507. | |
[2] | Ng SC, Tang W, Ching JY, et al. Incidence and phenotype of inflammatory bowel disease based on results from the Asia-Pacific Crohn’s and colitis epidemiology study[J]. Gastroentero-logy, 2013, 145(1):158-165. |
[3] |
Schiavone C, Romano M. Diagnosis and management of Crohn’s disease[J]. J Ultrasound, 2015, 18(1):1-2.
DOI PMID |
[4] |
Wang XQ, Zhang Y, Xu CD, et al. Inflammatory bowel disease in Chinese children:a multicenter analysis over a decade from Shanghai[J]. Inflamm Bowel Dis, 2013, 19(2):423-428.
DOI URL |
[5] |
Schwartz LA, Hamilton JL, Brumley LD, et al. Development and content validation of the transition readiness inventory item pool for adolescent and young adult survivors of childhood cancer[J]. J Pediatr Psychol, 2017, 42(9):983-994.
DOI PMID |
[6] |
McKenzie RB, Sanders L, Bhattacharya J, et al. Health care sys-tem factors associated with transition preparation in youth with special health care needs[J]. Popul Health Manag, 2019, 22(1):63-73.
DOI URL |
[7] |
Gumidyala AP, Greenley RN, Plevinsky JM, et al. Moving on:transition readiness in adolescents and young adults with IBD[J]. Inflamm Bowel Dis, 2018, 24(3):482-489.
DOI PMID |
[8] |
Gumidyala AP, Plevinsky JM, Poulopoulos N, et al. What teens do not know can hurt them[J]. Inflamm Bowel Dis, 2017, 23(1):89-96.
DOI PMID |
[9] |
Gray WN, Reed-Knight B, Morgan PJ, et al. Multi-site comparison of patient,parent,and pediatric provider perspectives on transition to adult care in IBD[J]. J Pediatr Nurs, 2018, 39:49-54.
DOI URL |
[10] |
Sebastian S, Jenkins H, McCartney S, et al. The requirements and barriers to successful transition of adolescents with inflammatory bowel disease:differing perceptions from a survey of adult and paediatric gastroenterologists[J]. J Crohns Colitis, 2012, 6(8):830-844.
DOI PMID |
[11] |
van Rheenen PF, Aloi M, Biron IA, et al. European Crohn’s and colitis organisation topical review on transitional care in inflammatory bowel disease[J]. J Crohns Colitis, 2017, 11(9):1032-1038.
DOI URL |
[12] | 中华医学会消化病学分会炎症性肠病学组. 炎症性肠病诊断与治疗的共识意见(2018年·北京)[J]. 中华炎性肠病杂志, 2018, 2(3):173. |
Inflammatory Bowel Disease Group,Chinese Society of Gastroenterology,Chinese Medical Association. Chinese consensus on diagnosis and treatment of inflammatory bowel disease(Beijing,2018)[J]. Chin J Inflamm Bowel Dis, 2018, 2(3):173. | |
[13] | 许玲芬, 李静, 郭静, 等. 53例初诊儿童炎症性肠病临床分析[J]. 临床军医杂志, 2016, 44(4):393-397. |
Xu LF, Li J, Guo J, et al. Clinical analysis of 53 children with inflammatory bowel disease[J]. Clin J Med Off, 2016, 44(4):393-397. | |
[14] |
Greenley RN, Hommel KA, Nebel J, et al. A meta-analytic review of the psychosocial adjustment of youth with inflammatory bowel disease[J]. J Pediatr Psychol, 2010, 35(8):857-869.
DOI PMID |
[15] |
Weitzman ER, Ziemnik RE, Huang Q, et al. Alcohol and marijuana use and treatment nonadherence among medically vulnerable youth[J]. Pediatrics, 2015, 136(3):450-457.
PMID |
[16] |
Izaguirre MR, Keefer L. Development of a Self-efficacy Scale for Adolescents and Young Adults with Inflammatory Bowel Disease[J]. J Pediatr Gastroenterol Nutr, 2014, 59(1):29-32.
DOI URL |
[17] |
Aburn G, Gott M, Hoare K. What is resilience? An integrative review of the empirical literature[J]. J Adv Nurs, 2016, 72(5):980-1000.
DOI URL |
[18] |
Carlsen K, Haddad N, Gordon J, et al. Self-efficacy and resi-lience are useful predictors of transition readiness scores in adolescents with inflammatory bowel diseases[J]. Inflamm Bowel Dis, 2017, 23(3):341-346.
DOI URL |
[19] | 吕蕊, 刘思含, 蒙娜, 等. 基于接纳与承诺疗法的护理干预在炎症性肠病患者中的应用[J]. 中华现代护理杂志, 2020, 26(36):5086-5090. |
Lü R, Liu SH, Meng N, et al. Application of nursing intervention based on acceptance and commitment therapy in patients with inflammatory bowel disease[J]. Chin J Mod Nurs, 2020, 26(36):5086-5090. | |
[20] | 刘丹凤, 王玉娜, 孙永梅. 正念减压疗法对乳腺癌术后化疗患者焦虑、抑郁的影响[J]. 中华现代护理杂志, 2018, 24(33):4069-4072. |
Liu DF, Wang YN, Sun YM. Effects of mindfulness-based stress reduction on anxiety and depression among breast cancer patients undergoing postoperative chemotherapy[J]. Chin J Mod Nurs, 2018, 24(33):4069-4072. | |
[21] |
Paine CW, Stollon NB, Lucas MS, et al. Barriers and facilitators to successful transition from pediatric to adult inflammatory bowel disease care from the perspectives of providers[J]. Inflamm Bowel Dis, 2014, 20(11):2083-2091.
DOI URL |
[22] |
Wood DL, Sawicki GS, Miller MD, et al. The Transition Readi-ness Assessment Questionnaire(TRAQ):its factor structure,re-liability,and validity[J]. Acad Pediatr, 2014, 14(4):415-422.
DOI URL |
[23] |
Arvanitis M, Hart LC, DeWalt DA, et al. Transition readiness not associated with measures of health in youth with IBD[J]. Inflamm Bowel Dis, 2021, 27(1):49-57.
DOI PMID |
[24] |
Huang JS, Tobin A, Tompane T. Clinicians poorly assess health literacy-related readiness for transition to adult care in adolescents with inflammatory bowel disease[J]. Clin Gastroenterol Hepatol, 2012, 10(6):626-632.
DOI URL |
[25] |
Kumagai H, Kudo T, Uchida K, et al. Adult gastroenterologists’ views on transitional care:results from a survey[J]. Pediatr Int, 2019, 61(8):817-822.
DOI PMID |
[26] |
Zeisler B, Hyams JS. Transition of management in adolescents with IBD[J]. Nat Rev Gastroenterol Hepatol, 2014, 11(2):109-115.
DOI PMID |
[27] |
Gray WN, Resmini AR, Baker KD, et al. Concerns,barriers,and recommendations to improve transition from pediatric to adult IBD care:perspectives of patients,parents,and health professionals[J]. Inflamm Bowel Dis, 2015, 21(7):1641-1651.
DOI URL |
[28] | 周美景, 罗丹, 林征, 等. 炎症性肠病患者自我管理行为的影响因素分析[J]. 中华护理杂志, 2021, 56(4):550-555. |
Zhou MJ, Luo D, Lin Z, et al. Analysis of influencing factors of self-management behavior in patients with inflammatory bowel disease[J]. Chin J Nurs, 2021, 56(4):550-555. | |
[29] | 丁妮, 陈惠萍, 马利莹, 等. 克罗恩病患儿的护理[J]. 中国实用护理杂志, 2015, 31(29):2216-2218. |
Ding N, Chen HP, Ma LY, et al. Care for children with Crohn’s disease[J]. Chin J Pract Nurs, 2015, 31(29):2216-2218. | |
[30] | 罗丹, 林征, 卞秋桂, 等. 炎症性肠病患者感知病耻感现状及其对生活质量、服药依从性和心理状态的影响[J]. 中华护理杂志, 2018, 53(9):1078-1083. |
Luo D, Lin Z, Bian QG, et al. Perceived stigma in patients with inflammatory bowel disease and its effect on psychology,medication compliance and quality of life[J]. Chin J Nurs, 2018, 53(9):1078-1083. | |
[31] |
Shearer JL, Perry S, Lidyard N, et al. Evaluating a standardized transition of care process for pediatric inflammatory bowel disease patients[J]. Children, 2020, 7(12):271.
DOI URL |
[32] |
Klostermann NR, McAlpine L, Wine E, et al. Assessing the tran-sition intervention needs of young adults with inflammatory bowel diseases[J]. J Pediatr Gastroenterol Nutr, 2018, 66(2):281-285.
DOI URL |
[33] | Fishman LN, Ziniel SI, Adrichem ME, et al. Provider awareness alone does not improve transition readiness skills in adolescent patients with inflammatory bowel disease[J]. J Pediatr Gas-troenterol Nutr, 2014, 59(2):221-224. |
[34] |
Gray WN, Holbrook E, Dykes D, et al. Improving IBD transition,self-management,and disease outcomes with an in-clinic transition coordinator[J]. J Pediatr Gastroenterol Nutr, 2019, 69(2):194-199.
DOI URL |
[35] |
Gray WN, Wagoner ST, Schaefer MR, et al. Transition to adult IBD care:a pilot multi-site,telehealth hybrid intervention[J]. J Pediatr Psychol, 2021, 46(1):1-11.
DOI URL |
[36] |
Cole R, Ashok D, Razack A, et al. Evaluation of outcomes in adolescent inflammatory bowel disease patients following transfer from pediatric to adult health care services:case for transition[J]. J Adolesc Health, 2015, 57(2):212-217.
DOI URL |
[37] |
Gray WN, Maddux MH. Current transition practices in pediatric IBD:findings from a national survey of pediatric providers[J]. Inflamm Bowel Dis, 2016, 22(2):372-379.
DOI URL |
[38] |
Schwartz LA, Tuchman LK, Hobbie WL, et al. A social-ecological model of readiness for transition to adult-oriented care for adolescents and young adults with chronic health conditions[J]. Child Care Health Dev, 2011, 37(6):883-895.
DOI URL |
[39] | 商思懿, 徐林燕, 邹继华, 等. 青少年和青年慢性病患者过渡期准备度评估工具的研究进展[J]. 解放军护理杂志, 2020, 37(9):48-51,58. |
Shang SY, Xu LY, Zou JH, et al. Research progress on transition readiness tools for adolescents and young adults with chronic illnesses[J]. Nurs J Chin PLA, 2020, 37(9):48-51,58. | |
[40] | 蒋鑫鑫, 单岩, 明静祎, 等. 国外青少年慢性病患者医疗过渡准备评估工具的研究进展[J]. 护理学杂志, 2020, 35(12):110-113. |
Jiang XX, Shan Y, Ming JY, et al. Research progress on assessment tools of transition readiness for adolescents with chronic disease outside China[J]. J Nurs Sci, 2020, 35(12):110-113. | |
[41] | Hammerman O, Bayatra A, Turner D, et al. Initial development and validation of a Transition Readiness Scale for Adolescents with Inflammatory Bowel Disease[J]. Gastroenterol Res Pract, 2019, 15(10)1-6. |
[42] |
McManus MA, Pollack LR, Cooley WC, et al. Current status of transition preparation among youth with special needs in the United States[J]. Pediatrics, 2013, 131(6):1090-1097.
DOI URL |
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