癌症患儿主要照顾者连带病耻感的研究进展

doi:10.3761/j.issn.0254-1769.2025.12.020

摘要/Abstract

摘要：

近年来，儿童癌症的发病率呈逐年上升趋势。由于疾病和人群特殊性，癌症患儿主要照顾者连带病耻感问题逐渐引起关注。连带病耻感不仅直接影响主要照顾者的心理健康和生活质量，还会导致其社会支持减少、自我效能感降低，影响照顾患儿的积极性，从而间接影响癌症患儿的治疗依从性和预后效果。该文介绍了连带病耻感的概念，并对癌症患儿主要照顾者连带病耻感的测量工具、影响因素及干预策略进行综述，并提出相关建议，以期为后续研究及干预措施的制订提供理论依据和指导。

关键词: 癌症患儿, 主要照顾者, 连带病耻感, 护理, 综述

Abstract:

In recent years，the incidence of childhood cancer has shown a steady upward trend. Due to the unique nature of this disease，the issue of affiliate stigma among primary caregivers of children with cancer has gradually drawn attention. Affiliate stigma not only directly affects caregivers' mental health and quality of life，but also leads to reduced social support and lower self-efficacy，thereby impacting their engagement in the caregiving process and affecting the treatment adherence and prognosis of children with cancer indirectly. This article provides a review covering 5 main areas：the conceptual definition of affiliate stigma，measurement tools，influencing factors，intervention strategies，and insights and recommendations，to provide a theoretical basis and guidance for subsequent research and the development of interventions.

Key words: Children with Cancer, Primary Caregiver, Affiliate Stigma, Nursing Care, Review

杨福娜, 任云楚, 王永琦, 郭兰伟, 何家欣, 刘琪, 毛婷, 赵羚烨, 徐晓霞, 石红英. 癌症患儿主要照顾者连带病耻感的研究进展[J]. 中华护理杂志, 2025, 60(12): 1531-1537.

YANG Funa, REN Yunchu, WANG Yongqi, GUO Lanwei, HO Ka Yan, LIU Qi, MAO Ting, ZHAO Lingye, XU Xiaoxia, SHI Hongying. Research progress on affiliate stigma among primary caregivers of children with cancer[J]. Chinese Journal of Nursing, 2025, 60(12): 1531-1537.

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