中华护理杂志 ›› 2024, Vol. 59 ›› Issue (5): 547-555.DOI: 10.3761/j.issn.0254-1769.2024.05.005
程琳(
), 李媛媛, 裴贝, 李欢, 刘金龙, 徐毓露, 冯欣悦, 楼妍(
)
收稿日期:2023-09-06
出版日期:2024-03-10
发布日期:2024-03-12
通讯作者:
楼妍,E-mail:lygreen0924@hotmail.com作者简介:程琳:女,本科(硕士在读),E-mail:18895630977@163.com
基金资助:
CHENG Lin(
), LI Yuanyuan, PEI Bei, LI Huan, LIU Jinlong, XU Yulu, FENG Xinyue, LOU Yan(
)
Received:2023-09-06
Online:2024-03-10
Published:2024-03-12
摘要:
目的 系统评价、分析安宁疗护志愿者参与志愿服务的真实体验,旨在为医护人员对安宁疗护志愿者进行培训、给予支持提供依据。方法 计算机检索PubMed、Web of Science、Embase、Cochrane Library、ProQuest、Scopus、CINAHL、中国知网、万方数据库、维普数据库、中国生物医学文献数据库中有关安宁疗护志愿者参与志愿服务真实体验的质性研究,检索时限为从建库至2023年11月。采用澳大利亚乔安娜布里格斯研究所循证卫生保健中心质性研究质量评价标准进行文献质量评价,采用汇集性整合方法对研究结果进行归纳整合。结果 最终纳入14篇文献,共提取出49个主题,归纳出10个新的类别,形成4个整合结果。①安宁疗护志愿者参与志愿服务的动机复杂多样;②安宁疗护志愿者面临多重挑战;③安宁疗护志愿者应对挑战的态度积极、方式多样;④安宁疗护志愿者感知到志愿服务的双重益处。结论 安宁疗护志愿者参与志愿服务的体验复杂。在招募志愿者时,建议医护人员评估其参与志愿服务的动机及心理状况;在志愿服务过程中,引导其建立和维持积极心理体验,减轻负性情绪,同时强化培训和支持系统,不断提高志愿者的服务能力。
程琳, 李媛媛, 裴贝, 李欢, 刘金龙, 徐毓露, 冯欣悦, 楼妍. 安宁疗护志愿者服务体验质性研究的Meta整合[J]. 中华护理杂志, 2024, 59(5): 547-555.
CHENG Lin, LI Yuanyuan, PEI Bei, LI Huan, LIU Jinlong, XU Yulu, FENG Xinyue, LOU Yan. The volunteering experience of palliative care volunteers:a meta-synthesis of qualitative studies[J]. Chinese Journal of Nursing, 2024, 59(5): 547-555.
| [1] | 国家卫生计生委办公厅. 国家卫生计生委办公厅关于印发安宁疗护实践指南(试行)的通知[EB/OL]. (2017-02-09)[2023-11-26]. http://www.nhc.gov.cn/yzygj/s3593/201702/83797c0261a94781b158dbd76666b717.shtml. |
| National Health and Family Planning Commission. Notice of the National Health and Family Planning Commission on printing and distributing the practice guidelines of hospice care(trial)[EB/OL]. (2017-02-09)[2023-11-26]. http://www.nhc.gov.cn/yzygj/s3593/201702/83797c0261a94781b158dbd76666b717.shtml. | |
| [2] | 丁炎明, 黄子叶, 王轶, 等. 安宁疗护志愿者服务的发展现况[J]. 中国护理管理, 2021, 21(7):984-987. |
| Ding YM, Huang ZY, Wang Y, et al. The development status of hospice care volunteers service:a review[J]. Chin Nurs Manag, 2021, 21(7):984-987. | |
| [3] |
吴燕, 郑秀. 癌症志愿者参与晚期癌症患者安宁疗护的效果研究[J]. 中华护理杂志, 2019, 54(12):1782-1787.
DOI URL |
|
Wu Y, Zheng X. Role of cancer volunteers in high quality death among cancer patients[J]. Chin J Nurs, 2019, 54(12):1782-1787.
DOI URL |
|
| [4] | 郭艳汝, 任晓娟, 袁媛, 等. 安宁疗护五级照护路径探索与实践:以沧州市人民医院安宁疗护病房临床实践为例[J]. 医学与哲学, 2022, 43(14):21-26. |
| Guo YR, Ren XJ, Yuan Y, et al. Exploration and practice of five-level nursing path in palliative care:taking the clinical practice in palliative care ward of Cangzhou people’s hospital as an example[J]. Med Philos, 2022, 43(14):21-26. | |
| [5] | Goossensen, Somsen J, Scott R, et al. Defining volunteering in hospice and palliative care in Europe:an EAPC white paper[J]. Eur J Palliat Care, 2016, 4:184-191. |
| [6] | 黄新娟, 樊溶榕, 谌永毅, 等. 安宁疗护病房的建立与管理[J]. 中华护理教育, 2021, 18(4):358-362. |
| Huang XJ, Fan RR, Chen YY, et al. Establishment and management of a hospice care ward[J]. Chin J Nurs Educ, 2021, 18(4):358-362. | |
| [7] |
Meyer D, Schmidt P, Zernikow B, et al. It’s all about communication:a mixed-methods approach to collaboration between volunteers and staff in pediatric palliative care[J]. Am J Hosp Palliat Care, 2018, 35(7):951-958.
DOI URL |
| [8] | 胡雁, 郝玉芳. 循证护理学[M]. 2版. 北京: 人民卫生出版社, 2018:157-174. |
| Hu Y, Hao YF. Evidence-based nursing[M]. 2nd ed. Beijing: People’s Medical Publishing House, 2018:157-174. | |
| [9] |
Lee S, Kim B. A photovoice study on the position and role of hospice volunteers in Korea[J]. Risk Manag Healthc Policy, 2023, 16:931-943.
DOI URL |
| [10] | Chiew F, Krupka Z. You’re teaching me something about living:Australian palliative care volunteers’ evolving experiences of grief and loss[J]. Omega(Westport), 2023:302228231164863. |
| [11] | 张倩, 闫春旭, 李倩, 等. 安宁疗护志愿者压力与应对的真实体验[J]. 医学与哲学, 2021, 42(11):40-44,50. |
| Zhang Q, Yan CX, Li Q, et al. Authentic experience of stress and response from hospice care volunteers[J]. Med Philos, 2021, 42(11):40-44,50. | |
| [12] |
Jack BA, Kirton JA, Birakurataki J, et al. The personal value of being a palliative care community volunteer worker in Uganda:a qualitative study[J]. Palliat Med, 2012, 26(5):753-759.
DOI URL |
| [13] |
Dein S, Abbas SQ. The stresses of volunteering in a hospice:a qualitative study[J]. Palliat Med, 2005, 19(1):58-64.
DOI URL |
| [14] | 何昭好, 高星, 李斌, 等. 医学生志愿者安宁疗护实践体验的质性研究[J]. 护理学杂志, 2023, 38(8):80-83. |
| He ZH, Gao X, Li B, et al. Experience of hospice care among medical student volunteers:a qualitative study[J]. J Nurs Sci, 2023, 38(8):80-83. | |
| [15] |
Lee J, Lee JE. A palliative care program for volunteers in a community setting:a mixed-methods pilot study[J]. Am J Hosp Palliat Care, 2020, 37(6):455-464.
DOI URL |
| [16] | 王梦玉, 俞燮艳, 李彩福, 等. 护理本科生参加高龄老人临终关怀志愿服务体验的研究[J]. 中华护理教育, 2018, 15(4):306-310. |
| Wang MY, Yu XY, Li CF, et al. The experience of providing palliative care for the elderly with advantaged age among nursing students[J]. Chin J Nur Educ, 2018, 15(4):306-310. | |
| [17] |
陶鑫, 宁晓红. 北京协和医院安宁志愿者的陪伴体验调查[J]. 中国医学科学院学报, 2018, 40(3):395-400.
DOI |
|
Tao X, Ning XH. Survey on the accompanying experience of palliative hospice volunteers in Peking Union Medical College Hospital[J]. Acta Acad Med Sin, 2018, 40(3):395-400.
DOI |
|
| [18] |
Söderhamn U, Flateland S, Fensli M, et al. To be a trained and supported volunteer in palliative care-a phenomenological study[J]. BMC Palliat Care, 2017, 16(1):18.
DOI PMID |
| [19] |
Beasley E, Brooker J, Warren N, et al. The lived experience of volunteering in a palliative care biography service[J]. Palliat Support Care, 2015, 13(5):1417-1425.
DOI PMID |
| [20] |
Weeks LE, MacQuarrie C. Supporting the volunteer career of male hospice-palliative care volunteers[J]. Am J Hosp Palliat Care, 2011, 28(5):342-349.
DOI PMID |
| [21] | Chen SQ, Zhang SY, Su JE, et al. The self-growth process of hospice volunteers in Ningbo,China[J]. J Palliat Care, 2023:8258597231152126. |
| [22] |
Scott R, Goossensen A, Payne S, et al. What it means to be a palliative care volunteer in eight European countries:a qualitative analysis of accounts of volunteering[J]. Scand J Caring Sci, 2021, 35(1):170-177.
DOI URL |
| [23] |
Delaloye S, Escher M, Luthy C, et al. Volunteers trained in palliative care at the hospital:an original and dynamic resource[J]. Palliat Support Care, 2015, 13(3):601-607.
DOI URL |
| [24] | Hayslip B Jr, Sethi A, Pinson MW, et al. Predicting attrition among hospice volunteers[J]. Omega(Westport), 2021, 84(1):289-306. |
| [25] | 张倩, 闫春旭, 李倩, 等. 安宁疗护志愿者动机量表的汉化及信效度检验[J]. 护理学杂志, 2021, 36(15):13-16. |
| Zhang Q, Yan CX, Li Q, et al. Testing of reliability and validity of the Chinese version of Inventory of Motivations for Hospice Palliative Care Volunteerism[J]. J Nurs Sci, 2021, 36(15):13-16. | |
| [26] |
Claxton-Oldfield S, Wasylkiw L, Mark M, et al. The inventory of motivations for hospice palliative care volunteerism:a tool for recruitment and retention[J]. Am J Hosp Palliat Care, 2011, 28(1):35-43.
DOI PMID |
| [27] |
Wang QR, Chan IKW, Lou VWQ. Effectiveness of a holistic capacity-building program for volunteers in community-based end-of-life care[J]. Res Soc Work Pract, 2020, 30(4):408-421.
DOI URL |
| [28] |
Vanderstichelen S, Cohen J, van Wesemael Y, et al. Volunteers in palliative care:a healthcare system-wide cross-sectional survey[J]. BMJ Support Palliat Care, 2022, 12(e1):e83-e93.
DOI URL |
| [29] |
Bloomer MJ, Walshe C. ‘It’s not what they were expecting’:a systematic review and narrative synthesis of the role and experience of the hospital palliative care volunteer[J]. Palliat Med, 2020, 34(5):589-604.
DOI URL |
| [30] |
Vanderstichelen S, Cohen J, van Wesemael Y, et al. The involvement of volunteers in palliative care and their collaboration with healthcare professionals:a cross-sectional volunteer survey across the Flemish healthcare system(Belgium)[J]. Health Soc Care Community, 2020, 28(3):747-761.
DOI PMID |
| [31] |
刘英, 甄倩, 王晓庄, 等. 乳腺癌患者和配偶的创伤后成长及与积极心理资本的关系[J]. 中华护理杂志, 2023, 58(7):794-799.
DOI URL |
|
Liu Y, Zhen Q, Wang XZ, et al. Posttraumatic growth in breast cancer patients and their spouses and its relationship with positive psychological capital[J]. Chin J Nurs, 2023, 58(7):794-799.
DOI URL |
|
| [32] |
王建晶, 刘义兰, 朱文静, 等. 护士人文护理培训现状及需求的多中心调查研究[J]. 中华护理杂志, 2022, 57(10):1231-1237.
DOI URL |
|
Wang JJ, Liu YL, Zhu WJ, et al. A multicenter survey on the status and demand of humanistic nursing training for nurses[J]. Chin J Nurs, 2022, 57(10):1231-1237.
DOI URL |
|
| [33] | Varay C, Lareyre O, Baeza-Velasco C. Are palliative care volunteers special people? A comparative observational study exploring their sociodemographic profile and psychological resources[J]. Am J Hosp Palliat Care, 2023:10499091231194036. |
| [34] | 荆丽梅, 李甜甜, 舒之群, 等. 志愿者安宁疗护知信行及培训需求调查研究[J]. 医学与哲学, 2020, 41(21):30-34. |
| Jing LM, Li TT, Shu ZQ, et al. Study on the volunteers’ knowledge,attitude,behavior and training needs of hospice care[J]. Med Phil, 2020, 41(21):30-34. | |
| [35] | 樊溶榕, 李旭英, 黄新娟, 等. 安宁疗护专科护士培训内容的构建[J]. 中华护理教育, 2020, 17(9):779-784. |
| Fan RR, LI XY, Huang XJ, et al. Establishment of training system for hospice care nurses[J]. Chin J Nur Edu, 2020, 17(9):779-784. | |
| [36] |
王心茹, 朱信雨, 贾玉玲, 等. 文化因素对安宁疗护实践影响的质性研究[J]. 中华护理杂志, 2023, 58(13):1552-1558.
DOI URL |
|
Wang XR, Zhu XY, Jia YL, et al. A qualitative study on the specificity of cultural factors in palliative care practice[J]. Chin J Nurs, 2023, 58(13):1552-1558.
DOI URL |
|
| [37] |
石柳清, 刘玥, 彭稚琳, 等. 安心卡的文化调试及在晚期癌症患者中的应用[J]. 中华护理杂志, 2023, 58(13):1579-1584.
DOI URL |
|
Shi LQ, Liu Y, Peng ZL, et al. The culture adjustment of heart to heart card and its application in patients with advanced cancer[J]. Chin J Nurs, 2023, 58(13):1579-1584.
DOI URL |
|
| [38] | Mundle R. Learning from experiences of feeling heard:a qualitative study of hospice volunteers[J]. Illn Crisis Loss, 2021, 29(1):37-50. |
| [39] |
刘花艳, 朱丽辉, 谢鑑辉, 等. 护士长倾听日在儿科护士中的应用效果研究[J]. 中华护理杂志, 2020, 55(9):1381-1386.
DOI URL |
| Liu HY, Zhu LH, Xie JH, et al. Study on impact of head nurse listening day on pediatric nurses[J]. Chin J Nurs, 2020, 55(9):1381-1386. | |
| [40] |
宁时安, 姜梅, 柳学华, 等. 正念干预联合信息支持对早产儿父亲心理健康状况的影响[J]. 中华护理杂志, 2023, 58(12):1442-1449.
DOI URL |
|
Ning SA, Jiang M, Liu XH, et al. Effects of mindfulness intervention combined with information support on the mental health status of fathers of premature infants[J]. Chin J Nurs, 2023, 58(12):1442-1449.
DOI URL |
| [1] | 曾妃, 兰美娟, 顾培培, 梁江淑渊, 王衍蝶, 蔡凌云. 儿童双肺移植术后肺康复护理方案的构建及初步验证[J]. 中华护理杂志, 2025, 60(9): 1029-1035. |
| [2] | 阎寅至, 闻芳, 王敏, 周雪梅, 马金玲, 吴惠芳, 姚文英. 造血干细胞移植患儿运动康复分级护理方案的构建与应用研究[J]. 中华护理杂志, 2025, 60(9): 1036-1042. |
| [3] | 刘曦璇, 刘玉琳, 刘莎, 杨帆, 谢晓虹, 王紫娟, 刘丽芳, 魏红雨. 学龄期支气管哮喘患儿呼吸康复操的研制及效果评价[J]. 中华护理杂志, 2025, 60(9): 1043-1049. |
| [4] | 黄盼盼, 李丽玲, 胡晓静. 先天性心脏病婴儿早期运动康复的研究进展[J]. 中华护理杂志, 2025, 60(9): 1050-1055. |
| [5] | 陈丽鸥, 张文婷, 刘俊其, 王允琮, 王振霖, 齐赛, 杨娜. 肺叶体表投影定位结合肺段引流排痰技术对吸入性肺炎患者气道廓清的效果研究[J]. 中华护理杂志, 2025, 60(9): 1056-1061. |
| [6] | 杨娜娜, 程传丽, 曾慧, 符丹丹, 王燕, 陈悦, 冉宏敏, 范红静, 龙霞. 分级运动康复对慢性阻塞性肺疾病急性加重期患者的效果评价[J]. 中华护理杂志, 2025, 60(9): 1062-1067. |
| [7] | 曹云, 孙国珍, 陈凤, 季学丽, 闫梦婉, 敬雷, 钱堃. 改良式踝泵运动在脑卒中患者中的应用研究[J]. 中华护理杂志, 2025, 60(9): 1068-1074. |
| [8] | 谢敏, 漆文凯, 殷玲, 张旋, 赵如琴. 腹膜透析患者恐动症潜在剖面分析及影响因素研究[J]. 中华护理杂志, 2025, 60(9): 1080-1086. |
| [9] | 陈冰倩, 赵彬, 孙佳蓉, 郝四芳, 侯晓丽. 慢性牙周炎种植义齿患者口腔健康管理困境的质性研究[J]. 中华护理杂志, 2025, 60(9): 1087-1092. |
| [10] | 秦春兰, 吴振云, 钱红英, 赵茜, 孙锦庭. 慢性阻塞性肺疾病患者疾病自我控制体验的质性研究[J]. 中华护理杂志, 2025, 60(9): 1093-1098. |
| [11] | 李子崴, 冯丽娟, 陈旭升, 黄毅, 杨洁. PICC置管患者运动恐惧评估量表的编制及应用[J]. 中华护理杂志, 2025, 60(9): 1099-1106. |
| [12] | 程志强, 张宝珍, 汤利萍, 李静, 夏娇云, 魏雪岩, 龚智娴, 张美珍, 黎露思. 尿失禁患者疾病认知与态度量表的汉化及初步应用[J]. 中华护理杂志, 2025, 60(9): 1107-1112. |
| [13] | 杨静, 王华芬, 卢芳燕, 鲍瑞洁, 朱莉. 肝移植患儿术后营养状况变化的影响因素分析及护理启示[J]. 中华护理杂志, 2025, 60(9): 1113-1119. |
| [14] | 石美琴, 吴建芳, 张铎, 吴春萍, 陈玲, 陶磊. 1例全喉切除辅助发音管Ⅰ期植入患者术后喉功能康复的护理[J]. 中华护理杂志, 2025, 60(9): 1120-1123. |
| [15] | 谷茜, 黄玺, 施伟雄, 吴静, 谭若铭, 王枫. 1例T细胞免疫治疗后并发细胞因子释放综合征患者的护理[J]. 中华护理杂志, 2025, 60(9): 1124-1127. |
| 阅读次数 | ||||||
|
全文 |
|
|||||
|
摘要 |
|
|||||