中华护理杂志 ›› 2021, Vol. 56 ›› Issue (11): 1691-1697.DOI: 10.3761/j.issn.0254-1769.2021.11.015
高馨(), 李伦兰(), 戴晴, 张凡, 祁金梅, 陶蕾, 廖晨霞, 汪晶
收稿日期:
2021-07-02
出版日期:
2021-11-15
发布日期:
2021-11-16
通讯作者:
李伦兰,E-mail: lilunlan@aliyun.com作者简介:
高馨:女,本科(硕士在读),护士,E-mail: gaoxin0068@163.com
基金资助:
GAO Xin(), LI Lunlan(), DAI Qing, ZHANG Fan, QI Jinmei, TAO Lei, LIAO Chenxia, WANG Jing
Received:
2021-07-02
Online:
2021-11-15
Published:
2021-11-16
摘要:
目的 了解脊髓损伤患者的居家康复体验。方法 采用描述性质性研究方法,选取2020年6月—2021年4月自安徽省某三级甲等医院脊柱外科治疗出院的脊髓损伤患者12例进行半结构式访谈,采用传统内容分析法整理分析资料。结果 脊髓损伤患者居家康复体验可归纳为3个主题:对康复的态度(更倾向于居家康复、对康复锻炼的态度);居家康复中的问题及其应对方式(存在的问题、应对方式);居家康复的需求(延续性护理服务的需求、情绪疏导的需求、外部支持的需求)。结论 脊髓损伤患者康复形式的选择和康复锻炼态度受多种因素影响,居家康复过程中存在诸多问题和需求。医护人员应依据患者的问题和需求寻找有效方法帮助患者提高居家康复质量,其中,完善脊髓损伤患者延续护理体系是日后需要关注的重点。
高馨, 李伦兰, 戴晴, 张凡, 祁金梅, 陶蕾, 廖晨霞, 汪晶. 脊髓损伤患者居家康复体验的质性研究[J]. 中华护理杂志, 2021, 56(11): 1691-1697.
GAO Xin, LI Lunlan, DAI Qing, ZHANG Fan, QI Jinmei, TAO Lei, LIAO Chenxia, WANG Jing. Home rehabilitation experience for individuals with spinal cord injury:a qualitative study[J]. Chinese Journal of Nursing, 2021, 56(11): 1691-1697.
[1] | 李建军, 杨明亮, 杨德刚, 等. “创伤性脊柱脊髓损伤评估、治疗与康复”专家共识[J]. 中国康复理论与实践, 2017, 23(3):274-287. |
Li JJ, Yang ML, Yang DG, et al. Expert consensus on evaluation,treatment and rehabilitation of traumatic spinal cord injury[J]. Chin J Rehabil Theory Pract, 2017, 23(3):274-287. | |
[2] | 张娜, 周谋望, 刘楠. 2016年度全国脊髓损伤康复医疗质量控制调查报告[J]. 中国康复医学杂志, 2018, 33(10):1137-1141. |
Zhang N, Zhou MW, Liu N, et al. An investigation study on quality management of spinal cord injury rehabilitation in China 2016[J]. Chin J Rehabili Medi, 2018, 33(10):1137-1141. | |
[3] | 陈星月, 陈栋. 中国创伤性脊髓损伤流行病学和疾病经济负担的系统评价[J]. 中国循证医学杂志, 2018, 18(2):143-150. |
Chen XY, Chen D. The epidemiology and disease burden of traumatic spinal cordinjury in China:a systematic review[J]. Chin J Evid-Based Med, 2018, 18(2):143-150. | |
[4] |
Krause JS, Murday D, Corley EH, et al. Concentration of costs among high utilizers of health care services over the first 10 years after spinal cord injury rehabilitation:a population-based study[J]. Arch Phys Med Rehabil, 2019, 100(5):938-944.
DOI URL |
[5] | National Spinal Cord Injury Statistical Center. Annual statistical report for the spinal cord injury model systems public version[R]. Birmingham(AL):University of Alabama at Birmingham, 2017. |
[6] | 赵志勇, 王惠琴, 吴清美, 等. 延续照护在急诊经皮冠状动脉介入术后患者居家康复中的效果研究[J]. 中华护理杂志, 2019, 54(3):428-433. |
Zhao ZY, Wang HQ, Wu QM, et al. The effects of joint model of continuous care and family doctor on in-home rehabilitation of acute myocardial infarction patients after emergency percutaneous coronary intervention[J]. Chin J Nurs, 2019, 54(3):428-433. | |
[7] |
Osuagwu BAC, Timms S, Peachment R, et al. Home-based rehabilitation using a soft robotic hand glove device leads to improvement in hand function in people with chronic spinal cord injury:a pilot study[J]. J Neuroeng Rehabil, 2020, 17(1):40.
DOI PMID |
[8] |
Serpanou I, Sakellari E, Psychogiou M, et al. Physical therapists’ perceptions about patients with incomplete post-traumatic paraplegia adherence to recommended home exercises:a qualitative study[J]. Braz J Phys Ther, 2019, 23(1):33-40.
DOI PMID |
[9] |
Ruediger M, Kupfer M, Leiby BE. Decreasing rehospitalizations and emergency department visits in persons with recent spinal cord injuries using a specialized medical home[J]. J Spinal Cord Med, 2021, 44(2):221-228.
DOI |
[10] |
Schuld C, Franz S, Bruggemann K, et al. International standards for neurological classification of spinal cord injury:impact of the revised worksheet(revision 02/13)on classification performance[J]. J Spinal Cord Med, 2016, 39(5):504-512.
DOI URL |
[11] |
Folstein MF, Folstein SE, McHugh PR. "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician[J]. J Psychiatr Res, 1975, 12(3):189-198.
PMID |
[12] |
Hsieh HF, Shannon SE. Three approaches to qualitative con-tent analysis[J]. Qual Health Res, 2005, 15(9):1277-1288.
DOI URL |
[13] | Martin S. Natural course of disease of spinal cord injury[M]. New York: Springer International Publishing, 2017:77-105. |
[14] | 苌凤水, 解海霞, 高大勇, 等. 上海社区脊髓损伤者康复训练情况调查分析[J]. 中国康复医学杂志, 2020, 35(11):1356-1359,1362. |
Chang FS, Xie HX, Gao DY, et al. Investigation and analysis on rehabilitation training of spinal cord injury patients in Shanghai community[J]. Chin J Rehabili Medi, 2020, 35(11):1356-1359,1362. | |
[15] | 李旭丹, Reinhardt JD, 龚泽鹏, 等. 社区居住脊髓损伤患者生活质量现状及其影响因素分析[J]. 现代预防医学, 2020, 47(8):1430-1434. |
Li XD, Reinhardt JD, Gong ZP, et al. Analysis of status and influencing factors of the quality of life in patientswith spinal cord injury in the community[J]. Mod Prevent Medi, 2020, 47(8):1430-1434. | |
[16] | 冯晓娟, 李建军. BTE系统对颈脊髓损伤后上肢肌力强化训练的效果[J]. 中国康复理论与实践, 2020, 26(5):597-602. |
Feng XJ, Li JJ. Effects of BTE system intensive training on upper limbs after cervical spinal cord injury[J]. Chin J Rehabil Theory Pract, 2020, 26(5):597-602. | |
[17] |
Sutton BS, Ottomanelli L, Njoh E, et al. The impact of social support at home on health-related quality of life among veterans with spinal cord injury participating in a supported employment program[J]. Qual Life Res, 2015, 24(7):1741-1747.
DOI PMID |
[18] |
Qi Y, Zhang X, Zhao Y, et al. The effect of wheelchair Tai Chi on balance control and quality of life among survivors of spinal cord injuries:a randomized controlled trial[J]. Complement Ther Clin Pract, 2018, 33:7-11.
DOI URL |
[19] |
Lundstrom U, Lilja M, Gray D, et al. Experiences of participation in everyday occupations among persons aging with a tetraplegia[J]. Disabil Rehabil, 2015, 37(11):951-957.
DOI URL |
[20] | 李春梅, 胡爱玲. 脊髓损伤患者压力应对方式及其影响因素的研究[J]. 解放军护理杂志, 2017, 34(8):1-9. |
Li CM, Hu AL. The Study of Stress Coping Styles and Its Influencing Factors of Spinal Injury Patients[J]. Nurs J Chin PLA, 2017, 34(8):1-9. | |
[21] | 姜财. 基于整体观探讨脊髓损伤康复期患者生存质量状况及其影响因素研究[D]. 福州:福建中医药大学, 2018. |
Jiang C. Study on the quality of life and its influence factors of patients with spinal cord injuey in rehabilitation period based on the holistic view[D]. Fuzhou:Fujian University of Traditional Chinese Medicine, 2018. | |
[22] | 解海霞, 苌凤水, 沈雪韵, 等. 上海脊髓损伤者“中途之家”机构康复训练效果初步评价[J]. 中国康复医学杂志, 2018, 33(9):1087-1091. |
Xie HX, Chang FS, Shen XY, et al. Preliminary evaluation on the effect of rehabilitation training in Shanghai “halfway house” for spinal cord injury patients[J]. Chin J Rehabil Medi, 2018, 33(9):1087-1091. | |
[23] |
van Loo MA, Post MW, Bloemen JH, et al. Care needs of persons with long-term spinal cord injury living at home in the Netherlands[J]. Spinal Cord, 2010, 48(5):423-428.
DOI PMID |
[24] | 徐娟, 刘颖, 陈星, 等. 脊髓损伤伴神经源性膀胱患者三元联动式延续性护理实践[J]. 中国护理管理, 2020, 20(2):272-275. |
Xu J, Liu Y, Chen X, et al. The effects of hospital-community-family continuous nursing care practice for patients with spinal cord injury and neurogenic bladder[J]. Chin Nurs Manag, 2020, 20(2):272-275. | |
[25] | 刘婷, 李琨, 谢粟梅, 等. 基于《国际功能、残疾和健康分类(ICF)》框架的脊髓损伤延续护理移动APP的开发[J]. 中国康复医学杂志, 2019, 34(2):154-158. |
Liu T, Li K, Xie SM, et al. Development of the APP for transitional care of people with spinal cord injury based on the ICF[J]. Chin J Rehabil Medi, 2019, 34(2):154-158. | |
[26] |
Van Derwerker CJ, Gregory CM, Simpson KN. Using inferred mobility status to estimate the time to major depressive disorder diagnosis post-spinal cord injury[J]. Arch Phys Med Rehabil, 2020, 101(4):658-666.
DOI URL |
[27] |
Eaton R, Jones K, Duff J. Cognitive appraisals and emotional status following a spinal cord injury in post-acute rehabilitation[J]. Spinal Cord, 2018, 56(12):1151-1157.
DOI URL |
[28] |
Kang MG, Kim CH, Park E, et al. Effect of family caregiving on depression in the first 3 months after spinal cord injury[J]. Ann Rehabil Med, 2018, 42(1):130-136.
DOI URL |
[29] | 李佳岭, 冯先琼. 脊髓损伤患者创伤后应激障碍、社会支持与生存质量的现状调查及相关性分析[J]. 中国医学科学院学报, 2020, 42(6):723-731. |
Li JL, Feng XQ. Post-traumatic stress disorder,social support,and quality of life in patients with spinal cord injury[J]. Acta Acad Med Sin, 2020, 42(6):723-731. | |
[30] | 陈令红, 李薇, 胡铭. 聚焦解决模式在缓解脊髓损伤合并截瘫患者负性情绪中的应用及效果评价[J]. 中华护理杂志, 2016, 51(11):1297-1301. |
Chen LH, Li W, Hu M. The effect of solution-focused nursing on self management and negative emotion in patients with spinal cord injury with paraplegia[J]. Chin J Nurs, 2016, 51(11):1297-1301. | |
[31] |
Dyck DG, Weeks DL, Smith CL, et al. Multiple family group intervention for spinal cord injury:quantitative and qualitative comparison with standard education[J]. J Spinal Cord Med, 2021, 44(4):572-582.
DOI URL |
[32] |
Carrard V, Kunz S, Peter C. Mental health,quality of life,self-efficacy,and social support of individuals living with spinal cord injury in Switzerland compared to that of the general population[J]. Spinal Cord, 2021, 59(4):398-409.
DOI URL |
[33] | Qiu X, Sit JWH, Koo FK. The influence of Chinese culture on family caregivers of stroke survivors:a qualitative study[J]. J Clin Nurs, 2018, 27(1/2):309-319. |
[34] |
Alwashmi AH. Vocational rehabilitation awareness among spi-nal cord injury male patients in saudi arabia:a brief communication[J]. Cureus, 2019, 11(1):3886.
DOI PMID |
[35] | 解海霞, 杨玉慧, 吴爱荣, 等. 上海脊髓损伤者“希望之家”的现状与发展研究——基于管理者和组织者视角[J]. 中国康复理论与实践, 2019, 25(10):1221-1227. |
Xie HX, Yang YH, Wu AR, et al. Status quo and development of Hope Houses for individuals with spinal cord injury in Shanghai from perspective of managers and organizers[J]. Chin J Rehabil Theory Pract, 2019, 25(10):1221-1227. |
[1] | 董蕾, 刘佳, 赵琴, 赵洪圉, 朱肖. 脑卒中患者虚拟现实康复体验质性研究的Meta整合[J]. 中华护理杂志, 2024, 59(9): 1130-1137. |
[2] | 张倩, 高文娟, 韩静. 乳腺癌患者的青少年子女心理体验质性研究的Meta整合[J]. 中华护理杂志, 2024, 59(8): 1005-1011. |
[3] | 赵鑫淼, 单思雨, 白茹雪, 程逸帆, 夏春玲. 双胎孕产妇健康教育与心理社会需求的质性研究[J]. 中华护理杂志, 2024, 59(8): 960-966. |
[4] | 李卫涛, 王金艳, 吴慧玲, 张菲, 杨长捷, 吴丽萍. 胎儿异常引产产妇创伤后成长历程的质性研究[J]. 中华护理杂志, 2024, 59(8): 967-973. |
[5] | 林雯雯, 徐梅, 夏云, 江宁, 莫瑜威, 王莉, 宁丽. 癌症患者自我管理行为转变体验质性研究的Meta整合[J]. 中华护理杂志, 2024, 59(7): 865-872. |
[6] | 王欢, 李圣娟, 李晨, 何园园, 谢玉瑶, 郑冬香. 康复期脑卒中失语症患者疾病体验及需求的Meta整合[J]. 中华护理杂志, 2024, 59(7): 873-881. |
[7] | 孙姝怡, 孙国珍, 高敏, 王洁, 于甜栖, 刘沈馨雨, 汤志杰, 温高芹. 心力衰竭患者心理资源损耗与恢复过程的质性研究[J]. 中华护理杂志, 2024, 59(6): 706-712. |
[8] | 黄咏琪, 田霞, 王峥, 孙咪咪, 周丽群, 肖文莉. 心理一致感视角下晚期癌症患者疾病应对体验的质性研究[J]. 中华护理杂志, 2024, 59(5): 526-532. |
[9] | 程琳, 李媛媛, 裴贝, 李欢, 刘金龙, 徐毓露, 冯欣悦, 楼妍. 安宁疗护志愿者服务体验质性研究的Meta整合[J]. 中华护理杂志, 2024, 59(5): 547-555. |
[10] | 田思颖, 李苏爱, 刘梦娆, 李佩佩, 张欣悦, 常红. 轻度认知障碍患者参与虚拟现实技术认知干预体验的质性研究[J]. 中华护理杂志, 2024, 59(5): 569-575. |
[11] | 刘志薇, 梅永霞, 张振香, 林蓓蕾, 陈素艳, 张杜杜, 薛利红, 袁燕, 张伟宏. 脑卒中患者夫妻疾病沟通体验的质性研究[J]. 中华护理杂志, 2024, 59(5): 576-581. |
[12] | 高文娟, 张倩, 韩静. 乳腺癌患者夫妻亲密关系质性研究的Meta整合[J]. 中华护理杂志, 2024, 59(5): 618-625. |
[13] | 刘建萍, 郭卫婷, 高伟, 王文君, 盛源, 范春梅, 鲁琦, 刘德山. 心脏康复患者运动恐惧体验质性研究的Meta整合[J]. 中华护理杂志, 2024, 59(4): 474-481. |
[14] | 刘均娥, 王莹, 孙柳. 质性研究护理论文的撰写与质量评价[J]. 中华护理杂志, 2024, 59(3): 276-280. |
[15] | 冯琦凡, 涂发妹, 吴季敏, 刘萍萍, 刘佳晨, 张思易, 张鑫. 烧伤患者身体意象体验质性研究的Meta整合[J]. 中华护理杂志, 2024, 59(3): 362-370. |
阅读次数 | ||||||
全文 |
|
|||||
摘要 |
|
|||||