慢性阻塞性肺疾病患者健康管理旅程地图的研究

doi:10.3761/j.issn.0254-1769.2026.08.003

中华护理杂志 ›› 2026, Vol. 61 ›› Issue (8): 1028-1035.DOI: 10.3761/j.issn.0254-1769.2026.08.003

• 慢性阻塞性肺疾病护理专题 • 上一篇下一篇

慢性阻塞性肺疾病患者健康管理旅程地图的研究

孙雪英¹(), 李君², 李玉峰³, 崔学芬², 李东盼², 程兆晶¹, 李响¹, 孙秀杰⁴^,^*()

¹ 青岛大学护理学院青岛市 266071
² 山东省青岛市市立医院呼吸与危重症医学二科青岛市 266011
³ 山东省青岛市市立医院骨关节科青岛市 266011
⁴ 山东省青岛市市立医院护理部青岛市 266011

收稿日期:2025-10-17 出版日期:2026-04-20 发布日期:2026-04-22
*通讯作者: 孙秀杰，E-mail：xjsun5818@qq.com
作者简介:孙雪英：女，本科（硕士在读），护士，E-mail：19861403082@163.com
第一联系人：作者贡献声明
孙雪英：数据处理、论文撰写；李君、李玉峰：研究设计、协助调查及质量控制；崔学芬、李东盼、程兆晶、李响：实施研究、数据收集与整理；孙秀杰：研究设计与指导、论文审阅及修改
基金资助:
青岛市医院协会管理研究项目(QYGL20230010)

Health management for patients with chronic obstructive pulmonary disease：mapping the patient journey

SUN Xueying¹(), LI Jun², LI Yufeng³, CUI Xuefen², LI Dongpan², CHENG Zhaojing¹, LI Xiang¹, SUN Xiujie⁴^,^*()

¹ School of Nursing， University of Qingdao， Qingdao 266071， China
² Department of Pulmonary and Critical Care Medicine Ⅱ， Qingdao Municipal Hospital， Qingdao 266011， China
³ Department of Orthopedics and Joint Surgery， Qingdao Municipal Hospital， Qingdao 266011， China
⁴ Nursing Department， Qingdao Municipal Hospital， Qingdao 266011， China

Received:2025-10-17 Online:2026-04-20 Published:2026-04-22
* Corresponding author: SUN Xiujie，E-mail：xjsun5818@qq.com
Funding program:
Qingdao Hospital Association Management Research Project(QYGL20230010)

摘要/Abstract

摘要：

目的通过患者旅程地图分析，明确慢性阻塞性肺疾病患者在健康管理各阶段的具体需求，为提升患者全周期健康管理质量提供支持。方法采用描述性质性研究方法，于2025年5—7月便利选取青岛市某三级甲等综合医院住院的11例慢性阻塞性肺疾病患者进行半结构式访谈，采用内容分析法分析资料并绘制患者健康管理旅程地图。结果按诊疗时间轴，从筛查诊断、住院治疗、居家康复3个时期分别提取出任务、情绪和痛点3个维度的23个主题。结论慢性阻塞性肺疾病患者的健康管理需求复杂多变，其早期症状识别、急性症状处理、自我管理需求明显，未来可根据旅程地图制订相应的干预策略，为患者提供精准的健康照护支持。

关键词: 肺疾病，慢性阻塞性, 旅程地图, 健康管理, 慢性病护理

Abstract:

Objective By analyzing patient journey maps，this study aims to clarify the specific needs of chronic obstructive pulmonary disease（COPD） patients at each stage of health management，thereby providing support for enhancing the quality of whole-cycle health management. Methods Using descriptive qualitative research methods，we conducted semi-structured interviews with 11 patients diagnosed with chronic obstructive pulmonary disease who were hospitalized in a tertiary general hospital in Qingdao City，China，from May to July 2025，and analyzed the data and drew the patient journey maps by content analysis. Results Along the diagnosis-treatment timeline，a total of 23 themes across 3 dimensions—namely tasks，emotions，and pain points—were extracted from the 3 phases：screening and diagnosis，hospitalization treatment，and home-based rehabilitation. Conclusion The health management needs of patients with chronic obstructive pulmonary disease are complex and variable，with prominent demands for early symptom identification，acute symptom management，and self-management support. In the future，corresponding intervention strategies can be developed based on the patient journey maps to provide precise healthcare support for patients.

Key words: Pulmonary Disease，Chronic Obstructive, Journey Map, Health Management, Chronic Disease Care

孙雪英, 李君, 李玉峰, 崔学芬, 李东盼, 程兆晶, 李响, 孙秀杰. 慢性阻塞性肺疾病患者健康管理旅程地图的研究[J]. 中华护理杂志, 2026, 61(8): 1028-1035.

SUN Xueying, LI Jun, LI Yufeng, CUI Xuefen, LI Dongpan, CHENG Zhaojing, LI Xiang, SUN Xiujie. Health management for patients with chronic obstructive pulmonary disease：mapping the patient journey[J]. Chinese Journal of Nursing, 2026, 61(8): 1028-1035.

图/表 2

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慢性阻塞性肺疾病患者健康管理旅程地图的研究

Health management for patients with chronic obstructive pulmonary disease：mapping the patient journey

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