中华护理杂志 ›› 2023, Vol. 58 ›› Issue (9): 1127-1134.DOI: 10.3761/j.issn.0254-1769.2023.09.015
张若林(), 楼妍(), 吴婉英, 王春兰, 傅丽英, 周瑶, 洪美容, 徐毓露, 冯欣悦
收稿日期:
2022-06-27
出版日期:
2023-05-10
发布日期:
2023-05-10
通讯作者:
楼妍,E-mail:lygreen0924@hotmail.com作者简介:
张若林:女,本科(硕士在读),E-mail:zhangruolin975@163.com
基金资助:
ZHANG Ruolin(), LOU Yan(), WU Wanying, WANG Chunlan, FU Liying, ZHOU Yao, HONG Meirong, XU Yulu, FENG Xinyue
Received:
2022-06-27
Online:
2023-05-10
Published:
2023-05-10
摘要:
目的 系统评价癌症患者照顾者角色过渡体验,明确其支持需求,为后续制订针对性干预措施提供依据。方法 计算机检索PubMed、Cochrane Library、Embase、EBSCO、Web of Science、中国知网、维普数据库、万方数据库、中国生物医学文献数据库中收录的有关癌症患者照顾者角色过渡体验的质性研究,检索时限为建库至2022年3月。采用澳大利亚乔安娜布里格斯研究所循证卫生保健中心质性研究质量评价标准进行文献质量评价,采用汇集性整合的方法进行结果整合。结果 共纳入14篇研究,提炼出65个研究结果,将相近的结果归纳组合成9个新的类别,综合得到3个整合结果:癌症诊断过程漫长复杂,诊断告知方面存在很大挑战,初期照顾者应对困难;采取不同的应对策略帮助患者更好地应对疾病带来的挑战,以期逐渐适应照顾者角色;通过照顾经历获得新衍生的意义和角色成长。结论 医护工作者应关注癌症患者照顾者向新角色过渡的真实体验,可根据照顾者角色特点进行针对性的能力培养及心理干预,促进其角色成功过渡,为后期拟订以家庭为中心的过渡护理计划提供参考依据。
张若林, 楼妍, 吴婉英, 王春兰, 傅丽英, 周瑶, 洪美容, 徐毓露, 冯欣悦. 癌症患者照顾者角色过渡体验质性研究的Meta整合[J]. 中华护理杂志, 2023, 58(9): 1127-1134.
ZHANG Ruolin, LOU Yan, WU Wanying, WANG Chunlan, FU Liying, ZHOU Yao, HONG Meirong, XU Yulu, FENG Xinyue. Meta integration of qualitative research on role transition experience of caregivers of cancer patients[J]. Chinese Journal of Nursing, 2023, 58(9): 1127-1134.
[1] |
Sun V, Raz DJ, Kim JY. Caring for the informal cancer caregiver[J]. Curr Opin Support Palliat Care, 2019, 13(3):238-242.
DOI URL |
[2] |
王瑞博, 董诗奇, 崔盼盼, 等. 癌症患者家庭照顾者负担评估工具的研究进展[J]. 中华护理杂志, 2021, 56(10):1584-1589.
DOI |
Wang RB, Dong SQ, Cui PP, et al. Research progress of assessment tools for family caregiver burden of cancer patients:a literature review[J]. Chin J Nurs, 2021, 56(10):1584-1589.
DOI |
|
[3] | Allen VL, van de Vliert E. Role transitions:explorations and explanations[M]. Boston, MA: Springer US, 1984. |
[4] |
Kay B. Understanding the experience of caregivers:a focus on transitions[J]. Semin Oncol Nurs, 2010, 26(4):243-258.
DOI URL |
[5] |
Litzelman K, Reblin M, McDowell HE, et al. Trajectories of social resource use among informal lung cancer caregivers[J]. Cancer, 2020, 126(2):425-431.
DOI PMID |
[6] | 胡雁. 循证护理学[M]. 北京: 人民卫生出版社, 2012:3759-3763. |
Hu Y. Evidence-based nursing[M]. Beijing: People’s Medical Pub-lishing House, 2012:3759-3763. | |
[7] | 李心钰, 周洁, 郑蔚, 等. 乳腺癌患者全程照顾者不同时期照护体验的质性研究[J]. 国际医药卫生导报, 2021, 27(24):3759-3763. |
Li XY, Zhou J, Zheng W, et al. Qualitative study on the care experiences of caregivers of breast cancer patients at different stages[J]. Int Med Health Guid News, 2021, 27(24):3759-3763. | |
[8] |
Andreassen S, Randers I, Näslund E, et al. Family members’ experiences,information needs and information seeking in relation to living with a patient with oesophageal cancer[J]. Eur J Cancer Care (Engl), 2005, 14(5):426-434.
DOI URL |
[9] |
Raveis VH, Pretter S. Existential plight of adult daughters following their mother’s breast cancer diagnosis[J]. Psycho-Oncology, 2005, 14(1):49-60.
DOI URL |
[10] |
Lobb EA, Halkett GKB, Nowak AK. Patient and caregiver perceptions of communication of prognosis in high grade glioma[J]. J Neurooncol, 2011, 104(1):315-322.
DOI URL |
[11] |
Olson RE. Managing hope,denial or temporal anomie? Informal cancer carers’ accounts of spouses’ cancer diagnoses[J]. Soc Sci Med, 2011, 73(6):904-911.
DOI URL |
[12] |
Williams AL, Bakitas M. Cancer family caregivers:a new direction for interventions[J]. J Palliat Med, 2012, 15(7):775-783.
DOI URL |
[13] |
Asiedu GB, Eustace RW, Eton DT, et al. Coping with colorectal cancer:a qualitative exploration with patients and their family members[J]. Fam Pract, 2014, 31(5):598-606.
DOI URL |
[14] |
Piil K, Juhler M, Jakobsen J, et al. Daily life experiences of patients with a high-grade glioma and their caregivers:a longitudinal exploration of rehabilitation and supportive care needs[J]. J Neurosci Nurs, 2015, 47(5):271-284.
DOI URL |
[15] |
Hashemi-Ghasemabadi M, Taleghani F, Yousefy A, et al. Transition to the new role of caregiving for families of patients with breast cancer:a qualitative descriptive exploratory study[J]. Support Care Cancer, 2016, 24(3):1269-1276.
DOI PMID |
[16] |
Stilos K, Fitch M, Nolen AE, et al. Exploration of families’ experiences caring for loved ones with advanced ovarian cancer[J]. J Hosp Palliat Nurs, 2018, 20(5):464-470.
DOI PMID |
[17] |
Boamah Mensah AB, Adamu B, Mensah KB, et al. Exploring the social stressors and resources of husbands of women dia-gnosed with advanced breast cancer in their role as primary caregivers in Kumasi,Ghana[J]. Support Care Cancer, 2021, 29(5):2335-2345.
DOI |
[18] |
Kusi G, Boamah Mensah AB, Boamah Mensah K, et al. Care-giving motivations and experiences among family caregivers of patients living with advanced breast cancer in Ghana[J]. PLoS One, 2020, 15(3):e0229683.
DOI URL |
[19] |
Taleghani F, Ehsani M, Farzi S, et al. Challenges to family care-givers in caring for gastric cancer patients from perspectives of family caregivers,patients,and healthcare providers:a qualitative study[J]. Indian J Palliat Care, 2021, 27(4):521-529.
DOI PMID |
[20] |
Taylor J, Fradgley E, Clinton-Mcharg T, et al. What are the sour-ces of distress in a range of cancer caregivers? A qualitative study[J]. Support Care Cancer, 2021, 29(5):2443-2453.
DOI |
[21] |
Yung J, Takemoto E, Cone J, et al. Change in 9/11-related post-traumatic stress symptoms following cancer diagnosis[J]. Psychooncology, 2022, 31(5):717-724.
DOI URL |
[22] |
Kristanti MS, Effendy C, Utarini A, et al. The experience of family caregivers of patients with cancer in an Asian country:a grounded theory approach[J]. Palliat Med, 2019, 33(6):676-684.
DOI PMID |
[23] |
Tolbert E, Bowie J, Snyder C, et al. A qualitative exploration of the experiences,needs,and roles of caregivers during and after cancer treatment:“That’s what I say. I’m a relative survivor”[J]. J Cancer Surviv, 2018, 12(1):134-144.
DOI URL |
[24] |
Rodrigues RL, Schneider F, Kalinke LP, et al. Clinical outcomes of patient navigation performed by nurses in the oncology setting:an integrative review[J]. Rev Bras Enferm, 2021, 74(2):e20190804.
DOI URL |
[25] |
潘明月, 赵佳鑫, 黄海群, 等. 网络化认知行为疗法在乳腺癌患者中的研究进展[J]. 中华护理杂志, 2022, 57(3):363-367.
DOI |
Pan MY, Zhao JX, Huang HQ, et al. Research progress of Internet-based cognitive behavioral therapy in breast cancer patients[J]. Chin J Nurs, 2022, 57(3):363-367.
DOI |
|
[26] |
Dombestein H, Norheim A, Lunde Husebø AM. Understanding informal caregivers’ motivation from the perspective of self-determination theory:an integrative review[J]. Scand J Caring Sci, 2020, 34(2):267-279.
DOI PMID |
[27] |
Haan MM, Olthuis G, van Gurp JLP. Feeling called to care:a qualitative interview study on normativity in family caregivers’ experiences in Dutch home settings in a palliative care context[J]. BMC Palliat Care, 2021, 20(1):1-15.
DOI |
[28] |
Zarzycki M, Morrison V. Getting back or giving back:understanding caregiver motivations and willingness to provide informal care[J]. Health Psychol Behav Med, 2021, 9(1):636-661.
DOI PMID |
[29] | Meleis AI, Sawyer LM, Im EO, et al. Experiencing transitions:an emerging middle-range theory[J]. ANS Adv Nurs Sci, 2000, 23(1):12-28. |
[30] |
Ketcher D, Otto AK, Vadaparampil ST, et al. The psychosocial impact of spouse-caregiver chronic health conditions and personal history of cancer on well-being in patients with advanced cancer and their caregivers[J]. J Pain Symptom Manage, 2021, 62(2):303-311.
DOI URL |
[31] |
Tiete J, Delvaux N, Liénard A, et al. Efficacy of a dyadic intervention to improve communication between patients with cancer and their caregivers:a randomized pilot trial[J]. Patient Educ Couns, 2021, 104(3):563-570.
DOI URL |
[32] |
Yu YS, Sherman KA. Communication avoidance,coping and psy-chological distress of women with breast cancer[J]. J Behav Med, 2015, 38(3):565-577.
DOI URL |
[33] |
王励飞, 孔骞, 米元元, 等. 晚期癌症患者照顾者心理体验质性研究的Meta整合[J]. 中华护理杂志, 2020, 55(6):856-861.
DOI |
Wang LF, Kong Q, Mi YY, et al. The psychological experience of caregivers of patients with advanced cancer:a meta-synthesis of qualitative studies[J]. Chin J Nurs, 2020, 55(6):856-861. | |
[34] |
Fu F, Chen YY, Li QY, et al. Varieties of hope among family caregivers of patients with lymphoma[J]. Qual Health Res, 2018, 28(13):2048-2058.
DOI PMID |
[35] |
林琪, 曾莉, 任君红. ICU患者家属创伤后成长体验的质性研究[J]. 中华护理杂志, 2021, 56(3):347-353.
DOI |
Lin Q, Zeng L, Ren JH. A qualitative research on post-traumatic growth experience of family members of ICU patients in neurosurgery[J]. Chin J Nurs, 2021, 56(3):347-353.
DOI |
[1] | 陈丽霞, 施慧, 朱德政, 曾莹. 成人低血糖恐惧评估工具的质量评价[J]. 中华护理杂志, 2024, 59(9): 1072-1079. |
[2] | 谢玉生, 黄蓉蓉, 赵雪, 马蕾, 胡雁, 杨倩, 王乾沙, 明玥. 成人重度烧伤患者肠内肠外营养的证据总结[J]. 中华护理杂志, 2024, 59(9): 1106-1113. |
[3] | 顾培培, 曾妃, 兰美娟, 梁江淑渊, 郭璐瑶, 蔡凌云, 朱岩, 郭鸽. 肺移植患者衰弱影响因素的Meta分析[J]. 中华护理杂志, 2024, 59(9): 1122-1129. |
[4] | 董蕾, 刘佳, 赵琴, 赵洪圉, 朱肖. 脑卒中患者虚拟现实康复体验质性研究的Meta整合[J]. 中华护理杂志, 2024, 59(9): 1130-1137. |
[5] | 张倩, 高文娟, 韩静. 乳腺癌患者的青少年子女心理体验质性研究的Meta整合[J]. 中华护理杂志, 2024, 59(8): 1005-1011. |
[6] | 尤朝香, 贾梦滢, 李霜, 陈莉莉, 敬文丹, 寇红艳. 直肠癌患者经腹腔镜保肛术后的症状群轨迹及影响因素研究[J]. 中华护理杂志, 2024, 59(8): 922-929. |
[7] | 高超越, 李敏, 张银珠, 张培莉, 侯晓雅, 程伊霞. 肿瘤术后辅助化疗患者特殊用途配方食品营养管理的最佳证据总结[J]. 中华护理杂志, 2024, 59(8): 934-940. |
[8] | 赵鑫淼, 单思雨, 白茹雪, 程逸帆, 夏春玲. 双胎孕产妇健康教育与心理社会需求的质性研究[J]. 中华护理杂志, 2024, 59(8): 960-966. |
[9] | 李卫涛, 王金艳, 吴慧玲, 张菲, 杨长捷, 吴丽萍. 胎儿异常引产产妇创伤后成长历程的质性研究[J]. 中华护理杂志, 2024, 59(8): 967-973. |
[10] | 郭凡, 王敏, 顾肖, 周英凤, 蒋玲, 黄琴, 程念开, 陈怡雷. 俯卧位通气患者眼部并发症护理的最佳证据总结[J]. 中华护理杂志, 2024, 59(8): 987-995. |
[11] | 陶伏莹, 石秦川, 张盼盼, 蔡如意, 徐倩, 蒋佳男, 付东英, 黄晓燕, 田莹莹. NICU患儿外周静脉输液外渗预防与处理的最佳证据总结[J]. 中华护理杂志, 2024, 59(8): 996-1004. |
[12] | 黄奕敏, 黄丽君, 翁丹婷, 庄平, 谭益冰. 脑卒中肢体功能障碍患者恢复期中医康复护理的最佳证据总结[J]. 中华护理杂志, 2024, 59(7): 812-819. |
[13] | 刘美子, 安然, 吴子童, 高菲, 陈文凤. 头颈部肿瘤患者核心症状及症状群的网络分析与护理对策[J]. 中华护理杂志, 2024, 59(7): 828-834. |
[14] | 林雯雯, 徐梅, 夏云, 江宁, 莫瑜威, 王莉, 宁丽. 癌症患者自我管理行为转变体验质性研究的Meta整合[J]. 中华护理杂志, 2024, 59(7): 865-872. |
[15] | 王欢, 李圣娟, 李晨, 何园园, 谢玉瑶, 郑冬香. 康复期脑卒中失语症患者疾病体验及需求的Meta整合[J]. 中华护理杂志, 2024, 59(7): 873-881. |
阅读次数 | ||||||
全文 |
|
|||||
摘要 |
|
|||||