围产期丧失胎儿产妇对基于安宁疗护告别仪式体验的质性研究

doi:10.3761/j.issn.0254-1769.2022.24.004

中华护理杂志 ›› 2022, Vol. 57 ›› Issue (24): 2971-2976.DOI: 10.3761/j.issn.0254-1769.2022.24.004

围产期丧失胎儿产妇对基于安宁疗护告别仪式体验的质性研究

徐萍(), 王璇(), 单春剑, 田莹莹, 蒲丛珊, 王义婷, 宫婷, 姚露

210000 南京市南京医科大学附属妇产医院计划生育科（徐萍，王璇，宫婷，姚露），护理部（单春剑，田莹莹），产科（蒲丛珊，王义婷）

收稿日期:2022-03-01 出版日期:2022-12-20 发布日期:2022-12-23
通讯作者: 王璇，E-mail：ycwx134569@126.com
作者简介:徐萍：女，本科，副主任护师，护士长，E-mail：704607809@qq.com
基金资助:
江苏省妇幼保健协会科研项目(FYX202108);南京市卫生科技发展专项资金项目(YKK20136);南京医科大学科技发展基金项目(NMUB2020125)

A qualitative study on the experience of farewell ceremony based on perinatal care for women with perinatal loss of fetus

XU Ping(), WANG Xuan(), SHAN Chunjian, TIAN Yingying, PU Congshan, WANG Yiting, GONG Ting, YAO Lu

Received:2022-03-01 Online:2022-12-20 Published:2022-12-23

摘要/Abstract

摘要：

目的深入了解围产期丧失胎儿产妇经历基于安宁疗护告别仪式的内心感受。方法采用目的抽样法，选取2020年3月—2021年3月南京市某三级甲等妇产专科医院的15例围产期丧失胎儿经历基于安宁疗护告别仪式的产妇进行半结构式深入访谈，运用Colaizzi 7步分析法分析访谈资料，提炼主题。结果围产期丧失胎儿产妇对基于安宁疗护告别仪式的体验可归纳为3个主题：告别仪式的需求、复杂的情感交织、感知社会支持的改变。结论基于安宁疗护的告别仪式可以使围产期丧失胎儿产妇的负性情绪得到合理的宣泄，帮助其缓解紧张、焦虑情绪，减轻丧失带来的痛苦，降低抑郁的发生。护理人员应重视围产期丧失胎儿产妇的心理需求，通过专业的技术和手段，帮助其正确面对并接受丧失现实，最终实现家庭健康发展。

关键词: 围产期丧失胎儿, 告别仪式, 质性研究, 安宁疗护, 产科护理

Abstract:

Objective To deeply understand the inner feelings of farewell ceremony on pregnant women with perinatal loss of fetus. Methods A descriptive qualitative approach was conducted and a total of 15 women experiencing perinatal loss were enrolled for semi-structural in-depth interviews between March 2020 to March 2021 from a tertiary A obstetrics and gynecology hospital in Nanjing. The Colaizzi method was used to analyze the data. Results 3 themes were extracted，namely needs of farewell ceremony，the interweaving of complex emotions，change of perceived social support. Conclusion The farewell ceremony based on hospice care can help mothers reasonably release their negative emotions of perinatal loss，help them relieve stress，anxiety，ease the pain of loss，reduce the occurrence of the depression. Nursing staff should pay attention to perinatal maternal psychological needs，and help them face and accept the reality of the loss with professional technology and means，and ultimately realize the healthy development of family.

Key words: Perinatal Loss of Fetus, Farewell Ceremony, Qualitative Study, Palliative Care, Obstetrical Nursing

徐萍, 王璇, 单春剑, 田莹莹, 蒲丛珊, 王义婷, 宫婷, 姚露. 围产期丧失胎儿产妇对基于安宁疗护告别仪式体验的质性研究[J]. 中华护理杂志, 2022, 57(24): 2971-2976.

XU Ping, WANG Xuan, SHAN Chunjian, TIAN Yingying, PU Congshan, WANG Yiting, GONG Ting, YAO Lu. A qualitative study on the experience of farewell ceremony based on perinatal care for women with perinatal loss of fetus[J]. Chinese Journal of Nursing, 2022, 57(24): 2971-2976.

图/表 1

参考文献 24

[1]	DeBackere KJ, Hill PD, Kavanaugh KL. The parental experience of pregnancy after perinatal loss[J]. J Obstet Gynecol Neonatal Nurs, 2008, 37(5):525-537. DOI URL
[2]	刘颖, 赵敏慧. 对围产期丧失胎儿或新生儿家庭进行悲伤支持的研究进展[J]. 中华护理杂志, 2019, 54(1):125-130.
	Liu Y, Zhao MH. Caring for families experiencing perinatal loss:a literature review[J]. Chin J Nurs, 2019, 54(1):125-130.
[3]	Kersting A, Wagner B. Complicated grief after perinatal loss[J]. Dialogues Clin Neurosci, 2012, 14(2):187-194. DOI URL
[4]	World Health Organization. Definition of palliative care[EB/OL].(2020-08-15)[2021-12-22]. https://www.who.int/news-room/fact-sheets/detail/palliative-care.
[5]	Peters MDJ, Lisy K, Riitano D, et al. Caring for families experiencing stillbirth:evidence-based guidance for maternity care providers[J]. Women Birth, 2015, 28(4):272-278. DOI PMID
[6]	Queensland Clinical Guidelines. Stillbirth care[EB/OL]. (2019-10-01)[2020-10-15]. https://www.health.qld.gov.au/_data/assets/pdf_file/0023/143087/g-stillbirth.pdf.
[7]	Perinatal Society of Australia &New Zealand. Clinical practice guideline for care around stillbirth and neonatal death[EB/OL]. (2019-02-01)[2021-10-15]. https://sanda.psanz.com.au/clinical-practice/clinical-guidelines/.
[8]	Health Service Executive. National standards for bereavement care following pregnancy loss and perinatal death[EB/OL]. (2016-08-10)[2021-10-15]. .
[9]	李峥, 刘宇. 护理学研究方法[M]. 2版. 北京: 人民卫生出版社, 2018.
	Li Z, Liu Y. Methods of nursing research[M]. 2nd ed. Beijing: People’s Medical Publishing House,2018.
[10]	吴金花, 倪志红, 赵雪萍, 等. 肠造口新生儿家长照护体验的质性研究[J]. 中华护理杂志, 2021, 56(11):1627-1633. DOI
	Wu JH, Ni ZH, Zhao XP, et al. Caring experiences of parents of neonates with enterotomy:a qualitative study[J]. Chin J Nurs, 2021, 56(11):1627-1633.
[11]	Heazell AEP, Leisher S, Cregan M, et al. Sharing experiences to improve bereavement support and clinical care after stillbirth:report of the 7th annual meeting of the International Stillbirth Alliance[J]. Acta Obstet Gynecol Scand, 2013, 92(3):352-361. DOI URL
[12]	陈佳丽, 曾莉. ICU护士照护长期昏迷患者真实体验的研究[J]. 中华护理杂志, 2020, 55(3):422-426. DOI
	Chen JL, Zeng L. Study on the real caring experience of intensive care unit nurses on patients with long-term coma[J]. Chin J Nurs, 2020, 55(3):422-426. DOI
[13]	Gold KJ, Leon I, Boggs ME, et al. Depression and posttraumatic stress symptoms after perinatal loss in a population-based sample[J]. J Womens Health (Larchmt), 2016, 25(3):263-269. DOI PMID
[14]	Brandão T, Brites R, Pires M, et al. Anxiety,depression,dyadic adjustment,and attachment to the fetus in pregnancy:actor-partner interdependence mediation analysis[J]. J Fam Psychol, 2019, 33(3):294-303. DOI PMID
[15]	Korenromp MJ, Page-Christiaens GC, van den Bout J, et al. Adjustment to termination of pregnancy for fetal anomaly:a longitudinal study in women at 4,8,and 16 months[J]. Am J Obstet Gynecol, 2009, 201(2):160.e1-160.e7.
[16]	Koopmans L, Wilson T, Cacciatore J, et al. Support for mothers,fathers and families after perinatal death[J]. Cochrane Database Syst Rev, 2013(6):CD000452.
[17]	O’Connell O, Meaney S, O’Donoghue K. Caring for parents at the time of stillbirth:how can we do better?[J]. Women Birth, 2016, 29(4):345-349. DOI URL
[18]	Tseng YF, Chen YP, Cheng PT, et al. The childbearing experiences of Taiwanese women after a stillbirth[J]. Hu Li Za Zhi, 2016, 63(3):52-61.
[19]	Heazell AEP, Siassakos D, Blencowe H, et al. Stillbirths:economic and psychosocial consequences[J]. Lancet, 2016, 387(10018):604-616. DOI URL
[20]	Inati V, Matic M, Phillips C, et al. A survey of the experiences of families with bereavement support services following a perinatal loss[J]. Aust N Z J Obstet Gynaecol, 2018, 58(1):54-63. DOI PMID
[21]	Ellis A, Chebsey C, Storey C, et al. Systematic review to understand and improve care after stillbirth:a review of parents’ and healthcare professionals’ experiences[J]. BMC Pregnancy Childbirth, 2016, 16:16. DOI URL
[22]	Lou S, Jensen LG, Petersen OB, et al. Parental response to severe or lethal prenatal diagnosis:a systematic review of qualitative studies[J]. Prenat Diagn, 2017, 37(8):731-743. DOI URL
[23]	Bakhbakhi D, Burden C, Storey C, et al. Care following stillbirth in high-resource settings:latest evidence,guidelines,and best practice points[J]. Semin Fetal Neonatal Med, 2017, 22(3):161-166. DOI PMID
[24]	Siassakos D, Jackson S, Gleeson K, et al. All bereaved parents are entitled to good care after stillbirth:a mixed-methods multicentre study(INSIGHT)[J]. BJOG, 2018, 125(2):160-170. DOI URL

围产期丧失胎儿产妇对基于安宁疗护告别仪式体验的质性研究

A qualitative study on the experience of farewell ceremony based on perinatal care for women with perinatal loss of fetus

RichHTML

PDF

可视化

摘要/Abstract

引用本文

使用本文

图/表 1

参考文献 24

相关文章 15

编辑推荐

Metrics

[1]	成磊, 钱佳艺, 段明霞, 黄海英, 王颖雯. 专业照护者感知的癌症患儿向成人过渡影响因素的质性研究[J]. 中华护理杂志, 2022, 57(9): 1048-1053.
[2]	李梦婷, 陈朔晖, 陈晓飞, 程晓英, 罗飞翔, 梅伶俐, 周金燕. 医护人员对新生儿安宁疗护感受和经验的质性研究[J]. 中华护理杂志, 2022, 57(8): 908-913.
[3]	周瑶, 王薇, 陈敏娜, 张若林, 洪美容, 高雅婷, 林颖, 楼妍. 前列腺癌患者疾病体验质性研究的Meta整合[J]. 中华护理杂志, 2022, 57(8): 925-931.
[4]	徐园, 吴欣娟, 杨旭, 王钰, 庞冬, 王晓杰, 刘佳, 尚高鹏, 姜英, 朱丽筠, 马玉芬. 护士应用预防关节置换术后深静脉血栓形成最佳证据的障碍因素研究[J]. 中华护理杂志, 2022, 57(8): 958-963.
[5]	孙丽, 胡成文, 刘群慧, 方敏, 顾道琴, 许宝惠. 1例急性白血病患儿的安宁疗护实践[J]. 中华护理杂志, 2022, 57(8): 992-995.
[6]	尚超娜, 王剑英, 宋涛, 张俊蕾, 张冬红. 伴非自杀性自伤行为心境障碍青少年患者心理体验的质性研究[J]. 中华护理杂志, 2022, 57(7): 827-833.
[7]	古钰君, 张国增, 冯宪凌, 白杨, 岳岚, 王梦. 癌症患者化疗所致脱发心理体验质性研究的Meta整合[J]. 中华护理杂志, 2022, 57(7): 872-879.
[8]	孙燕燕, 吴婷, 柯宇静, 施丽丽. 肺移植受者心理体验质性研究的Meta整合[J]. 中华护理杂志, 2022, 57(6): 673-679.
[9]	童静韬, 王颖, 倪平, 杨雪柯, 吴梅利洋, 曾莹, 夏莹, 夏雯琳. 乳腺癌患者术后肢体功能康复行为的质性研究[J]. 中华护理杂志, 2022, 57(6): 711-717.
[10]	梅伶俐, 陈朔晖, 胡艳, 翁冬芳, 周金燕. 社会生态系统理论视角下短肠综合征患儿照护者负担体验的质性研究[J]. 中华护理杂志, 2022, 57(6): 718-723.
[11]	苗苗, 姚兰, 姚芡芡, 张桂梅, 吴若嘉, 陆思月. 居家安宁疗护照顾者照护体验质性研究的Meta整合[J]. 中华护理杂志, 2022, 57(5): 608-616.
[12]	张傲, 赵培玉, 胡楠楠, 关维维, 李荔, 弓少华, 陈闪闪, 郭红. 脑卒中患者积极心理体验质性研究的Meta整合[J]. 中华护理杂志, 2022, 57(5): 617-624.
[13]	黄娜, 周英凤, 李丽, 朱佳蕾, 汪玲, 赵敏慧. 妊娠期糖尿病孕妇血糖管理行为改变动机的质性研究[J]. 中华护理杂志, 2022, 57(4): 389-394.
[14]	孙闽闽, 吴娟, 李文霞, 王逸楠, 王莉. 心肌梗死患者出院后重返社会体验质性研究的Meta整合[J]. 中华护理杂志, 2022, 57(4): 415-423.
[15]	范文海, 刘悦, 李春霞, 于明明. 慢性心力衰竭患者照护者居家照护体验质性研究的Meta整合[J]. 中华护理杂志, 2022, 57(4): 424-430.