共享决策在严重精神障碍患者中的应用进展

doi:10.3761/j.issn.0254-1769.2022.18.005

摘要/Abstract

摘要：

共享决策被视为“以患者为中心的护理”的基本组成部分,近十年引起国外精神卫生领域的广泛关注。共享决策以患者需求为重点,加强医患双方信息交流,并提高患者在决策中的地位。共享决策可改善医疗保健的质量,提高患者满意度、治疗依从性和结局。该文综述共享决策在严重精神障碍患者中应用的概念、模型、内容、影响因素、效果并提出在该群体中实施共享决策的建议,以期为共享决策在国内严重精神障碍患者中应用提供参考。

关键词: 共享决策, 严重精神障碍, 精神分裂症, 双相障碍, 综述, 精神病护理学

Abstract:

Shared decision-making is considered as a fundamental part of "patient-centered care",which has raised great interest in mental healthcare abroad over the last decade. Shared decision-making,focusing on the needs of patients,strengthens doctor-patient information exchange and enhances patients’ status in decision-making. Shared decision-making can raise the quality of health care service and patients’ satisfaction,treatment compliance,and outcome. This article reviews the concept,model,content,influencing factors,and effects of shared decision-making in patients with severe mental disorders,and puts forward suggestions on the implementation of shared decision-making in this group of patients,to provide references for the application of shared decision-making for patients with severe mental disorders in China.

Key words: Shared Decision-Making, Severe Mental Disorders, Schizophrenia, Bipolar Disorder, Review, Psychiatric Nursin

吴韬, 方媛媛, 钱瑞莲. 共享决策在严重精神障碍患者中的应用进展[J]. 中华护理杂志, 2022, 57(18): 2205-2211.

WU Tao, FANG Yuanyuan, QIAN Ruilian. Application progress of shared decision-making for patients with severe mental disorders[J]. Chinese Journal of Nursing, 2022, 57(18): 2205-2211.

参考文献 53

[1]	曾繁丽, 刘鹏程, 蒋鹏, 等. 1218例严重精神障碍患者监护人照顾负担现状及影响因素的调查分析[J]. 中华护理杂志, 2019, 54(1):95-99.
	Zeng FL, Liu PC, Jiang P, et al. Investigation and analysis on the factors related to the nursing burden of caregivers of 1218 patients with severe mental disorders[J]. Chin J Nurs, 2019, 54(1):95-99.
[2]	中华人民共和国精神卫生法[M]. 北京: 中国法制出版社, 2012:26.
	Mental Health Law of the People’s Republic of China[M]. Beijing: Law Press, 2012:26.
[3]	Abdellati KE, de Picker L, Morrens M. Antipsychotic treatment failure:a systematic review on risk factors and interventions for treatment adherence in psychosis[J]. Front Neurosci, 2020, 14:531763. DOI URL
[4]	World Health Organization. WHO QualityRights Tool Kit:assessing and improving quality and human rights in mental health and social care facilities[EB/OL]. (2012-06-12)[2021-09-23]. https://apps.who.int/iris/handle/10665/70927.
[5]	National Institute for Health and Care Excellence. Shared decision making[EB/OL]. (2021-06-17)[2021-10-12]. https://www.nice.org.uk/guidance/ng197/chapter/Context.
[6]	王燕, 王小媛, 石立元, 等. 乳腺癌乳房再造手术患者决策辅助方案的构建及应用[J]. 中华护理杂志, 2020, 55(1):90-95. DOI
	Wang Y, Wang XY, Shi LY, et al. Development and application of decision aid of breast reconstruction surgery among breast cancer patients[J]. Chin J Nurs, 2020, 55(1):90-95.
[7]	王露, 陈英, 崔金锐, 等. 直肠癌术式患者决策辅助方案的制订及应用研究[J]. 中华护理杂志, 2019, 54(3):338-343. DOI
	Wang L, Chen Y, Cui JR, et al. Development of rectal cancer surgery decision aid and its application in decision making among rectal cancer patients[J]. Chin J Nurs, 2019, 54(3):338-343.
[8]	张舵, 李碧稳, 朱利思, 等. 共享决策应用于冠心病患者中的思考[J]. 医学与哲学, 2021, 42(20):17-21.
	Zhang D, Li BW, Zhu LS, et al. Thinking on the application of shared decision-making in patients with coronary heart disease[J]. Med Philos, 2021, 42(20):17-21.
[9]	曹琴琴, 张宗侠, 王西鸽, 等. 共享决策在急诊心血管疾病护理中的应用进展[J]. 中华护理杂志, 2019, 54(4):595-598. DOI
	Cao QQ, Zhang ZX, Wang XG, et al. Shared decision making in emergency nursing of cardiovascular disease:a review[J]. Chin J Nurs, 2019, 54(4):595-598.
[10]	Zisman-Ilani Y, Barnett E, Harik J, et al. Expanding the concept of shared decision making for mental health:systematic search and scoping review of interventions[J]. Ment Heal Rev J, 2017, 22(3):191-213.
[11]	Aoki Y. Shared decision making for adults with severe mental illness:a concept analysis[J]. Jpn J Nurs Sci, 2020, 17(4):e12365.
[12]	Deegan PE. A web application to support recovery and shared decision making in psychiatric medication clinics[J]. Psychiatr Rehabil J, 2010, 34(1):23-28. DOI URL
[13]	Hamann J, Heres S. Adapting shared decision making for individuals with severe mental illness[J]. Psychiatr Serv, 2014, 65(12):1483-1486. DOI URL
[14]	Paudel S, Sharma N, Joshi A, et al. Development of a shared decision making model in a community mental health center[J]. Community Ment Health J, 2018, 54(1):1-6. DOI URL
[15]	Gurtner C, Schols JMGA, Lohrmann C, et al. Conceptual understanding and applicability of shared decision-making in psychiatric care:an integrative review[J]. J Psychiatr Ment Health Nurs, 2021, 28(4):531-548. DOI URL
[16]	International Patient Decision Aid StandardsIPDAScollaboration. What are patient decision aids?[EB/OL]. (2017-09-11)[2021-09-13]. http://ipdas.ohri.ca/what.html.
[17]	Hamann J, Langer B, Winkler V, et al. Shared decision making for in-patients with schizophrenia[J]. Acta Psychiatr Scand, 2006, 114(4):265-273. DOI URL
[18]	Zisman-Ilani Y, Shern D, Deegan P, et al. Continue,adjust,or stop antipsychotic medication:developing and user testing an encounter decision aid for people with first-episode and long-term psychosis[J]. BMC Psychiatry, 2018, 18(1):142. DOI PMID
[19]	van der Krieke L, Emerencia AC, Boonstra N, et al. A web-based tool to support shared decision making for people with a psychotic disorder:randomized controlled trial and process evaluation[J]. J Med Internet Res, 2013, 15(10):e216. DOI URL
[20]	Vitger T, Austin SF, Petersen L, et al. The momentum trial:the efficacy of using a smartphone application to promote patient activation and support shared decision making in people with a diagnosis of schizophrenia in outpatient treatment settings:a randomized controlled single-blind trial[J]. BMC Psychiatry, 2019, 19(1):185. DOI URL
[21]	Fisher A, Sharpe L, Anderson J, et al. Development and pilot of a decision-aid for patients with bipolar Ⅱ disorder and their families making decisions about treatment options to prevent relapse[J]. PLoS One, 2018, 13(7):e0200490. DOI URL
[22]	Fisher A, Keast R, Costa D, et al. Improving treatment decision-making in bipolar Ⅱ disorder:a phase Ⅱ randomised controlled trial of an online patient decision-aid[J]. BMC Psychiatry, 2020, 20(1):447. DOI PMID
[23]	Hamann J, Parchmann A, Sassenberg N, et al. Training patients with schizophrenia to share decisions with their psychiatrists:a randomized-controlled trial[J]. Soc Psychiatry Psychiatr Epidemiol, 2017, 52(2):175-182. DOI URL
[24]	An SY, Kim GH, Kim JY. Effectiveness of shared decision-making training program in people with schizophrenia in south Korea[J]. Perspect Psychiatr Care, 2017, 53(2):111-118. DOI URL
[25]	Ishii M, Okumura Y, Sugiyama N, et al. Feasibility and efficacy of shared decision making for first-admission schizophrenia:a randomized clinical trial[J]. BMC Psychiatry, 2017, 17(1):52. DOI PMID
[26]	Hamann J, Holzhüter F, Blakaj S, et al. Implementing shared decision-making on acute psychiatric wards:a cluster-randomized trial with inpatients suffering from schizophrenia(SDM-PLUS)[J]. Epidemiol Psychiatr Sci, 2020, 29:e137. DOI URL
[27]	McCabe R, John P, Dooley J, et al. Training to enhance psychiatrist communication with patients with psychosis(TEMPO):cluster randomised controlled trial[J]. Br J Psychiatry, 2016, 209(6):517-524. DOI PMID
[28]	Becher S, Holzhüter F, Heres S, et al. Barriers and facilitators of shared decision making in acutely ill inpatients with schizophrenia-qualitative findings from the intervention group of a randomised-controlled trial[J]. Health Expect, 2021, 24(5):1737-1746. DOI URL
[29]	Carrotte ER, Hartup ME, Lee-Bates B, et al. “I think that everybody should be involved”:what informs experiences of shared decision-making in supporting people living with schizophrenia spectrum disorders?[J]. Patient Educ Couns, 2021, 104(7):1583-1590. DOI PMID
[30]	Luciano M, Sampogna G, del Vecchio V, et al. When does shared decision making is adopted in psychiatric clinical practice? Results from a European multicentric study[J]. Eur Arch Psychiatry Clin Neurosci, 2020, 270(6):645-653. DOI URL
[31]	Larkin A, Hutton P. Systematic review and meta-analysis of factors that help or hinder treatment decision-making capacity in psychosis[J]. Br J Psychiatry, 2017, 211(4):205-215. DOI URL
[32]	Spencer BWJ, Gergel T, Hotopf M, et al. Unwell in hospital but not incapable:cross-sectional study on the dissociation of decision-making capacity for treatment and research in in-patients with schizophrenia and related psychoses[J]. Br J Psychiatry, 2018, 213(2):484-489. DOI URL
[33]	Ismail MA, Midin M. Shared decision-making and role preference among patients with schizophrenia in Malaysia:a cross-sectional study[J]. Front Psychiatry, 2021, 12:680800. DOI URL
[34]	Verwijmeren D, Grootens KP. Shared decision making in pharmacotherapy decisions,perceived by patients with bipolar disorder[J]. Int J Bipolar Disord, 2018, 6(1):21. DOI PMID
[35]	Huang CM, Plummer V, Wang Y, et al. I am the person who knows myself best:perception on shared decision-making among hospitalized people diagnosed with schizophrenia in China[J]. Int J Ment Health Nurs, 2020, 29(5):846-855. DOI URL
[36]	Morán-Sánchez I, Gómez-Vallés P, Bernal-López MÁ, et al. Shared decision-making in outpatients with mental disorders:patients’ preferences and associated factors[J]. J Eval Clin Pract, 2019, 25(6):1200-1209. DOI PMID
[37]	Morán-Sánchez I, Bernal-López MA, Pérez-Cárceles MD. Compulsory admissions and preferences in decision-making in patients with psychotic and bipolar disorders[J]. Soc Psychiatry Psychiatr Epidemiol, 2020, 55(5):571-580. DOI URL
[38]	Morán-Sánchez I, de Los ángeles Bernal-López M, Salmerón D, et al. Correlates of preferring a passive role in decision-making among patients with schizophrenia or bipolar disorder[J]. Patient Educ Couns, 2021, 104(5):1125-1131. DOI PMID
[39]	Huang CM, Plummer V, Lam L, et al. Shared decision-making in serious mental illness:a comparative study[J]. Patient Educ Couns, 2020, 103(8):1637-1644. DOI URL
[40]	Huang CM, Lam L, Plummer V, et al. Feeling responsible:family caregivers’ attitudes and experiences of shared decision-making regarding people diagnosed with schizophrenia:a qualitative study[J]. Patient Educ Couns, 2021, 104(7):1553-1559. DOI URL
[41]	Huang CM, Lam L, Zhong YP, et al. Chinese mental health professionals’ perceptions of shared decision-making regarding people diagnosed with schizophrenia:a qualitative study[J]. Int J Ment Health Nurs, 2021, 30(1):189-199. DOI URL
[42]	Kerner B, Crisanti AS, DeShaw JL, et al. Preferences of information dissemination on treatment for bipolar disorder:patient-centered focus group study[J]. JMIR Ment Health, 2019, 6(6):e12848. DOI URL
[43]	Lovell K, Bee P, Brooks H, et al. Embedding shared decision-making in the care of patients with severe and enduring mental health problems:the EQUIP pragmatic cluster randomised trial[J]. PLoS One, 2018, 13(8):e0201533. DOI URL
[44]	Haugom EW, Stensrud B, Beston G, et al. Mental health professionals’ experiences with shared decision-making for patients with psychotic disorders:a qualitative study[J]. BMC Health Serv Res, 2020, 20(1):1093. DOI PMID
[45]	Stovell D, Morrison AP, Panayiotou M, et al. Shared treatment decision-making and empowerment-related outcomes in psychosis:systematic review and meta-analysis[J]. Br J Psychiatry, 2016, 209(1):23-28. DOI PMID
[46]	Finnerty MT, Layman DM, Chen QX, et al. Use of a web-based shared decision-making program:impact on ongoing treatment engagement and antipsychotic adherence[J]. Psychiatr Serv, 2018, 69(12):1215-1221. DOI URL
[47]	Corrigan PW, Lee EJ. Family-centered decision making for east Asian adults with mental illness[J]. Psychiatr Serv, 2021, 72(1):114-116. DOI URL
[48]	Pons EV, Salvador-Carulla L, Calcedo-Barba A, et al. The capacity of schizophrenia and bipolar disorder individuals to make autonomous decisions about pharmacological treatments for their illness in real life:a scoping review[J]. Health Sci Rep, 2020, 3(3):e179.
[49]	Calcedo-Barba A, Fructuoso A, Martinez-Raga J, et al. A meta-review of literature reviews assessing the capacity of patients with severe mental disorders to make decisions about their healthcare[J]. BMC Psychiatry, 2020, 20(1):339. DOI PMID
[50]	Alguera-Lara V, Dowsey MM, Ride J, et al. Shared decision making in mental health:the importance for current clinical practice[J]. Australas Psychiatry, 2017, 25(6):578-582. DOI PMID
[51]	Huang CM, Plummer V, Lam L, et al. Perceptions of shared decision-making in severe mental illness:an integrative review[J]. J Psychiatr Ment Health Nurs, 2020, 27(2):103-127. DOI URL
[52]	Wesseldijk-Elferink IJM, Hendriks AW, van den Heuvel SCGH. Shared decision making in a semi-secluded chronic psychiatric ward:the reflective lifeworld experiences of patients with schizophrenia or schizoaffective disorders and nursing staff[J]. Arch Psychiatr Nurs, 2021, 35(5):519-525. DOI URL
[53]	Lamore K, Montalescot L, Untas A. Treatment decision-making in chronic diseases:what are the family members’ roles,needs and attitudes? A systematic review[J]. Patient Educ Couns, 2017, 100(12):2172-2181. DOI URL