中华护理杂志 ›› 2020, Vol. 55 ›› Issue (12): 1864-1870.DOI: 10.3761/j.issn.0254-1769.2020.12.019
收稿日期:2019-12-12
出版日期:2020-12-15
发布日期:2020-12-08
通讯作者:
作者简介:邓志坚:男,本科(硕士在读),主管护师,E-mail:基金资助:
DENG Zhijian(
),CHEN Xiangying,YANG Liu,ZHANG Jianghui,DENG Renli(
)
Received:2019-12-12
Online:2020-12-15
Published:2020-12-08
摘要:
目的 系统整合关于癌症患者及其家属参与预立医疗照护计划(advance care planning,ACP)体验的质性研究,为ACP在癌症患者中的应用和发展提供循证依据。 方法 运用PICo模型构建研究问题和纳入、排除标准;计算机检索Embase、Medline、PsycINFO、CINAHL、Cochrane Library、中国学术期刊全文数据库和中国生物医学文献数据库,检索癌症患者及家属参与ACP体验的质性研究,检索时限为建库至2020年2月。采用乔安娜布里格斯研究所质性研究质量评价工具(2017)对文献进行方法学的质量评价,并运用汇集性Meta整合的方法对结果进行整合。 结果 共纳入8篇文献,提取47个研究发现,并归纳成5个类别和2个研究整合。整合结果一:灵活、个性化的ACP能给患者带来切实的益处;整合结果二:癌症患者及家属在ACP中面临着来自自身、家庭和社会的困难。 结论 ACP是一个复杂的过程,受多种因素的影响,需要多方面人员共同努力才能获得高质量的ACP沟通。
邓志坚,陈相应,杨柳,张江辉,邓仁丽. 癌症患者及家属参与预立医疗照护计划体验质性研究的Meta整合[J]. 中华护理杂志, 2020, 55(12): 1864-1870.
DENG Zhijian,CHEN Xiangying,YANG Liu,ZHANG Jianghui,DENG Renli. The experience of cancer patients and their relatives in advance care planning:a meta-synthesis of qualitative research[J]. Chinese Journal of Nursing, 2020, 55(12): 1864-1870.
| [1] | 饶洁. 终末期癌症患者治疗的现状调查和相关原因探索[D]. 武汉:华中科技大学, 2015. |
| Rao J. To explore the related reasons and current situation of treatments of end-stage cancer patients[D]. Wuhan:Huazhong University of Science and Technology, 2015. | |
| [2] | 周雯, 倪平, 毛靖. 患者临终决策意愿的研究现况[J]. 护理学杂志, 2016,31(1):107-109. |
| Zhou W, Ni P, Mao J. Advances in end-of-life decisions among patients[J]. J Nurs Sci, 2016,31(1):107-109. | |
| [3] | 迟西琴. 论死亡禁忌与死亡教育[J]. 医学与哲学, 2018,39(1):65-67. |
| Chi XQ. Death taboo and death education[J]. Med Philos, 2018,39(1):65-67. | |
| [4] | Sudore RL, Lum HD, You JJ, et al. Defining advance care planning for adults:a consensus definition from a multidisciplinary Delphi panel[J]. J Pain Symptom Manag, 2017, 53(5):821-832.e1. |
| [5] |
Agarwal R, Epstein AS. Advance care planning and end-of-life decision making for patients with cancer[J]. Semin Oncol Nurs, 2018,34(3):316-326.
URL PMID |
| [6] | 王心茹, 绳宇. 预立医疗照护计划在肿瘤患者中的应用进展[J]. 中华护理杂志, 2019,54(2):306-310. |
| Wang XR, Sheng Y. Advance in application of pre-established medical care program in patients with cancer[J]. Chin J Nurs, 2019,54(2):306-310. | |
| [7] |
Deng RL, Duan JZ, Zhang JH, et al. Advance care planning for frail older people in China:a discussion paper[J]. Nurs Ethics, 2019,26(6):1696-1706.
DOI URL PMID |
| [8] | 邓仁丽, 陈柳柳, 史宝欣, 等. 中国文化背景下预立医疗照护计划的研究进展[J]. 中华护理杂志, 2015,50(9):1117-1121. |
| Deng RL, Chen LL, Shi BX, et al. Advance care planning under the background of Chinese culture[J]. Chin J Nurs, 2015,50(9):1117-1121. | |
| [9] | 邓仁丽, 杨柳. 大陆预立医疗照护计划的临床实践[J]. 医学研究与教育, 2019,36(1):46-52. |
| Deng RL, Yang L. Implementation of advance care planning in mainland China[J]. Med Res Educ, 2019,36(1):46-52. | |
| [10] |
Lockwood C, Munn Z, Porritt K. Qualitative research synjournal:methodological guidance for systematic reviewers utilizing Meta-aggregation[J]. Int J Evid Based Healthc, 2015,13(3):179-187.
URL PMID |
| [11] | 黄崇斐, 拜争刚, 吴淑婷, 等. 定性系统评价的撰写方法介绍[J]. 中国循证医学杂志, 2015,15(9):1106-1111. |
| Huang CF, Bai ZG, Wu ST, et al. How to write the qualitative systematic review:an introduction[J]. Chin J Evid-Based Med, 2015,15(9):1106-1111. | |
| [12] | The Joanna Briggs Institute. Criticl appraisal checklist for qua-litative research[EB/OL]. [2020-02-29]. https://joannabriggs.org/ebp/critical_appraisal_tools. |
| [13] |
Miller H, Tan J, Clayton JM, et al. Patient experiences of nurse-facilitated advance care planning in a general practice setting:a qualitative study[J]. BMC Palliat Care, 2019,18(1):1-8.
DOI URL PMID |
| [14] | Ugalde A, O’Callaghan C, Byard C, et al. Does implementation matter if comprehension is lacking? A qualitative investigation into perceptions of advance care planning in people with cancer[J]. Support Care Cancer, 2018,26(11):3765-3771. |
| [15] |
Booker R, Simon J, Biondo P, et al. Perspectives on advance care planning in haematopoietic stem cell transplantation:a qualitative study[J]. Int J Palliat Nurs, 2018,24(3):132-144.
URL PMID |
| [16] |
Robinson CA. “Our best hope is a cure.” Hope in the context of advance care planning[J]. Palliat Support Care, 2012,10(2):75-82.
URL PMID |
| [17] |
Horne G, Seymour J, Payne S. Maintaining integrity in the face of death:a grounded theory to explain the perspectives of people affected by lung cancer about the expression of wishes for end of life care[J]. Int J Nurs Stud, 2012,49(6):718-726.
URL PMID |
| [18] | Barnes KA, Barlow CA, Harrington J, et al. Advance care plan-ning discussions in advanced cancer:analysis of dialogues between patients and care planning mediators[J]. Palliat Sup-port Care, 2011,9(1):73-79. |
| [19] |
Fried TR, O’Leary JR. Using the experiences of bereaved care-givers to inform patient- and caregiver-centered advance care planning[J]. J Gen Intern Med, 2008,23(10):1602-1607.
URL PMID |
| [20] |
Horne G, Seymour J, Shepherd K. Advance care planning for patients with inoperable lung cancer[J]. Int J Palliat Nurs, 2006,12(4):172-178.
DOI URL PMID |
| [21] |
Zhou G, Stoltzfus JC, Houldin AD, et al. Knowledge,attitudes,and practice behaviors of oncology advanced practice nurses regarding advanced care planning for patients with cancer[J]. Oncol Nurs Forum, 2010,37(6):E400-E410.
URL PMID |
| [22] |
Scott IA, Mitchell GK, Reymond EJ, et al. Difficult but necessary conversations:the case for advance care planning[J]. Med J Aust, 2013,199(10):662-666.
DOI URL PMID |
| [23] | 张鹏. 传统生死孝道观与老年临终关怀[J]. 医学与哲学, 2014,35(11):34-36. |
| Zhang P. Traditional view on filial piety of life and death and hospice care for the elderly[J]. Med Philos, 2014,35(11):34-36. | |
| [24] |
De Vleminck A, Pardon K, Beernaert K, et al. Barriers to advance care planning in cancer,heart failure and dementia patients:a focus group study on general practitioners’ views and experiences[J]. PLoS One, 2014,9(1):e84905.
URL PMID |
| [25] |
Ólafsdóttir KL, Jónsdóttir H, Fridriksdóttir N, et al. Integrating nurse-facilitated advance care planning for patients newly di-agnosed with advanced lung cancer[J]. Int J Palliat Nurs, 2018,24(4):170-177.
URL PMID |
| [26] |
Menon S, Kars MC, Malhotra C, et al. Advance care planning in a multicultural family centric community:a qualitative study of health care professionals’, patients’, and caregivers’ perspectives[J]. J Pain Symptom Manage, 2018, 56(2):213-221.e4.
URL PMID |
| [27] |
Michael N, O’Callaghan C, Baird A, et al. A mixed method feasibility study of a patient- and family-centred advance care planning intervention for cancer patients[J]. BMC Palliat Care, 2015,14(1):1-12.
URL PMID |
| [28] |
Michael N, O’Callaghan C, Clayton J, et al. Understanding how cancer patients actualise,relinquish,and reject advance care planning:implications for practice[J]. Support Care Cancer, 2013,21(8):2195-2205.
URL PMID |
| [29] | 王丽英, 陆箴琦, 胡雁, 等. 家属对晚期肿瘤患者实施预立医疗照护计划态度的质性研究[J]. 护理学杂志, 2012,27(17):47-50. |
| Wang LY, Lu ZQ, Hu Y, et al. Attitudes toward advance directives for medical care in family members of advanced cancer patients:a qualitative study[J]. J Nurs Sci, 2012,27(17):47-50. | |
| [30] | 缪佳芮, 陈柳柳, 张江辉, 等. 终末期患者家属在预立医疗照护计划代理决策中的研究及评价[J]. 医学与哲学, 2018,39(12):75-78,90. |
| Miao JR, Chen LL, Zhang JH, et al. Research on family members of patients with end of life in agency decision-making in advance care planning[J]. Med Philos, 2018,39(12):75-78,90. | |
| [31] | 杨青, 于洋, 李香风. 晚期肿瘤患者照护需求的质性研究[J]. 护理学杂志, 2015,30(14):30-33. |
| Yang Q, Yu Y, Li XF. Care needs of terminal cancer patients:a qualitative study[J]. J Nurs Sci, 2015,30(14):30-33. |
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