Abstract:

Objective By analyzing patient journey maps，this study aims to clarify the specific needs of chronic obstructive pulmonary disease（COPD） patients at each stage of health management，thereby providing support for enhancing the quality of whole-cycle health management. Methods Using descriptive qualitative research methods，we conducted semi-structured interviews with 11 patients diagnosed with chronic obstructive pulmonary disease who were hospitalized in a tertiary general hospital in Qingdao City，China，from May to July 2025，and analyzed the data and drew the patient journey maps by content analysis. Results Along the diagnosis-treatment timeline，a total of 23 themes across 3 dimensions—namely tasks，emotions，and pain points—were extracted from the 3 phases：screening and diagnosis，hospitalization treatment，and home-based rehabilitation. Conclusion The health management needs of patients with chronic obstructive pulmonary disease are complex and variable，with prominent demands for early symptom identification，acute symptom management，and self-management support. In the future，corresponding intervention strategies can be developed based on the patient journey maps to provide precise healthcare support for patients.

Key words: Pulmonary Disease，Chronic Obstructive, Journey Map, Health Management, Chronic Disease Care

摘要：

目的 通过患者旅程地图分析，明确慢性阻塞性肺疾病患者在健康管理各阶段的具体需求，为提升患者全周期健康管理质量提供支持。 方法 采用描述性质性研究方法，于2025年5—7月便利选取青岛市某三级甲等综合医院住院的11例慢性阻塞性肺疾病患者进行半结构式访谈，采用内容分析法分析资料并绘制患者健康管理旅程地图。 结果 按诊疗时间轴，从筛查诊断、住院治疗、居家康复3个时期分别提取出任务、情绪和痛点3个维度的23个主题。 结论 慢性阻塞性肺疾病患者的健康管理需求复杂多变，其早期症状识别、急性症状处理、自我管理需求明显，未来可根据旅程地图制订相应的干预策略，为患者提供精准的健康照护支持。

关键词: 肺疾病，慢性阻塞性, 旅程地图, 健康管理, 慢性病护理