Chinese Journal of Nursing ›› 2023, Vol. 58 ›› Issue (23): 2880-2888.DOI: 10.3761/j.issn.0254-1769.2023.23.009
• Specialist Practice and Research • Previous Articles Next Articles
XU Min(), YE Menghua, LIU Ting, HUANG Xinrui, CHENG Fang, LI Xiaohong, SUN Qiuhua()
Received:
2023-05-04
Online:
2023-12-10
Published:
2023-12-12
Contact:
SUN Qiuhua
徐敏(), 叶梦华, 刘婷, 黄馨睿, 程芳, 李孝红, 孙秋华()
通讯作者:
孙秋华
作者简介:
徐敏:女,博士,主任护师,副院长,E-mail:yudi1212@163.com
基金资助:
XU Min, YE Menghua, LIU Ting, HUANG Xinrui, CHENG Fang, LI Xiaohong, SUN Qiuhua. Development and reliability and validity tests of the Quality of Life Scale for Patients with Aplastic Anemia[J]. Chinese Journal of Nursing, 2023, 58(23): 2880-2888.
徐敏, 叶梦华, 刘婷, 黄馨睿, 程芳, 李孝红, 孙秋华. 再生障碍性贫血患者生存质量量表的编制及信效度检验[J]. 中华护理杂志, 2023, 58(23): 2880-2888.
Add to citation manager EndNote|Ris|BibTeX
URL: http://zh.zhhlzzs.com/EN/10.3761/j.issn.0254-1769.2023.23.009
[1] | 中华医学会血液学分会红细胞疾病(贫血)学组. 再生障碍性贫血诊断与治疗中国指南(2022年版)[J]. 中华血液学杂志, 2022, 43(11):881-888. |
Red Blood Cell Disease(Anemia) Group, Hematology Society, Chinese Medical Association. Guidelines for the diagnosis and management of aplastic anemia in China(2022)[J]. Chin J Hematol, 2022, 43(11):881-888. | |
[2] |
Bacigalupo A. How I treat acquired aplastic anemia[J]. Blood, 2017, 129(11):1428-1436.
DOI PMID |
[3] | 周琴. 6例重型再生障碍性贫血合并弥漫性血管内凝血患者的护理[J]. 中华护理杂志, 2017, 52(增刊1):90-92. |
Zhou Q. Nursing care of 6 patients with severe aplastic anemia complicated with DIC[J]. Chin J Nurs, 2017, 52(Z1):90-92. | |
[4] | 李金云. 慢性再障病人抑郁的影响因素分析及干预研究[D]. 青岛: 青岛大学, 2018. |
Li JY. Analysis of influencing factors of depression in patients with chronic aplastic anemia and intervention study[D]. Qingdao: Qingdao University, 2018. | |
[5] | 王群, 周立平, 王娜娜. 慢性再生障碍性贫血患者的社会回归及生活质量分析[J]. 中国疗养医学, 2019, 28(1):8-10. |
Wang Q, Zhou LP, Wang NN. Analysis of life quality and return to society conditions of patients suffering from chronic aplastic anemia[J]. Chin J Conval Med, 2019, 28(1):8-10. | |
[6] | 李平. 获得性再生障碍性贫血患者健康相关生活质量与社会支持相关性分析[D]. 济南: 山东大学, 2017. |
Li P. Correlation analysis between health-related quality of life and social support in patients with acquired aplastic anemia[D]. Jinan: Shandong University, 2017. | |
[7] |
Escalante CP, Chisolm S, Song J, et al. Fatigue,symptom burden,and health-related quality of life in patients with myelodysplastic syndrome,aplastic anemia,and paroxysmal nocturnal hemoglobinuria[J]. Cancer Med, 2019, 8(2):543-553.
DOI URL |
[8] | Weisshaar K, Ewald H, Halter J, et al. Development of a Patient-reported Outcome Questionnaire for Aplastic Anemia and Paroxysmal Nocturnal Hemoglobinuria(PRO-AA/PNH)[J]. Orpha-net J Rare Dis, 2020, 15(1):249. |
[9] |
Groth M, Singer S, Niedeggen C, et al. Development of a disease-specific Quality of Life Questionnaire for Patients with Aplas-tic Anemia and/or Paroxysmal Nocturnal Hemoglobinuria(QLQ-AA/PNH)-report on phases Ⅰ and Ⅱ[J]. Ann Hematol, 2017, 96(2):171-181.
DOI URL |
[10] |
Niedeggen C, Singer S, Groth M, et al. Design and development of a disease-specific Quality of Life Tool for Patients with Aplastic Anaemia and/or Paroxysmal Nocturnal Haemoglobinuria(QLQ-AA/PNH)-a report on phase Ⅲ[J]. Ann Hematol, 2019, 98(7):1547-1559.
DOI PMID |
[11] |
The World Health Organization Quality of Life assessment (WHOQOL):position paper from the World Health Organization[J]. Soc Sci Med, 1995, 41(10):1403-1409.
DOI URL |
[12] |
Ferrell BR. The quality of lives:1,525 voices of cancer[J]. Oncol Nurs Forum, 1996, 23(6):909-916.
PMID |
[13] |
Olver I, Keefe D, Herrstedt J, et al. Supportive care in cancer:a MASCC perspective[J]. Support Care Cancer, 2020, 28(8):3467-3475.
DOI PMID |
[14] |
Ware JE, Sherbourne CD. The MOS 36-item Short-Form Health Survey(SF-36). I. Conceptual framework and item selection[J]. Med Care, 1992, 30(6):473-483.
PMID |
[15] | The WHOQOL Group. Development of the World Health Orga-nization WHOQOL-BREF quality of life assessment[J]. Psy-chol Med, 1998, 28(3):551-558. |
[16] |
Aaronson NK, Ahmedzai S, Bergman B, et al. The European Organization for Research and Treatment of Cancer QLQ-C30:a quality-of-life instrument for use in international clinical trials in oncology[J]. J Natl Cancer Inst, 1993, 85(5):365-376.
DOI PMID |
[17] |
支婷婷, 王艳波. 认知性访谈在创伤知情照护相关态度量表文化调适中的应用[J]. 中华护理杂志, 2022, 57(3):343-347.
DOI URL |
Zhi TT, Wang YB. Application of cognitive interview in cultural adjustment of Attitudes Related to Trauma-Informed Care Scale[J]. Chin J Nurs, 2022, 57(3):343-347.
DOI URL |
|
[18] | 沈悌, 赵永强. 血液病诊断及疗效标准[M]. 4版. 北京: 科学出版社, 2018:18-22. |
Shen T, Zhao YQ. Diagnostic and therapeutic criteria of hema-tological diseases[M]. 4th ed. Beijing: Science Press, 2018:18-22. | |
[19] |
李鲁, 王红妹, 沈毅. SF-36健康调查量表中文版的研制及其性能测试[J]. 中华预防医学杂志, 2002, 36(2):109-113.
PMID |
Li L, Wang HM, Shen Y. Development and psychometric tests of a Chinese version of the SF-36 Health Survey Scales[J]. Chin J Prev Med, 2002, 36(2):109-113.
PMID |
|
[20] | 职心乐, 胡良平. 调查研究中的问卷和量表的设计与编制要领[J]. 四川精神卫生, 2017, 30(5):405-409. |
Zhi XL, Hu LP. Essentials for the design and compilation of questionnaires and scales in a survey study[J]. Sichuan Mental Heal, 2017, 30(5):405-409. | |
[21] | 蒋艳, 沈宁, 邹树芳. 护理研究中量表研制及测量学特征的评定方法[J]. 中华护理教育, 2005, 2(4):174-176. |
Jiang Y, Shen N, Zou SF. Development of scale and evalua-tion method of measurement characteristics in nursing re-search[J]. Chin J Nurs Educ, 2005, 2(4):174-176. | |
[22] | 方积乾. 卫生统计学[M]. 7版. 北京: 人民卫生出版社, 2012:253-254. |
Fang JQ. Health statistics[M]. 7th ed. Beijing: People’s Medical Publishing House, 2012:253-254. | |
[23] | 张文坚, 马灵甫, 王志敏, 等. 异基因造血干细胞移植患者的四肢肌肉量及影响因素调查[J]. 中国组织工程研究, 2021, 25(13):1999-2004. |
Zhang WJ, Ma LF, Wang ZM, et al. Muscle mass evaluation and influencing factors of sarcopenia in allogeneic hemato-poietic stem cell transplantation patients[J]. Chin J Tis Engi Res, 2021, 25(13):1999-2004. | |
[24] |
孙柳, 王莹, 梁嘉贵, 等. 老年人应对慢性病共病体验的Meta整合[J]. 中华护理杂志, 2022, 57(6):748-755.
DOI URL |
Sun L, Wang Y, Liang JG, et al. Experience of the elderly coping with multiple chronic conditions:a qualitative meta-synthesis[J]. Chin J Nurs, 2022, 57(6):748-755. | |
[25] |
石艳, 蔡均, 吴治敏, 等. 宫颈癌患者根治术后两性关系体验的质性研究[J]. 中华护理杂志, 2019, 54(12):1825-1830.
DOI URL |
Shi Y, Cai J, Wu ZM, et al. Experience of sexual relationship of postoperative patients with cervical cancer:a qualitative study[J]. Chin J Nurs, 2019, 54(12):1825-1830. |
[1] | XUE Jin, WANG Qing, JIANG Ling, CHENG Niankai, HUANG Qin, NI Xingmei, GU Xiao, CHEN Yilei, XIA Lianzi. Construction and application of a clinical decision support system for delirium management in ICU patients [J]. Chinese Journal of Nursing, 2023, 58(9): 1037-1042. |
[2] | FANG Yuan, ZHOU Yingfeng, LI Li, XING Nianlu, CHEN Shuyu, WANG Na, YIN Chuanmin. Construction and preliminary application of a non-drug management decision support system for gestational diabetes mellitus [J]. Chinese Journal of Nursing, 2023, 58(9): 1043-1049. |
[3] | XIA Yanling, PAN Wenyan, ZHAO Yangyang, CHEN Zhiwei, CAI Shining, TANG Yingjia, JIN Zhe. Application of virtual reality technology in early activities of ICU patients [J]. Chinese Journal of Nursing, 2023, 58(9): 1050-1055. |
[4] | XU Xuefen, WANG Hongyan, GUO Pingping, WANG Yulu, FENG Suwen. Progress on the application of artificial intelligence in chronic disease health management [J]. Chinese Journal of Nursing, 2023, 58(9): 1063-1067. |
[5] | NI Xiumei, XU Fengling, CHEN Hao, GONG Juan, ZHANG Chong, WANG Cui, LI Baoqin, HU Shaohua. Application of airway clearance program based on lung ultrasound in patients with mechanical ventilation in ICU [J]. Chinese Journal of Nursing, 2023, 58(9): 1076-1081. |
[6] | XIANG Shuang, WANG Bin, MIAO Hua, HAN Jing, JIANG Jingjing, ZHENG Wen, YAN Yan, WANG Xiao, GONG Wei, AI Hui, QUE Bin, NIE Shaoping, ZHANG Lixin. Risk assessment and influencing factors of fall in hospitalized patients with acute coronary syndrome [J]. Chinese Journal of Nursing, 2023, 58(9): 1082-1087. |
[7] | HUANG Keyao, DING Siyan, ZHOU Haiqin, CAI Yinghua. Study on the frailty trajectory and influencing factors of lung transplantation patients [J]. Chinese Journal of Nursing, 2023, 58(9): 1088-1095. |
[8] | LIU Qunhui, FANG Min, HUANG Jie, LIU Zhengzheng, SUN Li, WEI Qi, SHAN Yuanyuan, HUANG Jiali. A study on the effects of parent-involved painting therapy in children with leukemia [J]. Chinese Journal of Nursing, 2023, 58(8): 907-914. |
[9] | CHEN Yuqin, LIU Yilan, DING Fang, DAI Dongmei, FAN Ling, HAN Ying, ZHANG Fengjian. Development and reliability and validity test of Holistic Human Caring Perception Scale for clinical nurses [J]. Chinese Journal of Nursing, 2023, 58(8): 935-941. |
[10] | AN Xiao, XUE Yating, XIA Yu, WANG Hong. Current status of decision fatigue among substitutive decision makers of ICU patients and its influencing factors [J]. Chinese Journal of Nursing, 2023, 58(8): 949-955. |
[11] | ZHANG Xinyuan, LIU Fang, LU Mei, WEN Qian, LONG Guoliang, PENG Sheng, LI Li. Nursing care of an acute liver failure patient with annular abscission of obstructive fibrinous tracheal pseudomembrane [J]. Chinese Journal of Nursing, 2023, 58(8): 975-978. |
[12] | HE Li, HU Luhong, CUI Jinrui, DENG Yan, CHU Yanxiang, WANG Weidi, WANG Qianyun. Status and influencing factors of self-advocacy in breast cancer patients with chemotherapy [J]. Chinese Journal of Nursing, 2023, 58(7): 788-793. |
[13] | WU Yuan, ZHANG Yuxi, WANG Nannan, ZHANG Huichao. Meta-synthesis of qualitative research on the experience of peer support for breast cancer patients [J]. Chinese Journal of Nursing, 2023, 58(7): 800-807. |
[14] | ZHOU Yanjun, LI Qiuyue, HU Yule, YANG Haojie, ZHAO Fang, LIANG Tao. Research progress on early identification and preventive measures of cardiotoxicity induced by anthracycline chemotherapy in breast cancer [J]. Chinese Journal of Nursing, 2023, 58(7): 816-821. |
[15] | YIN Yanru, ZHOU Hongchang, LIU Mengru, LIANG Facun, RU Yunxin, YANG Wenjuan, NING Yunfeng, DING Min. Status and influencing factors of social isolation in elderly patients with maintenance hemodialysis [J]. Chinese Journal of Nursing, 2023, 58(7): 822-828. |
Viewed | ||||||
Full text |
|
|||||
Abstract |
|
|||||