关键词: 脑卒中, 脑卒中, 疾病体验, 疾病体验, 复发风险感知, 复发风险感知, 质性研究, 质性研究, 护理, 护理

Abstract:

Objective To gain insights into the perception of the disease experience and recurrence risk from the perspective of patients who experienced first-ever and recurrent stroke. Methods A phenomenological approach was conducted and a total of 19 stroke survivors were enrolled for semi-structural in-depth interviews. Colaizzi method was used to analyze the data. Results The abstraction process generated 3 categories according to the number of recurrences,which showed different characteristics. First-ever stroke survivors could identify anomalies but lacked of professional information resources;they could actively seek treatment with awareness of benefits of timely hospitalization;they were overoptimistic towards prognosis and easily overlooked the risk of recurrence. For the patients with a second stroke,adequate information about warning signs was still needed;they perceived the severity of recurrent stroke and aroused self-reproach and self-examination;susceptibility of recurrence,sense of powerlessness and the loss of control were experienced. Regarding to patients with multiple recurrences,their social participation ability significantly decreased;they perceived no visible benefits of behavioral changes;they started to focus on life and death with positive or negative acceptance of recurrence. Conclusion Despite differences of patients,inadequate awareness of recurrence risks is a common phenomenon. It is recommended to develop a classified health guidance according to patients’ recurrence times,to implement risk communication education to promote disease awareness and recurrent risk perception of stroke survivors.

Key words: Stroke, Stroke, Disease Experience, Disease Experience, Recurrence Risk Perception, Recurrence Risk Perception, Qualitative Study, Qualitative Study, Nursing Care, Nursing Care