Abstract:

Objective To systematically review and synthesize the experience of informal caregivers caring for patients with chronic heart failure at home. Methods 9 databases,including Web of science,PubMed,Embase,The Cochrane Library,EBSCO,PsyclNFO,Sinomed,CNKI and Wanfang Data,were searched from their inception to May 2021 for the qualitative studies on experience of informal caregivers caring for patients with chronic heart failure at home. The study quality was evaluated using the qualitative research quality evaluation criteria of the Joanna Briggs Institute Evidence-based Health Care Center in Australia. The research results were summarized and integrated using the pooled integration method. Results A total of 15 articles were included and 38 complete findings were grouped into 10 categories according to their similarities. These 10 categories resulted in 3 synthesized findings：the change of the normal life（challenge,stress,and conflict）,the lack of external support（knowledge,resources,and expectations）,the gain of positive feelings（identification,benefits,growth）. Conclusion Nurses should pay more attention to the burden,stress,as well as needs of heart failure caregivers,improve their caregiving competency,and give professional support and emotional support to them. By these ways,quality of life of patients with heart failure can be ultimately improved.

Key words: Heart Failure, Caregivers, Caring Experience, Home Nursing, Qualitative Research, Meta-Synthesis

摘要：

目的 系统评价和整合慢性心力衰竭患者照护者的居家照护体验,为提升照护者居家照护能力、改善慢性心力衰竭患者生活质量提供依据。方法 计算机检索Web of Science、PubMed、Embase、The Cochrane Library、EBSCO、PsyclNFO、中国生物医学文献数据库、中国知网和万方数据知识服务平台,收集从建库至2021年5月关于慢性心力衰竭患者照护者居家照护体验的相关质性研究。采用澳大利亚乔安娜布里格斯研究所（Joanna Briggs Institute,JBI）循证卫生保健中心的质性研究质量评价标准（2016版）对纳入文献进行质量评价,采用汇集性整合法整合文献结果。结果 共纳入15篇文献,提炼出38个明确的研究结果,归纳为10个新的类别,汇总成以下3个整合结果。改变生活常态：挑战、压力、冲突;缺乏外界支持：知识、资源、期望;获得积极感受：认同、获益、成长。结论 护理工作者应当重视并关注心力衰竭患者照护者的负担、压力以及需求,给予照护者专业支持和情感支持,提升其照护胜任力,进而提高照护者的居家照护质量,最终改善心力衰竭患者的生活质量。

关键词: 心力衰竭, 照护者, 照护体验, 家庭护理, 质性研究, Meta整合