Abstract:

Objective This study aimed to describe social isolation-related psychological experiences of cancer patients，in order to provide practicable references for developing relevant nursing support programs. Methods This descriptive qualitative study，involving a semi-structured in-depth interview of 20 cancer patients based on purposive sampling，was conducted from November to December 2021 at a tertiary A tumor hospital in Shanghai. The qualitative content analysis was performed in order to summarize and extract themes from the interview texts. Results The cancer isolation-related psychological experiences of cancer patients were extracted and classified into 3 themes，which should be dealt in a positive and comprehensive way in order to produce a supportive environment for survivors：social withdrawal（distress of cancer-related symptoms，worries regarding health impairment，stigma regarding change of body image and social prejudice，lack of interest in social activities）；hiding of inner feelings （the psychological distress tolerated by oneself，worries about influencing others，failure to communicate with others）；eagerness for support（reliance on family support，feelings of gratefulness for the support of friends，eagerness for seeking professional support）. Conclusion The study found that cancer patients suffered social isolation because of their impaired physical health，poor psychological status and insufficient social support. Medical staff should strengthen the symptom management and psychological counseling provided to these survivors and enhance their family and social support，in order to help cancer survivors return and adapt to society.

Key words: Cancer Patients, Social Isolation, Qualitative Research, Content Analysis, Oncology Nursing

摘要：

目的 描述癌症患者社会疏离的体验，旨在为该人群护理支持方案的制订提供参考依据。 方法 采用描述性质性研究，按照目的抽样法，于2021年11月—12月选取在上海市某三级甲等肿瘤医院复诊治疗的20例癌症患者进行半结构式深入访谈，并以内容分析法归纳和提炼主题。 结果 将癌症患者社会疏离的体验提炼为3个主题：社交退缩（癌因性症状的困扰、健康受损的忧虑、病耻感的影响、社交兴趣缺乏）；隐匿心声（自我忍受痛苦、担心影响他人、沟通交流不畅）；渴望支持（依赖家庭支持、感恩朋友支持、亟需专业支持）。 结论 癌症患者由于生理健康受损、心理状况不良、社会支持不足等存在社会疏离，医护人员应加强对该人群的症状管理和心理疏导，强化家庭及社会支持，以帮助其重返和适应社会。

关键词: 癌症患者, 社会疏离, 质性研究, 内容分析法, 肿瘤护理