中华护理杂志 ›› 2026, Vol. 61 ›› Issue (19): 2708-2715.DOI: 10.3761/j.issn.0254-1769.2026.19.017
收稿日期:2025-11-25
出版日期:2026-10-10
发布日期:2026-09-28
*通讯作者:
邓永芳,E-mail:dengyfsc@163.com作者简介:周再美:女,本科(硕士在读),护士,E-mail:z285132@163.com周再美:选题设计、文献检索与筛选、资料提取、质量评价、资料分析、论文撰写、论文审阅和修改;邓永芳:文献检索与筛选、资料提取、质量评价、资料分析、研究指导、基金支持、论文审阅和修改;代莹:资料提取、质量评价、研究指导、论文审阅和修改
基金资助:
ZHOU Zaimei1(
), DENG Yongfang2,*(
), DAI Ying3
Received:2025-11-25
Online:2026-10-10
Published:2026-09-28
* Corresponding author:
DENG Yongfang,E-mail:dengyfsc@163.comFunding program:摘要:
目的 系统评价胎儿畸形孕产妇及其配偶健康信息需求的质性研究,为制订系统性的信息支持策略提供依据。方法 计算机检索PubMed、Web of Science、Embase、Cochrane Library、CINAHL、中国知网、万方数据库、维普数据库、中国生物医学文献数据库中收录的关于胎儿畸形孕产妇及其配偶健康信息需求的质性研究。检索时限从建库到2026年1月。采用澳大利亚乔安娜布里格斯研究所循证卫生保健中心质性研究质量评价标准进行质量评价,运用汇集性整合法进行结果整合。结果 共纳入12项研究,提炼出39个研究结果、归纳为9个新类别,形成3个整合结果:促进心理适应的信息需求、多渠道获取信息的需求、多样化信息互动的需求。结论 医护人员应动态评估胎儿畸形孕产妇及其配偶的多样化健康信息需求,为其制订针对性、全面的信息支持策略,以增强其医疗决策能力,促进胎儿畸形家庭维持健康的身心状态。
周再美, 邓永芳, 代莹. 胎儿畸形孕产妇及其配偶健康信息需求质性研究的Meta整合[J]. 中华护理杂志, 2026, 61(19): 2708-2715.
ZHOU Zaimei, DENG Yongfang, DAI Ying. Health information needs among women with fetal abnormalities and their spouses:a Meta-synthesis of qualitative studies[J]. Chinese Journal of Nursing, 2026, 61(19): 2708-2715.
| [1] | 孔北华, 马丁, 段涛. 妇产科学[M]. 10版. 北京: 人民卫生出版社, 2024. |
| Kong BH, Ma D, Duan T. Obstetrics and gynecology[M]. 10th ed. Beijing: People’s Medical Publishing House, 2024. | |
| [2] |
Lugli L, Rossi C, Berardi A, et al. Prenatal multidisciplinary counseling for fetal congenital anomalies:a narrative review[J]. Int J Gynecol Obstet, 2025, 169(2):498-510.
DOI URL |
| [3] | World Health Organization. World birth defects day:every jour-ney matters[EB/OL].(2025-03-03)[2025-11-13]. https://www.who.int/southeastasia/news/feature-stories/detail/world-birth-defects-day--every-journey-matters. |
| [4] |
姜文婧, 陈雨晴, 杨佳汇, 等. 新生儿出生缺陷现状及干预措施实施进展[J]. 中国儿童保健杂志, 2021, 29(12):1317-1320.
DOI |
| Jiang WJ, Chen YQ, Yang JH, et al. Progress in current situation and intervention measures of neonatal birth defect[J]. Chin J Child Health Care, 2021, 29(12):1317-1320. | |
| [5] | 程贤鹦, 程丽, 王园园, 等. 三孩高龄产妇妊娠特征、分娩方式及围生儿结局调查分析[J]. 中国优生与遗传杂志, 2024, 32(1):196-199. |
| Cheng XY, Cheng L, Wang YY, et al. Analysis of the preg-nancy characteristics,delivery mode,and perinatal outcomes of advanced age puerpera of three-child[J]. Chin J Birth Health Hered, 2024, 32(1):196-199. | |
| [6] |
Varthaliti A, Pergialiotis V, Theodora M, et al. Advances in fetal surgery:a narrative review of therapeutic interventions and future directions[J]. Medicina, 2025, 61(7):1136.
DOI URL |
| [7] |
李卫涛, 王金艳, 吴慧玲, 等. 胎儿异常引产产妇创伤后成长历程的质性研究[J]. 中华护理杂志, 2024, 59(8):967-973.
DOI URL |
|
Li WT, Wang JY, Wu HL, et al. A qualitative study on the post-traumatic growth course for women with termination of pregnancy due to fetal abnormalities[J]. Chin J Nurs, 2024, 59(8):967-973.
DOI URL |
|
| [8] |
Delaney RK, Pinto NM, Ozanne EM, et al. Parents’ decision-mak-ing for their foetus or neonate with a severe congenital heart defect[J]. Cardiol Young, 2022, 32(6):896-903.
DOI URL |
| [9] | Dias MB, Tuda LTS, de Carvalho LIA, et al. What is important in family counseling in cases of fetuses with congenital heart disease?[J]. Rev Assoc Med Bras, 2023, 69(6):e20230161. |
| [10] | da Rocha Amorim LA, Araujo E. Family counseling after pre-natal diagnosis of congenital heart disease:the role of a multidisciplinary and humanized approach[J]. Rev Bras De Gi-necologia E Obstetrícia, 2025,47:e-rbgoedt1. |
| [11] |
Elfarawi H, Tolusso L, McGowan ML, et al. Alobar holoprosence-phaly:exploring mothers’ perspectives on prenatal decision-making and prognostication[J]. Prenat Diagn, 2022, 42(5):617-627.
DOI URL |
| [12] |
Cruz AC, Almeida Aranha G, Silva CMC, et al. The complexity of having a child with a congenital heart defect in a developing country:a qualitative study of parental needs[J]. J Pediatr Nurs, 2022, 64:e159-e165.
DOI URL |
| [13] | Severijns Y, van Osch LADM, Jansen J, et al. How do partners make pregnancy-related decisions? Understanding the deci-sion-making process of couples:a scoping review[J]. Women’s Reprod Health, 2024, 11(4):852-875. |
| [14] |
Bodenmann G, Randall AK. Common factors in the enhance-ment of dyadic coping[J]. Behav Ther, 2012, 43(1):88-98.
DOI PMID |
| [15] | 黄崇斐, 拜争刚, 吴淑婷, 等. 定性系统评价的撰写方法介绍[J]. 中国循证医学杂志, 2015, 15(9):1106-1111. |
| Huang CF, Bai ZG, Wu ST, et al. How to write the qualitative systematic review:an introduction[J]. Chin J Evid-Based Med, 2015, 15(9):1106-1111. | |
| [16] | Institute JBI. JBI critical appraisal checklist for qualitative research[EB/OL].(2016-08-03)[2025-11-17]. http://joannabriggs.org/assets/docs/critical-appraisal-tools.html. |
| [17] |
Lockwood C, Munn Z, Porritt K. Qualitative research synthesis:methodological guidance for systematic reviewers utilizing meta-aggregation[J]. Int J Evid Based Healthc, 2015, 13(3):179-187.
DOI URL |
| [18] | 钱小芳, 刘桂华, 郭斌, 等. 肠闭锁患儿家长孕期与围手术期体验及健康教育需求的质性研究[J]. 护士进修杂志, 2014, 29(12):1124-1126. |
| Qian XF, Liu GH, Guo B, et al. Qualitative study on the real experience as well as health eduction nedds of pregnancy and perioperative period in parents of newborns undergoing congenital intestinal atresia[J]. J Nurses Train, 2014, 29(12):1124-1126. | |
| [19] |
Bratt EL, Järvholm S, Ekman-Joelsson BM, et al. Parent’s ex-periences of counselling and their need for support following a prenatal diagnosis of congenital heart disease:a qualitative study in a Swedish context[J]. BMC Pregnancy Childbirth, 2015, 15(1):171.
DOI URL |
| [20] | Titapant V, Chuenwattana P. Psychological effects of fetal diagnoses of non-lethal congenital anomalies on the experie-nce of pregnant women during the remainder of their preg-nancy[J]. J Obstet And Gynaecol, 2015, 41(1):77-83. |
| [21] |
Côté-Arsenault D, Denney-Koelsch E. “Have no regrets:” Pa-rents’ experiences and developmental tasks in pregnancy with a lethal fetal diagnosis[J]. Soc Sci Med, 2016, 154:100-109.
DOI PMID |
| [22] |
Carlsson T, Marttala UM, Mattsson E, et al. Experiences and preferences of care among Swedish immigrants following a prenatal diagnosis of congenital heart defect in the fetus:a qualitative interview study[J]. BMC Pregnancy Childbirth, 2016, 16(1):130.
DOI URL |
| [23] |
Carlsson T, Bergman G, Wadensten B, et al. Experiences of infor-mational needs and received information following a prenatal diagnosis of congenital heart defect[J]. Prenat Diagn, 2016, 36(6):515-522.
DOI URL |
| [24] |
Kett JC, Wolfe E, Vernon MM, et al. The multidisciplinary fetal center:clinical expertise is only part of the experience[J]. Acta Paediatr, 2017, 106(6):930-934.
DOI URL |
| [25] |
Marokakis S, Kasparian NA, Kennedy SE. Parents’ perceptions of counselling following prenatal diagnosis of congenital anomalies of the kidney and urinary tract:a qualitative study[J]. BJU Int, 2017, 119(3):474-481.
DOI PMID |
| [26] |
Berman L, Costanzo C, Smola S, et al. Understanding the parent perspective on prenatal consultation for fetuses with congenital anomalies[J]. Fetal Diagn Ther, 2018, 44(2):91-97.
DOI PMID |
| [27] |
O’Connell O, Meaney S, O’Donoghue K. Anencephaly;the mater-nal experience of continuing with the pregnancy. Incompa-tible with life but not with love[J]. Midwifery, 2018, 71:12-18.
DOI URL |
| [28] | Harris KW, Brelsford KM, Kavanaugh-McHugh A, et al. Uncer-tainty of prenatally diagnosed congenital heart disease:a qualitative study[J]. JAMA Netw Open, 2020, 3(5):e204082. |
| [29] |
Akinkuotu AC, Obayemi JE, Johnson M, et al. Maternal health literacy and prenatal learning experiences related to diagnosis and surgical management:a qualitative study of women with pregnancies associated with surgically correctable congenital anomalies[J]. Prenat Diagn, 2025, 45(13):1767-1776.
DOI URL |
| [30] |
Beck AT. Thinking and depression:I. idiosyncratic content and cognitive distortions[J]. Arch Gen Psychiatry, 1963, 9(4):324.
DOI URL |
| [31] | Habibi H, Tulloh E, Gatzoulis MA. Empowering patients with congenital heart disease:development of a digital question prompt list for shared decision-making:a pilot study[J]. Car-diol Young, 2025, 35(10):2126-2130. |
| [32] | Wang Y, Tian J, Yang Q. Experiential avoidance process model:a review of the mechanism for the generation and mainte-nance of avoidance behavior[J]. Psychiatry Clin Psychopharma-col, 2024, 34(2):179-190. |
| [33] |
周小莉, 钱嘉璐, 吴孟玮, 等. 基于认知行为疗法的护理干预在胎儿异常引产产妇中的应用研究[J]. 中华护理杂志, 2023, 58(14):1676-1682.
DOI URL |
|
Zhou XL, Qian JL, Wu MW, et al. Effect of internet-based cognitive behavior therapy in women with abnormal fetal termination[J]. Chin J Nurs, 2023, 58(14):1676-1682.
DOI URL |
|
| [34] | 孙路明. 中国胎儿医学的发展:回顾、思考及展望[J]. 中华围产医学杂志, 2023, 26(11):925-929. |
| Sun LM. Development of fetal medicine in China:retrospect,thinking,and prospect[J]. Chin J Perinat Med, 2023, 26(11):925-929. | |
| [35] | Delaney RK, Pinto NM, Ozanne EM, et al. Study protocol for a randomised clinical trial of a decision aid and values clarification method for parents of a fetus or neonate diagnosed with a life-threatening congenital heart defect[J]. BMJ Open, 2021, 11(12):e055455. |
| [36] | Hart AR, Vollmer B, Howe D, et al. Antenatal counselling for prospective parents whose fetus has a neurological anomaly:part 1,experiences and recommendations for service design[J]. Dev Med Child Neurol, 2021, 64(1):14-22. |
| [37] | 张茜, 刘亚飞, 李梦然, 等. 先天性心脏病患儿围生期护理管理专家共识[J]. 中华护理杂志, 2025, 60(5):552-557. |
| Zhang Q, Liu YF, Li MR, et al. Expert consensus on perinatal care management of infants with congenital heart disease[J]. Chin J Nurs, 2025, 60(5):552-557. |
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