中华护理杂志 ›› 2022, Vol. 57 ›› Issue (14): 1772-1776.DOI: 10.3761/j.issn.0254-1769.2022.14.016
收稿日期:2022-01-13
出版日期:2022-07-20
发布日期:2022-07-20
通讯作者:
张振香,E-mail: zhangzx6666@126.com作者简介:张鑫月:女,本科(硕士在读),护士,E-mail: 2395741262@qq.com
基金资助:
ZHANG Xinyue(
), ZHANG Zhenxiang(
), MEI Yongxia, REN Hui
Received:2022-01-13
Online:2022-07-20
Published:2022-07-20
摘要:
慢性病成为威胁居民健康的重大问题。自我倡权水平高的慢性病患者能够通过收集各种医疗信息,不断获取外部支持,从而主动选择更加适合自己的照护和治疗方式,以满足自身需求和愿望,更好地管理自身疾病。国外对慢性病患者自我倡权研究已经取得部分进展,而国内对此尚处于起步阶段。因此,该文对慢性病患者自我倡权的测评工具、影响因素、干预措施进行综述,以期为慢性病患者自我倡权的发展提供依据。
张鑫月, 张振香, 梅永霞, 任慧. 慢性病患者自我倡权研究进展[J]. 中华护理杂志, 2022, 57(14): 1772-1776.
ZHANG Xinyue, ZHANG Zhenxiang, MEI Yongxia, REN Hui. Self-advocacy in people with chronic diseases[J]. Chinese Journal of Nursing, 2022, 57(14): 1772-1776.
| [1] |
Global,regional,and national age-sex-specific mortality for 282 causes of death in 195 countries and territories,1980—2017:a systematic analysis for the global burden of disease study 2017[J]. Lancet, 2018, 392(10159):1736-1788.
DOI URL |
| [2] |
Zhao Y, Zhang P, Oldenburg B, et al. The impact of mental and physical multimorbidity on healthcare utilization and health spending in China:a nationwide longitudinal population-based study[J]. Int J Geriatr Psychiatry, 2021, 36(4):500-510.
DOI URL |
| [3] |
Brashers DE, Basinger ED, Rintamaki LS, et al. Taking control:the efficacy and durability of a peer-led uncertainty management intervention for people recently diagnosed with HIV[J]. Health Commun, 2017, 32(1):11-21.
PMID |
| [4] |
Hagan TL, Donovan HS. Ovarian cancer survivors’ experiences of self-advocacy:a focus group study[J]. Oncol Nurs Forum, 2013, 40(2):140-147.
DOI URL |
| [5] |
Martin LT, Schonlau M, Haas A, et al. Patient activation and advocacy:which literacy skills matter most[J]. J Health Commun, 2011, 16(Suppl 3):177-190.
DOI URL |
| [6] | Brashers DE, Klingle RS. The influence of activism on physi-cian-patient communication[Z]. Chicago: 1992. |
| [7] |
Walsh-Burke K, Marcusen C. Self-advocacy training for cancer survivors.The Cancer Survival Toolbox[J]. Cancer Pract, 1999, 7(6):297-301.
DOI URL |
| [8] |
Hagan TL, Donovan HS. Self-advocacy and cancer:a concept analysis[J]. J Adv Nurs, 2013, 69(10):2348-2359.
DOI URL |
| [9] | Schmidt EK, Faieta J, Tanner K. Scoping review of self-advocacy education interventions to improve care[J]. OTJR(Thorofare N J), 2020, 40(1):50-56. |
| [10] |
Daniels J, Struthers H, Soler J, et al. Building self-advocacy in HIV care: the use of role-play to examine healthcare access for HIV-positive MSM in rural South Africa[J]. Glob Health Promot, 2021, 28(3):32-40.
DOI PMID |
| [11] |
Thomas TH, Donovan HS, Rosenzweig MQ, et al. A conceptual framework of self-advocacy in women with cancer[J]. ANS Adv Nurs Sci, 2021, 44(1):E1-E13.
DOI URL |
| [12] | Ne’Eman A, Bascom J. Autistic self advocacy in the developmental disability movement[J]. Am J Bioeth, 2020, 20(4):25-27. |
| [13] | Carneiro LA, Nery DB, Silva R, et al. Empowerment in hearing rehabilitation:translation of self-advocacy checklists[J]. Codas, 2021, 33(6):e20200117. |
| [14] |
Brashers DE, Haas SM, Neidig JL. The patient self-advocacy scale:measuring patient involvement in health care decision-making interactions[J]. Health Commun, 1999, 11(2):97-121.
PMID |
| [15] |
Hermansen-Kobulnicky CJ. Measurement of self-advocacy in cancer patients and survivors[J]. Support Care Cancer, 2008, 16(6):613-618.
DOI PMID |
| [16] | Vahdat S, Hamzehgardeshi L, Hamzehgardeshi Z, et al. Psychometric properties of the Patient Self-Advocacy Scale:the persian version[J]. Iran J Med Sci, 2015, 40(4):349-355. |
| [17] |
Elder NC, Regan SL, Pallerla H, et al. Development of an instrument to measure seniors’ patient safety health beliefs:the seniors empowerment and advocacy in patient safety(SEAPS) survey[J]. Patient Educ Couns, 2007, 69(1-3):100-107.
DOI URL |
| [18] |
Lenaghan NA. Transitional care and empowerment of the older adult[J]. Geriatr Nurs, 2019, 40(2):148-153.
DOI PMID |
| [19] |
Hagan TL, Cohen S, Stone C, et al. Theoretical to tangible:creating a measure of self-advocacy for female cancer survivors[J]. J Nurs Meas, 2016, 24(3):428-441.
DOI URL |
| [20] |
Jebb AT, Ng V, Tay L. A review of Key Likert Scale develop-ment advances:1995-2019[J]. Front Psychol, 2021, 12:637547.
DOI URL |
| [21] |
Hagan TL, Cohen SM, Rosenzweig MQ, et al. The Female Self-Advocacy in Cancer Survivorship Scale:a validation study[J]. J Adv Nurs, 2018, 74(4):976-987.
DOI URL |
| [22] | 冯翎, 谭兰惠, 喻惠丹. 女性癌症幸存者自我倡权量表的汉化与信效度检验[J]. 护理研究, 2021, 35(3):377-381. |
| Feng L, Tan LH, Yu HD. Chinese version of Female Self Advocacy in Cancer Survivorship and its reliability and validity test[J]. Chin Nurs Res, 2021, 35(3):377-381. | |
| [23] |
Hawley L, Gerber D, Pretz C, et al. Initial validation of personal self-advocacy measures for individuals with acquired brain injury[J]. Rehabil Psychol, 2016, 61(3):308-316.
DOI URL |
| [24] |
Kolmes SK, Boerstler KR. Is there a gender self-advocacy gap? An empiric investigation into the gender pain gap[J]. J Bioeth Inq, 2020, 17(3):383-393.
DOI URL |
| [25] |
Novinmehr N, Hasanpour M, Salsali M, et al. Older adults’ self-advocacy in patient safety:a cross-sectional study[J]. Br J Nurs, 2019, 28(16):1076-1084.
DOI PMID |
| [26] |
Hagan TL, Gilbertson-White S, Cohen SM, et al. Symptom burden and self-advocacy:exploring the relationship among female cancer survivors[J]. Clin J Oncol Nurs, 2018, 22(1):E23-E30.
DOI URL |
| [27] |
Fenn K, Scior K. The psychological and social impact of self-advocacy group membership on people with intellectual disabilities:a literature review[J]. J Appl Res Intellect Disabil, 2019, 32(6):1349-1358.
DOI URL |
| [28] |
Tilley E, Strnadová I, Danker J, et al. The impact of self-advocacy organizations on the subjective well-being of people with intellectual disabilities:a systematic review of the literature[J]. J Appl Res Intellect Disabil, 2020, 33(6):1151-1165.
DOI URL |
| [29] |
Michael R, Zidan HM. Differences in self-advocacy among hard of hearing and typical hearing students[J]. Res Dev Disabil, 2018, 72:118-127.
DOI PMID |
| [30] |
Hagan TH, Rosenzweig M, Zorn K, et al. Perspectives on self-advocacy:comparing perceived uses,benefits,and drawbacks among survivors and providers[J]. Oncol Nurs Forum, 2017, 44(1):52-59.
DOI URL |
| [31] | 王永, 王振宏. 书写表达及其对身心健康的作用[J]. 心理科学进展, 2010, 18(2):314-321. |
| Wang Y, Wang ZH. Expressive writing and its role to improve physical and mental health[J]. Advanc Psychol Sci, 2010, 18(2):314-321. | |
| [32] | Cuenca-Carlino Y, Mustian AL. Self-regulated strategy development:connecting persuasive writing to self-advocacy for students with emotional and behavioral disorders[J]. Behavio-ral Disorders, 2013, 39(1):3-15. |
| [33] |
Hawley L, Morey C, Sevigny M, et al. Enhancing self-advocacy after traumatic brain injury:a randomized controlled trial[J]. J Head Trauma Rehabil, 2021, 37(2):114-124.
DOI URL |
| [34] |
Hawley L, Gerber D, Morey C. Improving personal self-advocacy skills for individuals with brain injury:a randomized pilot feasibility study[J]. Brain Inj, 2017, 31(3):290-296.
DOI URL |
| [35] |
陈姚娟, 莫霖, 郭小利, 等. 互联网+多元联动模式在恶性肿瘤患儿PICC居家延续性护理中的应用[J]. 中华护理杂志, 2020, 55(5): 756-761.
DOI |
| Chen YJ, Mo L, Guo XL, et al. Application of Internet plus multiple linkage on home-based continuous nursing care for PICC in children with malignant tumor[J]. Chin J Nurs, 2020, 55(5): 756-761. | |
| [36] |
施素华, 王培莉, 邹琼芳, 等. “互联网+”营养教育在维持性血液透析患者中的应用[J]. 中华护理杂志, 2021, 56(1):33-38.
DOI |
| Shi SH, Wang PL, Zou QF, et al. Application of “Internet +”nutrition education on patients with maintenance hemodialysis[J]. Chin J Nurs, 2021, 56(1):33-38. | |
| [37] | 张冲, 万新月. 互联网普及对我国人均医疗费用的影响研究[J]. 中国卫生经济, 2019, 38(6):30-32. |
| Zhang C, Wan XY. Research on the impact of internet popularity on the per capita medical expences in China[J]. Chin Health Economics, 2019, 38(6):30-32. | |
| [38] |
Hoffman AS, Lowenstein LM, Kamath GR, et al. An entertainment-education colorectal cancer screening decision aid for African American patients:a randomized controlled trial[J]. Cancer, 2017, 123(8):1401-1408.
DOI PMID |
| [39] |
Volk RJ, Jibaja-Weiss ML, Hawley ST, et al. Entertainment edu-cation for prostate cancer screening:a randomized trial among primary care patients with low health literacy[J]. Patient Educ Couns, 2008, 73(3):482-489.
DOI URL |
| [40] |
Stewart M, Letourneau N, Masuda JR, et al. Online support for children with asthma and allergies[J]. J Fam Nurs, 2013, 19(2):171-197.
DOI PMID |
| [41] |
Feldman MA, Owen F, Andrews A, et al. Health self-advocacy training for persons with intellectual disabilities[J]. J Intellect Disabil Res, 2012, 56(11):1110-1121.
DOI URL |
| [42] | 张嘉欣, 郑乔木, 周菁鑫, 等. 同伴支持在早产儿父母中的研究进展[J]. 中华护理杂志, 2022, 57(2):245-250. |
| Zhang JX, Zheng QM, Zhou JX, et al. Research progress on peer support for parents of premature infants[J]. Chin J Nurs, 2022, 57(2):245-250. | |
| [43] |
朱飘飘, 谭惠仪. 同伴支持在烧伤患者康复中的应用进展[J]. 中华护理杂志, 2019, 54(9):1410-1414.
DOI |
| Zhu PP, Tan HY. Advances in the use of peer support in the rehabilitation of burn victims[J]. Chin J Nurs, 2019, 54(9):1410-1414. | |
| [44] |
Jonikas JA, Grey DD, Copeland ME, et al. Improving propensity for patient self-advocacy through wellness recovery action planning:results of a randomized controlled trial[J]. Community Ment Health J, 2013, 49(3):260-269.
DOI URL |
| [45] |
严芳, 姚丰菊, 李拴荣, 等. 同伴支持在社区精神分裂症患者中的应用[J]. 中华护理杂志, 2019, 54(10):1545-1550.
DOI |
| Yan F, Yao FJ, Li SR, et al. Application of peer support in community mental health services to patients with schizoph-renia[J]. Chin J Nurs, 2019, 54(10):1545-1550. |
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