Chinese Journal of Nursing ›› 2024, Vol. 59 ›› Issue (5): 576-581.DOI: 10.3761/j.issn.0254-1769.2024.05.009

• Specialist Practice and Research • Previous Articles     Next Articles

A qualitative study of disease communication experiences in couples with stroke

LIU Zhiwei(), MEI Yongxia(), ZHANG Zhenxiang, LIN Beilei, CHEN Suyan, ZHANG Dudu, XUE Lihong, YUAN Yan, ZHANG Weihong   

  • Received:2023-05-10 Online:2024-03-10 Published:2024-03-12
  • Contact: MEI Yongxia

脑卒中患者夫妻疾病沟通体验的质性研究

刘志薇(), 梅永霞(), 张振香, 林蓓蕾, 陈素艳, 张杜杜, 薛利红, 袁燕, 张伟宏   

  1. 450001 郑州市 郑州大学护理与健康学院(刘志薇,梅永霞,张振香,林蓓蕾,陈素艳,张杜杜,张伟宏);滑县人民医院护理部(薛利红);新乡医学院第一附属医院神经内科(袁燕)
  • 通讯作者: 梅永霞
  • 作者简介:刘志薇:女,本科(硕士在读),E-mail:2987742495@qq.com
  • 基金资助:
    国家自然科学基金项目(72004205);中国博士后基金面上项目(2019M652589);河南省高校科技创新团队支持计划(22IRTSTHN027)

Abstract:

Objective To gain insight into the experience of disease communication among couples with stroke. Methods A descriptive phenomenological approach was conducted and a purposive sampling method was used to select 19 couples with stroke from August 2022 to March 2023 in the Department of Neurology of a tertiary hospital in Henan Province for semi-structured interviews. Data were analyzed by the Colaizzi method. Results A total of 2 themes and 8 sub-themes were extracted. Constructive disease communication included open communication of treatment information,timely communication of changes in symptoms,active communication of secondary prevention,and proactive communication of negative emotions. Negative disease communication included avoidance of communication,communication conflict,ineffective communication,and communication concealment. Conclusion Couples with stroke experienced both constructive and negative disease communication. Healthcare professionals should develop targeted interventions to improve disease communication,enhance the ability of couples to make decisions together,and reduce their negative emotions.

Key words: Stroke, Spouse, Couple, Disease Communication, Qualitative Research, Nursing Care

摘要:

目的 了解脑卒中患者的夫妻疾病沟通体验。方法 采用描述性现象学研究,使用目的抽样法,选取2022年8月—2023年3月在河南省某三级甲等综合医院神经内科住院治疗或复诊的19对脑卒中患者及其配偶进行半结构式访谈,采用Colaizzi 7步法分析资料。结果 共提炼出2个主题和8个亚主题:建设性疾病沟通,包括开放沟通治疗信息、及时沟通症状变化、积极沟通二级预防和主动开导负性情绪;消极疾病沟通,包括回避沟通、沟通冲突、无效沟通和沟通隐瞒。结论 脑卒中患者夫妻既存在建设性疾病沟通也存在消极疾病沟通体验。医护人员应开展针对性的干预,改善脑卒中患者夫妻疾病沟通方式,提升其共同决策能力,减少其负性情绪。

关键词: 脑卒中, 配偶, 夫妻, 疾病沟通, 质性研究, 护理