普拉德-威利综合征患儿父母家庭管理困境及应对体验的质性研究
张珺钰, 马明圣, 文永乐, 赵维谦, 孙静, 李杨
A qualitative study on the family management dilemma and coping experience of parents of children with Prader-Willi syndrome
ZHANG Junyu, MA Mingsheng, WEN Yongle, ZHAO Weiqian, SUN Jing, LI Yang
中华护理杂志
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2026, (16): 2225
-2230
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DOI: 10.3761/j.issn.0254-1769.2026.16.009
