中华护理杂志 ›› 2023, Vol. 58 ›› Issue (23): 2940-2944.DOI: 10.3761/j.issn.0254-1769.2023.23.018
• 综述 • 上一篇
收稿日期:
2023-05-31
出版日期:
2023-12-10
发布日期:
2023-12-12
通讯作者:
许翠萍,E-mail:xucuiping775@sohu.com作者简介:
商君婷:女,本科(硕士在读),E-mail:18354151326@163.com
基金资助:
SHANG Junting(), CHEN Yan, ZHAO Junya, SONG Xueqing, XU Cuiping()
Received:
2023-05-31
Online:
2023-12-10
Published:
2023-12-12
摘要:
全球癌症发病率持续上升,并呈现明显的年轻化趋势。实施数字化健康干预可提高青少年癌症患者安宁疗护的可及性及护理质量。目前,相关研究逐渐增多,但以国外研究为主,尚未引起国内医护人员的关注。该文从青少年癌症患者的安宁疗护需求出发,综述了数字化健康干预的干预形式以及在健康宣教、症状评估、心理支持及哀伤辅导、预立医疗照护计划制订等方面的应用情况,分析现存问题并提出护理对策,旨在为安宁疗护实践提供参考。
商君婷, 陈燕, 赵军亚, 宋雪青, 许翠萍. 数字化健康干预在青少年癌症患者安宁疗护中的应用进展[J]. 中华护理杂志, 2023, 58(23): 2940-2944.
SHANG Junting, CHEN Yan, ZHAO Junya, SONG Xueqing, XU Cuiping. Progress in the application of digital health interventions in the palliative care of adolescent cancer patients[J]. Chinese Journal of Nursing, 2023, 58(23): 2940-2944.
[1] |
Miller KD, Fidler-Benaoudia M, Keegan TH, et al. Cancer statis-tics for adolescents and young adults,2020[J]. CA Cancer J Clin, 2020, 70(6):443-459.
DOI URL |
[2] |
Pinkerton R, Donovan L, Herbert A. Palliative care in adoles-cents and young adults with cancer:why do adolescents need special attention?[J]. Cancer J, 2018, 24(6):336-341.
DOI PMID |
[3] |
Kimberly A, Fisher B, Haskamp A, et al. Providing palliative and hospice care to children,adolescents and young adults with cancer[J]. Semin Oncol Nurs, 2021, 37(3):151166.
DOI URL |
[4] |
Finucane AM, O’Donnell H, Lugton J, et al. Digital health inter-ventions in palliative care:a systematic meta-review[J]. NPJ Digit Med, 2021, 4(1):64.
DOI PMID |
[5] |
Choi E, Shin SH, Ryu JK, et al. Commercial video games and cognitive functions:video game genres and modulating factors of cognitive enhancement[J]. Behav Brain Funct, 2020, 16(1):2.
DOI |
[6] |
Sabel M, Sjölund A, Broeren J, et al. Active video gaming im-proves body coordination in survivors of childhood brain tumours[J]. Disabil Rehabil, 2016, 38(21):2073-2084.
DOI URL |
[7] |
Kato PM, Cole SW, Bradlyn AS, et al. A video game improves behavioral outcomes in adolescents and young adults with cancer:a randomized trial[J]. Pediatrics, 2008, 122(2):e305-e317.
DOI URL |
[8] | LeBeau K, Collins S, Zori G, et al. Evaluating a novel hospital-based online health community to address palliative and psychosocial care factors for chronically ill adolescent and young adult patients[J]. Pall Supp Care, 2023:1-12. |
[9] |
Walker AL, Marchi E, Puig A, et al. Volunteer-based social sup-port structures and program exposure outcomes in an adoles-cent young adult palliative care peer support program[J]. J Palliat Med, 2022, 25(8):1186-1196.
DOI URL |
[10] |
Pinto S, Caldeira S, Martins JC. E-health in palliative care:review of literature,google play and app store[J]. Int J Palliat Nurs, 2017, 23(8):394-401.
DOI PMID |
[11] |
Kamran R, Dal Cin A. Designing a mission statement mobile app for palliative care:an innovation project utilizing design-thinking methodology[J]. BMC Palliat Care, 2020, 19(1):151.
DOI |
[12] |
Ridout B, Kelson J, Campbell A, et al. Effectiveness of virtual reality interventions for adolescent patients in hospital settings:systematic review[J]. J Med Internet Res, 2021, 23(6):e24967.
DOI URL |
[13] |
Hsieh WT. Virtual reality video promotes effectiveness in advan-ce care planning[J]. BMC Palliat Care, 2020, 19(1):1-10.
DOI |
[14] | Guenther M, Görlich D, Bernhardt F, et al. Virtual reality re-duces pain in palliative care:a feasibility trial[J]. BMC Pal-liat Care, 2022, 21(1):169. |
[15] |
Desselle MR, Holland LR, McKittrick A, et al. “A Wanderer’s Tale”:the development of a virtual reality application for pain and quality of life in Australian burns and oncology patients[J]. Palliat Support Care, 2023, 21(3):454-460.
DOI URL |
[16] | 梁和静, 黄金, 蒋凤, 等. 以视频为基础的健康教育应用进展[J]. 中华护理教育, 2021, 18(3):284-288. |
Liang HJ, Huang J, Jiang F, et al. The current status of video-based health education[J]. Chin Nurs Educ, 2021, 18(3):284-288. | |
[17] |
Khalil GE, Beale IL, Chen MX, et al. A video game promoting cancer risk perception and information seeking behavior among young-adult college students:a randomized controlled trial[J]. JMIR Serious Games, 2016, 4(2):e13.
DOI URL |
[18] |
Bouwman E, Hermens RPMG, Blijlevens NMA, et al. Nurse-led video-coaching interventions in childhood,adolescent and young adult cancer survivors(REVIVER):a protocol for mixed me-thods feasibility research[J]. Pilot Feasibility Stud, 2019, 5(1):1-10.
DOI |
[19] |
Leahy AB, Schwartz LA, Li YM, et al. Electronic symptom mo-nitoring in pediatric patients hospitalized for chemotherapy[J]. Cancer, 2021, 127(16):2980-2989.
DOI URL |
[20] |
Macpherson CF, Stegenga K, Erickson JM, et al. Adolescents and young adults with cancer using a symptom heuristics app:provider perceptions and actions[J]. J Adolesc Young Adult Oncol, 2020, 9(5):579-585.
DOI URL |
[21] |
Allen T, Reda S, Martin S, et al. The needs of adolescents and young adults with chronic illness:results of a quality improvement survey[J]. Children, 2022, 9(4):500.
DOI URL |
[22] |
Griffiths C, Panteli N, Brunton D, et al. Designing and evalua-ting the acceptability of realshare:an online support commu-nity for teenagers and young adults with cancer[J]. J Health Psychol, 2015, 20(12):1589-1601.
DOI PMID |
[23] |
孙倩, 王璐, 郑树基, 等. 数字化健康干预在青年癌症患者心理康复中的应用进展[J]. 中华护理杂志, 2019, 54(2):301-306.
DOI URL |
Sun Q, Wang L, Zheng SJ, et al. The application progress of digital health intervention in the psychological rehabilitation of young cancer patients[J]. Chin J Nurs, 2019, 54(2):301-306. | |
[24] | 环球网. 韩国母亲通过VR技术与去世女儿重逢,画面催人泪下[N/OL].(2020-02-11)[2023-08-18]. https://3w.huanqiu.com/a/c36dc8/3wzQ981IkgQ. |
Global Network. The Korean mother reunites with her decea-sed daughter through VR technology,causing tears to fall on the screen[N/OL].(2020-02-11)[2023-08-18]. https://3w.huan-qiu.com/a/c36dc8/3wzQ981IkgQ. | |
[25] |
Zheng YQ, Head BA, Schapmire TJ. A systematic review of telehealth in palliative care:caregiver outcomes[J]. Telemed J E Health, 2016, 22(4):288-294.
DOI URL |
[26] |
王心茹, 绳宇. 预立医疗照护计划在肿瘤患者中的应用进展[J]. 中华护理杂志, 2019, 54(2):306-310.
DOI URL |
Wang XR, Sheng Y. Application progress of pre-established medical care plan in cancer patients[J]. Chin J Nurs, 2019, 54(2):306-310. | |
[27] |
Allsop MJ, Chumbley K, Birtwistle J, et al. Building on sand:digital technologies for care coordination and advance care planning[J]. BMJ Support Palliat Care, 2022, 12(2):194-197.
DOI URL |
[28] |
Schöpfer C, Ehrler F, Berger A, et al. A mobile app for adva-nce care planning and advance directives (accordons-nous):development and usability study[J]. JMIR Hum Factors, 2022, 9(2):e34626.
DOI URL |
[29] | 医政医管局. 国家卫生计生委办公厅关于印发安宁疗护实践指南(试行)的通知[EB/OL].(2017-01-25)[2023-08-18]. http://www.nhc.gov.cn/cms-search/xxgk/getManuscriptXxgk.htm?id=3ec857f8c4a244e69b233ce2f5f270b3. |
Medical Authority. Circular of the General Office of the National Health and Family Planning Commission on issuing practical guidelines on hospice care(trial)[EB/OL]. (2017-01-25)[2023-08-18]. http://www.nhc.gov.cn/cms-search/xxgk/getManuscriptXxgk.htm?id=3ec857f8c4a244e69b233ce2f5f270b3. | |
[30] |
McCann L, McMillan KA, Pugh G. Digital interventions to support adolescents and young adults with cancer:systematic review[J]. JMIR Cancer, 2019, 5(2):e12071.
DOI URL |
[31] | Zolfaghari E, Ridout B, Medlow S, et al. Exploring the use of virtual reality to manage distress in adolescent patients in emergency departments:a feasibility study[J]. Emerg Med Aus-tralas, 2022, 34(5):687-693. |
[32] |
王心茹, 朱信雨, 贾玉玲, 等. 文化因素对安宁疗护实践影响的质性研究[J]. 中华护理杂志, 2023, 58(13):1552-1558.
DOI URL |
Wang XR, Zhu XY, Jia YL, et al. A qualitative study on the specificity of cultural factors in palliative care practice[J]. Chin J Nurs, 2023, 58(13):1552-1558.
DOI URL |
|
[33] |
逄天宇, 袁玲, 武丽桂, 等. 晚期癌症患者家属安宁疗护决策体验的质性研究[J]. 中华护理杂志, 2023, 58(13):1559-1564.
DOI URL |
Pang TY, Yuan L, Wu LG, et al. Qualitative study on pallia-tive care decision-making experience of family members of patients with advanced cancer[J]. Chin J Nurs, 2023, 58(13):1559-1564. |
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