口腔癌患者症状管理旅程地图的绘制及护理对策

doi:10.3761/j.issn.0254-1769.2025.10.010

摘要/Abstract

摘要：

目的基于患者旅程地图识别口腔癌患者症状管理的多维需求，为优化口腔癌患者的症状管理，制订针对性护理对策提供依据。方法运用描述性质性研究方法，于2023年9月—2024年3月，选取郑州市某三级甲等综合医院的15例口腔癌患者进行半结构式访谈，采用内容分析法进行资料分析并绘制患者旅程地图。结果以口腔癌患者的筛查诊断期、围手术期、延续治疗期3个时期作为时间轴线，从任务、情绪、痛点3个维度将口腔癌患者的症状管理细分归纳为识别异常症状、明确诊断、焦虑、恐惧和不确定感、愧疚、高危行为惯性固化、诊断信任危机等22个主题，并绘制旅程地图。结论口腔癌患者症状管理旅程漫长复杂，患者生理、心理及社会等症状管理需求动态变化。未来可结合数智化干预技术，实现全程化、个性化及精准化的症状管理，以提升口腔癌患者的生活质量。

关键词: 患者旅程地图, 口腔癌, 症状管理, 护理

Abstract:

Objective To identify the multi-dimensional needs of symptom management for oral cancer patients based on the journey map，and provide references for optimizing the symptom management of oral cancer patients. Methods From September 2023 to March 2024，the purposive sampling was used to select 15 perioperative oral cancer patients from a tertiary A general hospital in Zhengzhou for semi-structured interviews. The content analysis method was used to analyze the data and create a patient journey map. Results According to the time axis of diagnosis and treatment，the symptom management of patients with oral cancer was subdivided into 22 themes including identifying abnormal symptoms，clarifying diagnosis，anxiety，fear and uncertainty，guilt，high-risk behavioral inertia solidification, diagnostic trust crisis and so on from 3 dimensions of task，emotion，and pain point，and a journey map was formed. Conclusion The journey of symptom management for patients with oral cancer is long and complex，and the needs of patients’ physiological and psychological symptom management are dynamically changing. In the future，the digital intelligence of big data technology can be combined to achieve whole-process，personalized and precise symptom management to improve the quality of life of oral cancer patients.

Key words: Patient Journey Map, Oral Cancer, Symptom Management, Nursing Care

徐慧萍, 底瑞青, 刘延锦, 郭子鑫, 王烨华, 王凌, 孙义芳, 王鑫. 口腔癌患者症状管理旅程地图的绘制及护理对策[J]. 中华护理杂志, 2025, 60(10): 1217-1222.

XU Huiping, DI Ruiqing, LIU Yanjin, GUO Zixin, WANG Yehua, WANG Ling, SUN Yifang, WANG Xin. Mapping the symptom management journey of oral cancer patients and nursing response[J]. Chinese Journal of Nursing, 2025, 60(10): 1217-1222.

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