中华护理杂志 ›› 2021, Vol. 56 ›› Issue (1): 86-90.DOI: 10.3761/j.issn.0254-1769.2021.01.014
蔡立柏(),刘延锦(),孙箫音,杜若飞,郭园丽,王爱霞,崔妙然
收稿日期:
2020-01-26
出版日期:
2021-01-15
发布日期:
2021-01-15
通讯作者:
刘延锦
作者简介:
蔡立柏:男,硕士,主管护师, E-mail: CAI Libai(),LIU Yanjin(),SUN Xiaoyin,DU Ruofei,GUO Yuanli,WANG Aixia,CUI Miaoran
Received:
2020-01-26
Online:
2021-01-15
Published:
2021-01-15
Contact:
Yanjin LIU
摘要:
目的 了解青少年癫痫患者的疾病感受和体验,旨在为青少年癫痫患者护理干预策略的制订提供参考依据。 方法 采用现象学研究法,选取2019年10月—12月在郑州市某三级甲等综合医院住院的13例青少年癫痫患者,对其进行半结构式深入访谈,并采用Colaizzi 7步分析法对访谈资料进行分析、归纳及提炼主题。结果 青少年癫痫患者的疾病感受和体验可归纳为4个主题:①疾病自我管理能力不足;②生活质量下降;③自我感受负担明显;④期待理解与社会支持。 结论 青少年癫痫患者在生理、心理、社会等方面存在诸多负担和需求,护士应密切关注此类患者的情绪反应和心理感受,给予有针对性的心理疏导和多维度的社会支持。
蔡立柏,刘延锦,孙箫音,杜若飞,郭园丽,王爱霞,崔妙然. 青少年癫痫患者疾病感受和体验的质性研究[J]. 中华护理杂志, 2021, 56(1): 86-90.
CAI Libai,LIU Yanjin,SUN Xiaoyin,DU Ruofei,GUO Yuanli,WANG Aixia,CUI Miaoran. A qualitative research on perceptions and experience of adolescents with epilepsy[J]. Chinese Journal of Nursing, 2021, 56(1): 86-90.
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