Abstract:

Objective To construct a telemedicine-based home care program for hospice patients that will provide a reference for hospice telemedicine-based home care practices. Methods Using the Supportive Care Model as a theoretical guide，a preliminary telemedicine-based home care program for hospice patients was developed based on literature research combined with qualitative interviews. 2 rounds of expert consultation were conducted in March 2023 to solicit their opinions and revise the proposal to form the final draft. In April 2023，9 patients who were about to be discharged from the palliative care ward of a cancer hospital in Hunan Province，were selected for the preliminary application of the program by the convenience sampling method；the number of cases of adverse events and the Telemedicine Satisfaction Questionnaire were used for the effectiveness of the program. Results A total of 16 experts completed 2 rounds of consultation，and the coefficient of expert authority was 0.928. The effective questionnaire recovery rates of the 2 rounds of consultation were 94.12% and 100%；the expert opinion submission rates were 100% and 25.00%；the coefficients of variation of item scores were 0.05~0.18 and 0~0.16. The coefficients of Kendall harmony in 2 rounds were 0.093 and 0.210（P<0.001）. The constructed final program included 4 dimensions of symptom management，daily life care，psycho-spiritual care and social information support，and a total of 17 modules such as pain management，dyspnea management，gastrointestinal symptom management and cough management，which covering 37 specific items. No adverse events occurred during the application and the score of care satisfaction was（60.22±7.41），which indicated a high level of satisfaction. Conclusion The program constructed in this study is scientific，relevant and feasible，and can provide guidance for healthcare professionals in conducting hospice telemedicine-based home care practices.

Key words: Palliative Care, Telenursing, Family Nursing, Delphi Technique

摘要：

目的 构建安宁疗护患者远程居家照护方案并进行初步应用，为开展安宁疗护远程居家照护实践提供参考。方法 以支持性照护模型为理论指导，在文献研究的基础上结合质性访谈初步拟订安宁疗护患者远程居家照护方案。2023年3月进行2轮函询，征询专家意见并修订方案，形成终稿。2023年4月，采用便利抽样法选取湖南省长沙市某三级甲等肿瘤专科医院安宁疗护病房即将出院的10例患者初步应用该方案，采用不良事件发生例数、远程照护满意度评价方案应用效果。结果 共16名专家完成2轮函询，其权威系数为0.928。2轮函询的有效问卷回收率分别为94.12%、100%，专家意见提出率分别为100%、25.00%，条目评分的变异系数分别为0.05~0.18、0~0.16，肯德尔和谐系数分别为0.093、0.210（P<0.001）。最终构建的方案包括症状管理、生活照护、心理及精神照护、社会信息支持4个维度，疼痛管理、呼吸困难管理、胃肠道症状管理、咳嗽/咳痰管理等17个模块，涵盖37项具体实施内容。方案应用期间脱落1例患者，最终纳入9例。患者均未发生不良事件，其远程照护满意度问卷得分为（60.22±7.41）分，处于高满意度水平。结论 该研究构建的方案具有较强的科学性、针对性及可行性，可为医护人员开展安宁疗护远程居家照护实践提供指导。

关键词: 安宁疗护, 远程护理, 家庭护理, 德尔菲技术