关键词: 肺疾病, 慢性阻塞性, 自我控制, 疾病管理, 质性研究, 护理, 体验

Abstract:

Objective To understand the real-life experiences of patients with chronic obstructive pulmonary disease（COPD） in disease self-control and to inform clinical nursing practice. Methods From March to May 2024，a phenomenological research method was used to conduct semi-structured interviews with 15 patients with COPD who were either outpatients or inpatients in a tertiary hospital in Suzhou City，China，and the data were analyzed using the Colaizzi 7-step analysis method. Results Totally 3 themes and 9 sub-themes were extracted，namely self-control challenges due to cognitive deficits（lack of knowledge leads to ambiguous control direction；cognitive bias hinders control strategy formulation；negative perception leads to control avoidance），weakening trend of self-control behaviors（decision-making conflicts between immediate indulgence and delayed gratification；lack of reinforcement mechanisms leads to psycho-emotional depletion；external temptations lead the self to imitate bad behavior），urgent need for multiple supports to help with self-control（the desire for continuity and stability of family support，the need for professionalism and accuracy of healthcare guidance，and the expectation for rationality and matching of resource allocation）. Conclusion Healthcare professionals should pay attention to the real experience of COPD patients in the process of disease self-control，help them effectively deal with the challenges of disease self-control，strengthen self-control behaviors，and satisfy their diversified needs by strengthening the support of families，professionals，and the community to improve poor outcomes and reduce the cost of healthcare services.

Key words: Pulmonary Disease, Chronic Obstructive, Self-Control, Disease Management, Qualitative Research, Nursing Care, Experience