国外安宁疗护质量评估的研究进展

doi:10.3761/j.issn.0254-1769.2019.10.026

摘要/Abstract

摘要：

安宁疗护是关注于临终患者及家属生活质量的实践,安宁疗护质量对临终患者终末期生活质量有重要影响。目前国内缺乏规范统一的安宁疗护质量评价指标,导致安宁疗护质量具有不确定性,且国内对安宁疗护的研究和关注较为薄弱。该文旨在对国外安宁疗护质量的评价方法进行分析总结,以期为国内安宁疗护质量评价指标体系的构建提供参考。

关键词: 安宁疗护, 护理质量, 护理评估, 综述, 护理管理研究

Key words: Palliative Care, Quality of Care, Nursing Assessment, Review, Nursing Administration Research

许湘华, 成琴琴, 王英, 刘翔宇, 李旭英, 沈波涌, 林琴, 卿利敏, 谌永毅. 国外安宁疗护质量评估的研究进展[J]. 中华护理杂志, 2019, 54(10): 1578-1582.

参考文献 42

[1]	国家统计局. 中国统计年鉴2016[M]. 北京: 中国统计出版社, 2016.
[2]	Fang EF, Scheibye-Knudsen M, Jahn HJ , et al. A research agenda for aging in China in the 21st century[J]. Ageing Res Rev, 2015,24(Pt B):197-205.
[3]	国家统计局. 国家数据[EB/OL].[2018-02-05]. http://data.stats.gov.cn/easyquery.htm?cn=C01&zb=A0301&sj=2016 .
[4]	Hu KJ, Feng DH . Barriers in palliative care in China[J]. Lancet, 2016,387(10025):1272.
[5]	Kamal AH , LeBlanc TW,Meier DE. Better palliative care for all:improving the lived experience with cancer[J]. JAMA, 2016,316(1):29-30.
[6]	国家卫生计生委办公厅. 国家卫生计生委办公厅关于印发安宁疗护实践指南(试行)的通知[EB/OL].( 2017- 02- 09)[2019-08-05]. ttp://www.nhfpc.gov.cn/yzygj/s3593/201702/83797c0261a9-4781b158dbd76666b717.shtml .
[7]	卫计委:临终关怀服务纳入医保长护险报销中央财政投30亿各项优惠政策出台[EB/OL].( 2018- 03- 05)[2019-08-05]. http://www.cnaflc.org/lzgh/14234.jhtml .
[8]	Lohr KN, Schroeder SA . A strategy for quality assurance in Medicare[J]. N Engl J Med, 1990,322(10):707-712.
[9]	Ferrell BR . Overview of the domains of variables relevant to end-of-life care[J]. J Palliat Med, 2005,8(Suppl 1):S22-S29.
[10]	Ferrell BR, Twaddle ML, Melnick A , et al. National consensus project clinical practice guidelines for quality palliative care guidelines,4th edition[J]. J Palliat Med, 2018.
[11]	De Roo ML, Leemans K, Claessen SJ , et al. Quality indicators for palliative care:update of a systematic review[J]. J Pain Sym-ptom Manage, 2013,46(4):556-572.
[12]	Donabedian A . The quality of care:how can it be assessed?[J]. Jama, 1988,260(12):1743-1748.
[13]	McCorry NK, O'Connor S, Leemans K , et al. Quality indicators for palliative day services:A modified Delphi study[J]. Palliat Med, 2019,33(2):197-205.
[14]	D'Angelo D, Mastroianni C, Vellone E,et al. Palliative care quality indicators in Italy. What do we evaluate?[J]. Support Care Cancer, 2012,20(9):1983-1989.
[15]	Health Quality Ontario. Palliative care:care for adults with a progressive,life-limiting illness[EB/OL].[ 2019- 02- 03]. http://www.hqontario.ca/portals/0/documents/evidence/quality-standards/qs-pa-lliative-care-clinical-guide-en.pdf .
[16]	Lind S, Adolfsson J, Axelsson B , et al. Quality indicators for palliative and end of life care:a review of Swedish policy documents[J]. BMJ Support Palliat Care, 2015,5(4):413-419.
[17]	Pantilat SZ, Marks AK, Bischoff KE , et al. The palliative care quality network:improving the quality of caring[J]. J Palliat Med, 2017,20(8):862-868.
[18]	Bovero A, Leombruni P, Miniotti M , et al. Spirituality,quality of life,psychological adjustment in terminal cancer patients in hospice[J]. Eur J Cancer Care(Engl), 2016,25(6):961-969.
[19]	Baider L . Cultural diversity:family path through terminal illness[J]. Ann Oncol, 2012,23(Suppl 3):62-65.
[20]	Earle CC, Neville BA, Landrum MB , et al. Evaluating claims-based indicators of the intensity of end-of-life cancer care[J]. Int J Qual Health Care, 2005,17(6):505-509.
[21]	Barbera L, Paszat L, Chartier C . Indicators of poor quality end-of-life cancer care in Ontario[J]. J Palliat Care, 2006,22(1):12-17.
[22]	Kao YH, Chiang JK . Effect of hospice care on quality indicators of end-of-life care among patients with liver cancer:a national longitudinal population-based study in Taiwan 2000-2011[J]. BMC Palliat Care, 2015,14:39.
[23]	Yennurajalingam S, Prado B, Lu ZN , et al. Outcomes of embedded palliative care outpatients initial consults on timing of palliative care access,symptoms,and end-of-life quality care indicators among advanced nonsmall cell lung cancer patients[J]. J Palliat Med, 2018.
[24]	陆宇晗 . 我国安宁疗护的现状及发展方向[J]. 中华护理杂志, 2017,52(6):659-664.
[25]	Kamal AH, Bull J, Kavalieratos D , et al. Development of the quality data collection tool for prospective quality assessment and reporting in palliative care[J]. J Palliat Med, 2016,19(11):1148-1155.
[26]	Hanson LC, Rowe C, Wessell K , et al. Measuring palliative care quality for seriously ill hospitalized patients[J]. J Palliat Med, 2012,15(7):798-804.
[27]	Dy SM, Kiley KB, Ast K , et al. Measuring what matters:top-ranked quality indicators for hospice and palliative care from the American Academy of Hospice and Palliative Medicine and Hospice and Palliative Nurses Association[J]. J Pain Sym-ptom Manage, 2015,49(4):773-781.
[28]	Casarett D, Pickard A, Bailey FA , et al. A nationwide VA palliative care quality measure:the family assessment of treatment at the end of life[J]. J Palliat Med, 2008,11(1):68-75.
[29]	Claessen SJ, Francke AL, Belarbi HE , et al. A new set of quality indicators for palliative care:process and results of the development trajectory[J]. J Pain Symptom Manage, 2011,42(2):169-182.
[30]	Walling AM, Ahluwalia SC, Wenger NS , et al. Palliative care quality indicators for patients with end-stage liver disease due to cirrhosis[J]. Dig Dis Sci, 2017,62(1):84-92.
[31]	Hearn J, Higginson IJ . Development and validation of a core outcome measure for palliative care:the palliative care outcome scale. Palliative Care Core Audit Project Advisory Group[J]. Qual Health Care, 1999,8(4):219-227.
[32]	Ellershaw JE, Peat SJ, Boys LC . Assessing the effectiveness of a hospital palliative care team[J]. Palliat Med, 1995,9(2):145-152.
[33]	Mayland CR, Gerlach C, Sigurdardottir K , et al. Assessing qua-lity of care for the dying from the bereaved relatives' perspective:Using pre-testing survey methods across seven countries to develop an international outcome measure[J]. Palliat Med, 2019,33(3):357-368.
[34]	Miyashita M, Morita T, Sato K , et al. Good death inventory:a measure for evaluating good death from the bereaved family member's perspective[J]. J Pain Symptom Manage, 2008,35(5):486-498.
[35]	Morita T, Hirai K, Sakaguchi Y , et al. Measuring the quality of structure and process in end-of-life care from the bereaved family perspective[J]. J Pain Symptom Manage, 2004,27(6):492-501.
[36]	Anderson F, Downing GM, Hill J , et al. Palliative performance scale(PPS):a new tool[J]. J Palliat Care, 1996,12(1):5-11.
[37]	闫敏, 徐燕 . 国外姑息照护质量评估工具的研究进展[J]. 解放军护理杂志, 2012,29(21):40-43,58.
[38]	皮红英, 彭培培, 苏清清 , 等. 失能老年人长期照护质量评价指标体系的构建[J]. 中华护理杂志, 2018,53(9):1110-1114.
[39]	刘林霞 . 新生儿危重症护理质量评价指标体系的构建[D]. 上海:复旦大学, 2014.
[40]	徐丽, 何燕, 侯向华 , 等. 新生儿监护病房护理质量评价指标的研究[J]. 护理研究, 2015,29(10):1217-1220.
[41]	邢双双, 顾则娟, 尹祥广 , 等. 专科护理质量评价指标体系的构建现状及对其局限性的思考[J]. 中国护理管理, 2017,17(6):827-831.
[42]	Hanson LC, Schenck AP, Rokoske FS , et al. Hospices' preparation and practices for quality measurement[J]. J Pain Sym-ptom Manage, 2010,39(1):1-8.

国外安宁疗护质量评估的研究进展

RichHTML

PDF

补充材料

可视化

摘要/Abstract

引用本文

使用本文

参考文献 42

相关文章 15

编辑推荐

Metrics

[1]	刘梦媛, 田凌云, 蒋敬, 冯心语, 李卫娟, 罗慧, 李映兰. 护士在跨专业合作中伦理冲突的范围综述[J]. 中华护理杂志, 2024, 59(9): 1138-1144.
[2]	崔怡爽, 何细飞, 王昭昭, 程捷, 杨伟梅, 陆丽娟. 共享决策在急性冠脉综合征患者中应用的范围综述[J]. 中华护理杂志, 2024, 59(9): 1145-1152.
[3]	张小艳, 李学靖, 杨丹, 孟美琪, 郝玉芳. 老年人久坐行为干预策略的范围综述[J]. 中华护理杂志, 2024, 59(8): 1012-1020.
[4]	余良梦, 俞小玲, 李佳镁, 阮晓芬. 证据图谱在护理学领域的应用进展[J]. 中华护理杂志, 2024, 59(8): 1021-1025.
[5]	房钰, 郝媛媛, 张晨, 董莹, 吴赢鑫, 姜桂春. 癌症患者决策疲劳的研究进展及护理启示[J]. 中华护理杂志, 2024, 59(8): 941-946.
[6]	宋晓安, 卢兴泉, 马静, 王亚凡, 王晓华, 任红, 高俊. 新入职护士考核评估管理信息系统的开发与应用[J]. 中华护理杂志, 2024, 59(8): 974-979.
[7]	周樊华, 甘霖, 梅艳丽, 杜芬, 严冶, 熊莉娟. 中西医结合病房患者入院护理评估单的研制及信效度检验[J]. 中华护理杂志, 2024, 59(7): 802-807.
[8]	霍晓鹏, 张红梅, 赖小星, 郑丹萍, 叶雅雯, 张馨月, 赵亚芳, 吴欣娟. 专科护士多层次复合型管理方案的构建与实践[J]. 中华护理杂志, 2024, 59(7): 842-847.
[9]	段思雨, 侯铭, 丁敏, 孙瑶, 李萍. 低年资护士工作成长现状及影响因素分析[J]. 中华护理杂志, 2024, 59(7): 848-853.
[10]	叶磊, 夏广惠, 陈方梅, 田宇燕, 祁玮. 虚拟现实技术在癌症相关认知障碍患者中应用的范围综述[J]. 中华护理杂志, 2024, 59(7): 882-889.
[11]	熊桃, 谭雪梅, 罗静, 李阳, 郑予希, 李奉玲, 魏雪梅, 崔丽君, 罗澜峻. 脑卒中患者康复动机评估工具的研究进展[J]. 中华护理杂志, 2024, 59(7): 890-896.
[12]	陈钰妹, 赵惠芬, 赵晓珊, 赵梅晶, 彭玉美, 沈丽琴. 妊娠期糖尿病孕妇风险感知量表的编制及信效度检验[J]. 中华护理杂志, 2024, 59(6): 677-684.
[13]	颜钰, 龚姝, 段棣飞, 马登艳. 知识图谱在慢性病患者饮食管理中的应用进展[J]. 中华护理杂志, 2024, 59(6): 753-757.
[14]	邓艺帆, 王建宁, 彭梦婷, 洪杜. 决策辅助工具在失智症患者照护中应用的范围综述[J]. 中华护理杂志, 2024, 59(6): 758-763.
[15]	郭俊晨, 许湘华, 刘超毅, 王英, 刘君清照, 谌永毅, 朱丽辉, 肖亚洲, 刘阳. 安宁疗护患者远程居家照护方案的构建及初步应用[J]. 中华护理杂志, 2024, 59(5): 517-525.