中华护理杂志 ›› 2023, Vol. 58 ›› Issue (6): 689-694.DOI: 10.3761/j.issn.0254-1769.2023.06.007
收稿日期:
2022-05-25
出版日期:
2023-03-20
发布日期:
2023-03-23
通讯作者:
张立力,E-mail:zllw@fimmu.com作者简介:
张丰翼:女,本科(硕士在读),E-mail:2899462031@qq.com
ZHANG Fengyi(), LIU Suting, ZHANG Lili()
Received:
2022-05-25
Online:
2023-03-20
Published:
2023-03-23
摘要:
对于育龄期癌症患者来说,治疗带来的生育障碍和性功能障碍会显著影响其心理健康和生活质量,因此早期做出生育力保护的治疗决策尤为重要。决策辅助工具可以作为生育力保护信息的有益补充,帮助患者了解生育治疗方案并指导决策过程。该文对癌症患者生育力保护的重要性,决策辅助工具的类型、应用方法、效果及所面临问题进行综述,旨在为国内开发癌症患者生育力保护的决策辅助工具提供参考。
张丰翼, 刘素婷, 张立力. 决策辅助工具在癌症患者生育力保护中的应用进展[J]. 中华护理杂志, 2023, 58(6): 689-694.
ZHANG Fengyi, LIU Suting, ZHANG Lili. Research progress on application of patient decision aid in fertility preservation of cancer patients[J]. Chinese Journal of Nursing, 2023, 58(6): 689-694.
[1] |
Miller KD, Fidler-Benaoudia M, Keegan TH, et al. Cancer statistics for adolescents and young adults,2020[J]. CA A Cancer J Clin, 2020, 70(6):443-459.
DOI URL |
[2] |
Del-Pozo-Lérida S, Salvador C, Martínez-Soler F, et al. Preservation of fertility in patients with cancer(Review)[J]. Oncol Rep, 2019, 41(5):2607-2614.
DOI PMID |
[3] |
Mansky P, Arai A, Stratton P, et al. Treatment late effects in long-term survivors of pediatric sarcoma[J]. Pediatr Blood Cancer, 2007, 48(2):192-199.
PMID |
[4] | 刘晓华, 伍嘉宝, 唐运革. 肿瘤及其治疗对男性患者生育力的影响及遗传风险分析[J]. 中国计划生育学杂志, 2018, 26(5):415-419. |
Liu XH, Wu JB, Tang YG. Influence of cancer and antitumor therapy on fertility of male patients and its genetic risk analysis[J]. Chin J Fam Plan, 2018, 26(5):415-419. | |
[5] | 黄国宁. 生育力保护概述[J]. 实用妇产科杂志, 2016, 32(4):241-242. |
Huang GN. An overview of fertility protection[J]. J Pract Obstet Gynecol, 2016, 32(4):241-242. | |
[6] |
Schover LR. Patient attitudes toward fertility preservation[J]. Pediatr Blood Cancer, 2009, 53(2):281-284.
DOI PMID |
[7] | National Collaborating Centre for Women’s and Children’s HealthUK. Fertility:assessment and treatment for people with fertility problems[M]. London: Royal College of Obstetricians & Gynaecologists, 2013. |
[8] | Stacey D, Légaré F, Lewis K, et al. Decision aids for people facing health treatment or screening decisions[J]. Cochrane Database Syst Rev, 2017, 4(4):CD001431. |
[9] |
Garvelink MM ter Kuile MM, Fischer MJ, et al. Development of a decision aid about fertility preservation for women with breast cancer in the Netherlands[J]. J Psychosom Obstet Gynaecol, 2013, 34(4):170-178.
DOI URL |
[10] | de Angelis R, Sant M, Coleman MP, et al. Cancer survival in Europe 1999-2007 by country and age:results of EUROCARE:5-a population-based study[J]. Lancet Oncol, 2014, 15(1):23-34. |
[11] | 付子洁, 李晓冬. 化疗药物对卵巢功能的损伤机制及生育力保护[J]. 中华生殖与避孕杂志, 2018, 38(9):737-740. |
Fu ZJ, Li XD. Mechanisms of chemotherapy-induced ovarian damage and fertility preservation[J]. Chin J Reprod Contracept, 2018, 38(9):737-740. | |
[12] |
肖盼盼, 王璐, 孙倩, 等. 青年癌症患者生育相关心理痛苦的研究进展[J]. 中华护理杂志, 2020, 55(7):1097-1101.
DOI |
Xiao PP, Wang L, Sun Q, et al. Research progress on assessment and intervention strategies of fertility-related psychological distress in adolescents and young adults with cancer[J]. Chin J Nurs, 2020, 55(7):1097-1101. | |
[13] | 张含凤, 黄桂玉, 方迎红, 等. 恶性肿瘤患者生育力保护服务研究进展[J]. 护理学杂志, 2020, 35(9):103-107. |
Zhang HF, Huang GY, Fang YH, et al. Research progress of fertility preservation service for patients with malignant tumor[J]. J Nurs Sci, 2020, 35(9):103-107. | |
[14] |
van den Berg M, Baysal Ö, Nelen WLDM, et al. Professionals’ barriers in female oncofertility care and strategies for improvement[J]. Hum Reprod, 2019, 34(6):1074-1082.
DOI |
[15] |
Benedict C, Thom B, N Friedman D, et al. Young adult female cancer survivors’ unmet information needs and reproductive concerns contribute to decisional conflict regarding posttreatment fertility preservation[J]. Cancer, 2016, 122(13):2101-2109.
DOI URL |
[16] | 李玉, 叶志霞, 刘佩玉, 等. 癌症患者治疗决策辅助的研究进展[J]. 中华护理杂志, 2017, 52(1):28-33. |
Li Y, Ye ZX, Liu PY, et al. Research progress of decision aids in cancer patients’ treatment[J]. Chin J Nurs, 2017, 52(1):28-33. | |
[17] | Peate M, Meiser B, Friedlander M, et al. It’s now or never:fertility-related knowledge,decision-making preferences,and treatment intentions in young women with breast cancer:an Australian fertility decision aid collaborative group study[J]. J Clin Oncol, 2011, 29(13):1670-1677. |
[18] |
Hershberger PE, Finnegan L, Altfeld S, et al. Toward theoretical understanding of the fertility preservation decision-making process:examining information processing among young women with cancer[J]. Res Theory Nurs Pract, 2013, 27(4):257-275.
DOI URL |
[19] |
Woodard TL, Hoffman AS, Covarrubias LA, et al. The pathways fertility preservation decision aid website for women with cancer:development and field testing[J]. J Cancer Surviv, 2018, 12(1):101-114.
DOI PMID |
[20] | The Oncofertility Consortium. Oncofertility decision toll web portal[EB/OL]. (2020-11-27)[2022-05-24]. https://oncofertility.msu.edu/ . |
[21] |
van den Berg M, van der Meij E, Bos AME, et al. Development and testing of a tailored online fertility preservation decision aid for female cancer patients[J]. Cancer Med, 2021, 10(5):1576-1588.
DOI URL |
[22] |
Huyghe E, Martinetti P, Sui DW, et al. Banking on Fatherhood:pilot studies of a computerized educational tool on sperm banking before cancer treatment[J]. Psychooncology, 2009, 18(9):1011-1014.
DOI PMID |
[23] |
Gardino SL, Jeruss JS, Woodruff TK. Using decision trees to enhance interdisciplinary team work:the case of oncofertility[J]. J Assist Reprod Genet, 2010, 27(5):227-231.
DOI URL |
[24] |
Allingham C, Gillam L, McCarthy M, et al. Fertility preservation in children and adolescents with cancer:pilot of a decision aid for parents of children and adolescents with cancer[J]. JMIR Pediatr Parent, 2018, 1(2):e10463.
DOI URL |
[25] |
王松梅, 赵亚杰, 候莹鸽, 等. 青年女性癌症患者生育信息需求及支持的研究进展[J]. 中华护理杂志, 2022, 57(14):1777-1782.
DOI |
Wang SM, Zhao YJ, Hou YG, et al. Research advances on fertility information needs and support for adolescent and young adult female cancer patients[J]. Chin J Nurs, 2022, 57(14):1777-1782.
DOI |
|
[26] | Garvelink MM, Ter Kuile MM, Louwé LA, et al. Feasibility and effects of a decision aid about fertility preservation[J]. Hum Fertil(Camb), 2017, 20(2):104-112. |
[27] |
Becerra Pérez MM, Menear M, Brehaut JC, et al. Extent and predictors of decision regret about health care decisions:a systematic review[J]. Med Decis Making, 2016, 36(6):777-790.
DOI URL |
[28] |
Logan S, Perz J, Ussher JM, et al. Systematic review of fertility-related psychological distress in cancer patients:informing on an improved model of care[J]. Psycho-oncology, 2019, 28(1):22-30.
DOI URL |
[29] |
Letourneau JM, Ebbel EE, Katz PP, et al. Pretreatment fertility counseling and fertility preservation improve quality of life in reproductive age women with cancer[J]. Cancer, 2012, 118(6):1710-1717.
DOI PMID |
[30] |
Ehrbar V, Germeyer A, Nawroth F, et al. Long-term effectiveness of an online decision aid for female cancer patients regarding fertility preservation:knowledge,attitude,and decisional regret[J]. Acta Obstet Gynecol Scand, 2021, 100(6):1132-1139.
DOI URL |
[31] |
Wang YF, Anazodo A, Logan S. Systematic review of fertility preservation patient decision aids for cancer patients[J]. Psychooncology, 2019, 28(3):459-467.
DOI PMID |
[32] |
Logan S, Perz J, Ussher JM, et al. A systematic review of patient oncofertility support needs in reproductive cancer patients aged 14 to 45 years of age[J]. Psychooncology, 2018, 27(2):401-409.
DOI PMID |
[33] |
Zebrack B. Information and service needs for young adult cancer patients[J]. Support Care Cancer, 2008, 16(12):1353-1360.
DOI PMID |
[34] |
Lee RJ, Wakefield A, Foy S, et al. Facilitating reproductive choices:the impact of health services on the experiences of young women with breast cancer[J]. Psychooncology, 2011, 20(10):1044-1052.
DOI URL |
[35] |
Baysal, Bastings L, Beerendonk CC, et al. Decision-making in female fertility preservation is balancing the expected burden of fertility preservation treatment and the wish to conceive[J]. Hum Reprod, 2015, 30(7):1625-1634.
DOI URL |
[36] | 王彬, 李燕姿. 年轻乳腺癌患者生育力保存的治疗与伦理思考[J]. 中国医学伦理学, 2021, 34(1):88-92. |
Wang B, Li YZ. Treatment and ethical thinking of fertility preservation in young breast cancer patients[J]. Chin Med Ethics, 2021, 34(1):88-92. | |
[37] | Nahata L, Morgan TL, Lipak KG, et al. Perceptions of participating in family-centered fertility research among adolescent and young adult males newly diagnosed with cancer:a qualitative study[J]. Pediatr Blood Cancer, 2019, 66(11):e27966. |
[38] | 张含凤, 王国蓉, 曹茂秋, 等. 育龄男性癌症患者生育力保护知识及需求调查[J]. 护理学杂志, 2019, 34(3):23-27. |
Zhang HF, Wang GR, Cao MQ, et al. Knowledge and needs of fertility preservation in reproductive-aged male patients with cancer[J]. J Nurs Sci, 2019, 34(3):23-27. | |
[39] |
Anazodo A, Laws P, Logan S, et al. The development of an international oncofertility competency framework:a model to increase oncofertility implementation[J]. Oncologist, 2019, 24(12):e1450-e1459.
DOI URL |
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