帕金森病患者姑息照护的研究进展

doi:10.3761/j.issn.0254-1769.2020.05.031

摘要/Abstract

摘要：

介绍国外帕金森病患者姑息照护的现状,总结帕金森病患者姑息照护的发展历程、实施时机、实施形式、实施内容和常用的评价工具,以期为我国帕金森病患者姑息照护模式的建立和开展提供借鉴。

关键词: 帕金森病, 姑息照护, 临终关怀, 综述

Key words: Parkinson’s Disease, Palliative Care, Hospice Care, Review

何月月, 刘思雨, 尹安春, 黄秀美, 张世西. 帕金森病患者姑息照护的研究进展[J]. 中华护理杂志, 2020, 55(5): 786-790.

参考文献 39

[1]	王刚, 崔海伦, 刘军 , 等. 帕金森病发病机制及诊断与治疗转化研究进展[J]. 中国现代神经疾病杂志, 2018,18(1):19-24.
[2]	王丽云, 刘丽星, 吕海军 , 等. 抗帕金森病药物的研究进展[J]. 中国药房, 2017,28(8):1143-1149.
[3]	Salat D, Noyce A J, Schrag A , et al. Challenges of modifying disease progression in prediagnostic Parkinson’s disease[J]. Lancet Neurol, 2016,15(6):637-648. DOI URL PMID
[4]	Connor SR, Gwyther E . The worldwide hospice palliative care alliance[J]. J Pain Symptom Manage, 2018,55(2s):S112-S116. DOI URL PMID
[5]	韩鸽鸽, 陈长英, 崔盼盼 , 等. 慢性心力衰竭患者姑息照护的研究进展[J]. 中华护理杂志, 2019,54(3):462-466.
[6]	陆宇晗 . 我国安宁疗护的现状及发展方向[J]. 中华护理杂志, 2017,52(6):659-664.
[7]	侯振华, 刘彦慧, 张春梅 , 等. 姑息护理概念分析[J]. 护理研究, 2019,33(15):2582-2585.
[8]	Katz M, Goto Y, Kluger BM , et al. Top ten tips palliative care clinicians should know about Parkinson’s disease and related disorders[J]. J Palliat Med, 2018,21(10):1507-1517. DOI URL PMID
[9]	Finn L, Malhotra S . The development of pathways in palliative medicine:definition,models,cost and quality impact[J]. Heal-thcare(Basel), 2019,7(1):E22. DOI URL PMID
[10]	Rosenberg M, Lamba S, Misra S . Palliative medicine and geriatric emergency care:challenges,opportunities,and basic principles[J]. Clin Geriatr Med, 2013,29(1):1-29. DOI URL PMID
[11]	Miyasaki JM . Palliative care in Parkinson’s disease[J]. Curr Neurol Neurosci Rep, 2013,13(8):367. DOI URL PMID
[12]	Saleem TZ, Higginson IJ, Chaudhuri KR , et al. Symptom preva-lence,severity and palliative care needs assessment using the Palliative Outcome Scale:a cross-sectional study of patients with Parkinson’s disease and related neurological conditions[J]. Palliat Med, 2013,27(8):722-731. DOI URL PMID
[13]	Hall K, Sumrall M, Thelen G , et al. Palliative care for Parkinson’s disease:suggestions from a council of patient and carepartners[J]. NPJ Parkinsons Dis, 2017,3(1):16.
[14]	Klietz M, Tulke A, Muschen LH , et al. Impaired quality of life and need for palliative care in a German cohort of advanced Parkinson’s disease patients[J]. Front Neurol, 2018,9:120. DOI URL PMID
[15]	Kluger BM, Katz M, Galifianakis N , et al. Does outpatient palliative care improve patient-centered outcomes in Parkinson’s disease:rationale,design,and implementation of a pragmatic comparative effectiveness trial[J]. Contemp Clin Trials, 2019,79:28-36. DOI URL PMID
[16]	Goy ER, Bohlig A, Carter J , et al. Identifying predictors of hos-pice eligibility in patients with Parkinson disease[J]. Am J Hosp Palliat Care, 2015,32(1):29-33. DOI URL PMID
[17]	The GSF Proactive Identification Guidance（PIG）2016 the gold standards framework centre in end of life care[EB/OL].(2017 -12-1)[2019-07-10]. http://www.goldstandardsframework.org.uk/cd-content/uploads/files/PIG/NEW%20PIG%20-%20%20%20.
[18]	Ng JSC . Palliative care for Parkinson’s disease[J]. Ann Palliat Med, 2018,7(3):296-303. DOI URL PMID
[19]	Miyasaki JM, Long J, Mancini D , et al. Palliative care for advanced Parkinson disease:an interdisciplinary clinic and new scale,the ESAS-PD[J]. Parkinsonism Relat Disord, 2012,18(S3):S6-9. DOI URL PMID
[20]	Kluger BM, Fox S, Timmons S , et al. Palliative care and Park-inson’s disease:meeting summary and recommendations for clinical research[J]. Parkinsonism Relat Disord, 2017,37:19-26. DOI URL PMID
[21]	Titova N, Chaudhuri KR . Palliative care and nonmotor symptoms in Parkinson’s disease and parkinsonism[J]. Int Rev Neu-robiol, 2017,134:1239-1255.
[22]	Pedersen SW, Suedmeyer M, Liu LW , et al. The role and stru-cture of the multidisciplinary team in the management of advanced Parkinson’s disease with a focus on the use of levodopa-carbidopa intestinal gel[J]. J Multidiscip Healthc, 2017,10:13-27. DOI URL PMID
[23]	彭琰, 张杰, 王治仁 , 等. 医科院校临终关怀教育初步调查[J]. 军医进修学院学报, 2010,31(3):286-287.
[24]	张君, 俞翌, 江蓉 . 康复运动干预对帕金森病病人肢体运动功能和生活自理能力的影响[J]. 护理研究, 2018,32(21):3410-3413.
[25]	Boersma I, Jones J, Carter J , et al. Parkinson disease patients’ perspectives on palliative care needs:what are they telling us?[J]. Neurol Clin Pract, 2016,6(3):209-219. DOI URL PMID
[26]	Cui SS, Du JJ, Fu R , et al. Prevalence and risk factors for depression and anxiety in Chinese patients with Parkinson disease[J]. BMC Geriatr, 2017,17(1):270. DOI URL PMID
[27]	何月月, 刘思雨, 黄秀美 , 等. 帕金森病患者病耻感的研究现状[J]. 医学与哲学(B), 2018,39(12):53-56.
[28]	Fox S, Cashell A, Kernohan WG , et al. Palliative care for Par-kinson’s disease:patient and carer’s perspectives explored through qualitative interview[J]. Palliat Med, 2017,31(7):634-641. DOI URL PMID
[29]	Lewis CR, de Vedia A, Reuer B , et al. Integrating complemen-tary and alternative medicine(CAM) into standard hospice and palliative care[J]. Am J Hosp Palliat Care, 2003,20(3):221-228. DOI URL PMID
[30]	Bouca-Machado R, Lennaerts-Kats H, Bloem B , et al. Why pallia-tive care applies to Parkinson’s disease[J]. Mov Disord, 2018,33(5):750-753. DOI URL PMID
[31]	Chen Q, Flaherty JH, Guo JH , et al. Attitudes of older Chinese patients toward death and dying[J]. J Palliat Med, 2017,20(12):1389-1394. DOI URL PMID
[32]	高月乔, 田丽, 冯娅婷 , 等. 血液肿瘤患者姑息护理的现状及发展对策研究进展[J]. 中华护理杂志, 2016,51(10):1237-1239.
[33]	Richfield EW, Jones EJ, Alty JE . Palliative care for parkinson’s disease:a summary of the evidence and future directions[J]. Palliat Med, 2013,27(9):805-810. DOI URL PMID
[34]	Lee MA, Prentice WM, Hildreth AJ , et al. Measuring symptom load in idiopathic Parkinson’s disease[J]. Parkinsonism Relat Disord, 2007,13(5):284-289. DOI URL PMID
[35]	Waller A, Girgis A, Lecathelinais C , et al. Validity,reliability and clinical feasibility of a Needs Assessment Tool for people with progressive cancer[J]. Psychooncology, 2010,19(7):726-733. DOI URL PMID
[36]	Hui D, Bruera E . The edmonton symptom assessment system 25 years later:past,present,and future developments[J]. J Pain Symptom Manage, 2017,53(3):630-643. DOI URL PMID
[37]	黄峥 . 基于NICE指南的姑息护理在心力衰竭终末期患者中的应用[J]. 中华现代护理杂志, 2019,13(25):1655-1658.
[38]	刘小英 . 重度慢性阻塞性肺疾病患者姑息照护需求水平及其影响因素分析[J]. 中国护理管理, 2016,16(3):332-336.
[39]	Holden SK, Koljack CE, Prizer LP , et al. Measuring quality of life in palliative care for Parkinson’s disease:a clinimetric comparison[J]. Parkinsonism Relat Disord, 2019(19):S1353.

帕金森病患者姑息照护的研究进展

RichHTML

PDF

可视化

摘要/Abstract

引用本文

使用本文

参考文献 39

相关文章 15

编辑推荐

Metrics

[1]	刘梦媛, 田凌云, 蒋敬, 冯心语, 李卫娟, 罗慧, 李映兰. 护士在跨专业合作中伦理冲突的范围综述[J]. 中华护理杂志, 2024, 59(9): 1138-1144.
[2]	崔怡爽, 何细飞, 王昭昭, 程捷, 杨伟梅, 陆丽娟. 共享决策在急性冠脉综合征患者中应用的范围综述[J]. 中华护理杂志, 2024, 59(9): 1145-1152.
[3]	张小艳, 李学靖, 杨丹, 孟美琪, 郝玉芳. 老年人久坐行为干预策略的范围综述[J]. 中华护理杂志, 2024, 59(8): 1012-1020.
[4]	余良梦, 俞小玲, 李佳镁, 阮晓芬. 证据图谱在护理学领域的应用进展[J]. 中华护理杂志, 2024, 59(8): 1021-1025.
[5]	房钰, 郝媛媛, 张晨, 董莹, 吴赢鑫, 姜桂春. 癌症患者决策疲劳的研究进展及护理启示[J]. 中华护理杂志, 2024, 59(8): 941-946.
[6]	叶磊, 夏广惠, 陈方梅, 田宇燕, 祁玮. 虚拟现实技术在癌症相关认知障碍患者中应用的范围综述[J]. 中华护理杂志, 2024, 59(7): 882-889.
[7]	熊桃, 谭雪梅, 罗静, 李阳, 郑予希, 李奉玲, 魏雪梅, 崔丽君, 罗澜峻. 脑卒中患者康复动机评估工具的研究进展[J]. 中华护理杂志, 2024, 59(7): 890-896.
[8]	颜钰, 龚姝, 段棣飞, 马登艳. 知识图谱在慢性病患者饮食管理中的应用进展[J]. 中华护理杂志, 2024, 59(6): 753-757.
[9]	邓艺帆, 王建宁, 彭梦婷, 洪杜. 决策辅助工具在失智症患者照护中应用的范围综述[J]. 中华护理杂志, 2024, 59(6): 758-763.
[10]	韦双双, 游雪梅, 杨莉洁, 李繁荣, 唐如冰. 临终患儿父母哀伤辅导的证据总结[J]. 中华护理杂志, 2024, 59(5): 540-546.
[11]	张淼淼, 张丽, 闫荣, 丁敏, 孟祥敏, 徐萍. 网络哀伤辅导在安宁疗护中的应用进展[J]. 中华护理杂志, 2024, 59(5): 556-561.
[12]	徐榕璟, 贺旭妍, 贾守梅. 骨科老年患者术后运动恐惧的范围综述[J]. 中华护理杂志, 2024, 59(5): 626-633.
[13]	王思琦, 范玲. 护士出勤主义行为的研究进展[J]. 中华护理杂志, 2024, 59(5): 634-640.
[14]	应钰皑, 孙蕊, 胡晨, 王耀伦, 周兰兰, 胡宏鸯. 运动锻炼对帕金森病患者睡眠质量影响的Meta分析[J]. 中华护理杂志, 2024, 59(4): 482-489.
[15]	王晴, 黄晓婷, 唐四元, 黄重梅. 即时适配干预在护理领域中的应用进展[J]. 中华护理杂志, 2024, 59(4): 490-495.