中华护理杂志 ›› 2020, Vol. 55 ›› Issue (8): 1174-1178.DOI: 10.3761/j.issn.0254-1769.2020.08.010
收稿日期:
2019-07-05
出版日期:
2020-08-15
发布日期:
2020-08-06
通讯作者:
袁长蓉
作者简介:
成磊:女,博士,讲师,E-mail: <email>chengleis@126.com</email>
基金资助:
Received:
2019-07-05
Online:
2020-08-15
Published:
2020-08-06
摘要:
综述患者自我报告结局在癌症患儿照护领域的应用研究进展,包括癌症患儿自我报告结局的发展背景、工具、研究热点和在护理中的应用4个方面,旨在为临床决策和制订相应措施提供参考。
成磊, 张雯, 黄青梅, 王颖雯, 沈南平, 袁长蓉. 患者自我报告结局在癌症患儿照护领域的应用研究进展[J]. 中华护理杂志, 2020, 55(8): 1174-1178.
[1] |
Steliarova-Foucher E, Colombet M, Ries LAG, et al. International incidence of childhood cancer,2001-10:a population-based registry study[J]. Lancet Oncol, 2017,18(6):719-731.
URL PMID |
[2] |
Linder LA, Al-Qaaydeh S, Donaldson G. Symptom characteristics among hospitalized children and adolescents with cancer[J]. Cancer Nurs, 2018,41(1):23-32.
URL PMID |
[3] |
Zhukovsky DS, Rozmus CL, Robert RS, et al. Symptom profiles in children with advanced cancer:patient,family caregiver,and oncologist ratings[J]. Cancer, 2015,121(22):4080-4087.
URL PMID |
[4] |
Pinheiro LC, McFatrich M, Lucas N, et al. Child and adolescent self-report symptom measurement in pediatric oncology research:a systematic literature review[J]. Qual Life Res, 2018,27(2):291-319.
URL PMID |
[5] |
Baggott C, Cooper BA, Marina N, et al. Symptom assessment in pediatric oncology:how should concordance between children’s and parents’ reports be evaluated[J]. Cancer Nurs, 2014,37(4):252-262.
DOI URL PMID |
[6] |
Hinds PS, Wang JC, Stern ED, et al. Voices of children and adolescents on phase 1 or phase 2 cancer trials:a new trial endpoint[J]. Cancer, 2017,123(19):3799-3806.
DOI URL PMID |
[7] | Tomlinson D, Hyslop S, Stein E, et al. Development of mini-SSPedi for children 4-7 years of age receiving cancer treatments[J]. BMC Cancer, 2019,19(1):32. |
[8] | PREA. Pediatric research equity act[EB/OL]. ( 2019 -08-21)[2019-09-04]. https://www.fda.gov/drugs/development-resources/pediatric-research-equity-act-prea. |
[9] |
US Department of Health and Human Services FDA Center for Drug Evaluation and Research,US Department of Health and Human Services FDA Center for Biologics Evaluation and Research,US Department of Health and Human Services FDA Center for Devices and Radiological Health. Guidance for industry:patient-reported outcome measures:use in medical product development to support labeling claims:draft guidance[J]. Health Qual Life Outcomes, 2006,4:79.
DOI URL PMID |
[10] |
Weaver MS, Reeve BB, Baker JN, et al. Concept-elicitation phase for the development of the pediatric patient-reported outcome version of the common terminology criteria for adverse events[J]. Cancer, 2016,122(1):141-148.
DOI URL PMID |
[11] |
Anthony SJ, Selkirk E, Sung L, et al. Considering quality of life for children with cancer:a systematic review of patient-reported outcome measures and the development of a conceptual model[J]. Qual Life Res, 2014,23(3):771-789.
DOI URL PMID |
[12] | Walsh TR, Irwin DE, Meier A, et al. The use of focus groups in the development of the PROMIS pediatrics item bank[J]. Qual Life Res, 2008,17(5):725-735. |
[13] |
Irwin DE, Varni JW, Yeatts K, et al. Cognitive interviewing methodology in the development of a pediatric item bank:a patient reported outcomes measurement information system(PROMIS)study[J]. Health Qual Life Outcomes, 2009,7:3.
URL PMID |
[14] |
DeWitt EM, Stucky BD, Thissen D, et al. Construction of the eight-item patient-reported outcomes measurement information system pediatric physical function scales:built using item response theory[J]. J Clin Epidemiol, 2011,64(7):794-804.
URL PMID |
[15] | Crocker L, Algina J. Introduction to classical and modern test theory[M]. Wadsworth Pub Co, 2006: 482-498. |
[16] | 王伟梁, 周郁秋. 项目反应理论在健康相关量表中的应用现状及展望[J]. 中国卫生统计, 2018,35(4):633-636. |
[17] |
Hinds PS, Nuss SL, Ruccione KS, et al. PROMIS pediatric measures in pediatric oncology:valid and clinically feasible indicators of patient-reported outcomes[J]. Pediatr Blood Cancer, 2013,60(3):402-408.
URL PMID |
[18] | Reeve BB, McFatrich M, Pinheiro LC, et al. Eliciting the child’s voice in adverse event reporting in oncology trials:cognitive interview findings from the pediatric patient-reported outcomes version of the common terminology criteria for adverse events initiative[J]. Pediatr Blood Cancer, 2017,64(3):1-7. |
[19] | Silva-Rodrigues FM, Hinds PS, Nascimento LC. The theory of unpleasant dymptoms in pediatric oncology nursing:a conceptual and empirical fit[J]. J Pediatr Oncol Nurs, 2019: 104345-4219844225. |
[20] |
von Sadovszky V, Christensen E, Jennings BM, et al. A systematic review of pediatric self-report symptom measures:congruence with the theory of unpleasant symptoms[J]. J Spec Pediatr Nurs, 2018,23(2):e12215.
DOI URL PMID |
[21] |
Hudson BF, Oostendorp LJ, Candy B, et al. The under reporting of recruitment strategies in research with children with life-threatening illnesses:a systematic review[J]. Palliat Med, 2017,31(5):419-436.
DOI URL PMID |
[22] |
Cheng L, Wang LY, He MX, et al. Perspectives of children,family caregivers,and health professionals about pediatric oncology symptoms:a systematic review[J]. Support Care Cancer, 2018,26(9):2957-2971.
DOI URL PMID |
[23] | Reeve BB, Thissen D, DeWalt DA, et al. Linkage between the PROMIS? Pediatric and adult emotional distress measures[J]. Qual Life Res, 2016,25(4):823-833. |
[24] | 王孟成, 毕向阳. 潜变量建模与Mplus应用:进阶篇[M]. 重庆: 重庆大学出版社, 2018. |
[25] | 徐艳华, 沈南平, 袁长蓉, 等. 潜类别模型用于白血病患儿多症状特征分类研究[J]. 护理学杂志, 2018,33(19):22-25. |
[26] |
Wang JC, Jacobs S, Dewalt DA, et al. A longitudinal study of PROMIS pediatric symptom clusters in children undergoing chemotherapy[J]. J Pain Symptom Manage, 2018,55(2), 359-367.
URL PMID |
[27] |
Liu YY, Yuan CR, Wang JC, et al. Comparability of the patient-reported outcomes measurement information system pediatric short form symptom measures across culture:examination between Chinese and American children with cancer[J]. Qual Life Res, 2016,25(10):2523-2533.
DOI URL PMID |
[28] | Speight J, Barendse SM. FDA guidance on patient reported outcomes[J]. BMJ, 2010,341(7772):517-518. |
[29] | 孙倩, 王璐, 郑树基, 等. 数字化健康干预在青年癌症患者心理康复中的应用进展[J]. 中华护理杂志, 2019,54(2):301-306. |
[30] | 何文奇, 陈长英, 杜若飞, 等. 癌症临终患者医患间沟通影响因素及干预的研究进展[J]. 中华护理杂志, 2018,53(12):1509-1513. |
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