Abstract:

Objective To evaluate the design and intervention effects of a home-based continuous care platform of nasopharyngeal carcinoma（NPC） patients based on patient needs,and to provide NPC patients with access to acquire disease nursing knowledge and skills to improve their post-hospital life quality and health outcomes.Methods The home-based continuous care platform for NPC patients has 2 parts,including system management platform and operation platform. From April to June 2019,80 patients with NPC who were initially treated in the Radiotherapy Department of a tertiary hospital in Nanning city and discharged after radiotherapy and chemotherapy were selected as the study subjects. They were allocated into an experimental group and a control group by random number table method,with 40 cases in each group. On the basis of routine discharge guidance,the experimental group used home-based continuous care platform for nursing intervention;the control group was given routine nursing after discharge. 6 months after the intervention,the satisfaction of platform design,self-care compliance,the degree of complications and the evaluation of quality of life were compared between 2 groups.Results The use rate of the platform was 98% and the overall satisfaction was（62.00±7.41）,which were at a high level;the compliance of self-care in the experimental group was significantly higher than that in the control group（P<0.05）;the incidence of complications was significantly lower than that in the control group（P<0.05）;the evaluation of quality of life was better than that in the control group（P<0.05）.Conclusion The NPC home-based continuous care platform is conducive to the development of scientific and systematic extension of nursing services,so as to improve the quality of life of patients with NPC and it is worthy of further promotion in the clinics.

Key words: Nasopharyngeal Carcinoma, Continuous Nursing Care, Informatization Platform, Community Health Services

摘要：

目的 构建基于患者需求的鼻咽癌患者家庭延续性护理平台,并评价其效果,为鼻咽癌患者提供获取疾病护理知识和技能的渠道,以改善其出院后生活质量和健康结局。方法 鼻咽癌患者家庭延续性护理平台包括系统管理平台和操作平台2个部分。2019年4月—6月,选取在南宁市某三级甲等医院放疗科进行初次治疗且放化疗结束出院的80例鼻咽癌患者作为研究对象,用随机数表法分为试验组和对照组,每组各40例。试验组在常规出院指导基础上,使用家庭延续性护理平台;对照组给予常规出院护理。干预6个月后调查试验组平台使用率及满意度,并对两组干预前及干预后6个月自我护理依从性、放化疗毒副反应发生情况、生活质量进行比较。结果 试验组平台使用率为98%,满意度得分为（62.00±7.41）分,处于高水平;试验组自我护理依从性高于对照组（P<0.05）;毒副反应发生程度随时间推移较对照组降低（P<0.05）;生活质量评价优于对照组（P<0.05）。结论 鼻咽癌患者家庭延续性护理平台有助于开展科学、系统化、延伸性的护理服务,提高鼻咽癌患者生活质量。

关键词: 鼻咽癌, 延续性护理, 信息化平台, 社区卫生服务