Chinese Journal of Nursing ›› 2022, Vol. 57 ›› Issue (1): 118-123.DOI: 10.3761/j.issn.0254-1769.2022.01.018
• Review • Previous Articles Next Articles
CHEN Haili(), XIAO Zhitian(
), YE Jinghua, TIAN Xiaoqin
Received:
2021-01-12
Online:
2022-01-10
Published:
2022-01-11
Contact:
XIAO Zhitian
通讯作者:
肖志田
作者简介:
陈海丽:女,本科 (硕士在读),护士,E-mail: chl8894@163.com
基金资助:
CHEN Haili, XIAO Zhitian, YE Jinghua, TIAN Xiaoqin. Research progress on nursing care for epilepsy patients from adolescents to adults[J]. Chinese Journal of Nursing, 2022, 57(1): 118-123.
陈海丽, 肖志田, 叶敬花, 田小琴. 癫痫患者从青少年到成人过渡期护理的研究进展[J]. 中华护理杂志, 2022, 57(1): 118-123.
Add to citation manager EndNote|Ris|BibTeX
URL: http://zh.zhhlzzs.com/EN/10.3761/j.issn.0254-1769.2022.01.018
[1] | 中国抗癫痫协会. 临床诊疗指南(癫痫分册)[M]. 北京: 人民卫生出版社, 2015:15-19. |
China Association Against Epilepsy. Clinical guidelines for diagnosis and treatment(epilepsy fascicle)[M]. Beijing: People’s Medical Publishing House, 2015:15-19. | |
[2] |
Verrotti A, Matricardi S, Rinaldi VE, et al. Neuropsychological impairment in childhood absence epilepsy:review of the literature[J]. J Neurol Sci, 2015, 359(1/2):59-66.
DOI URL |
[3] | 江载芳, 申昆玲, 沈颖. 诸福棠实用儿科学[M]. 北京: 人民卫生出版社, 2015. |
Jiang ZF, Shen KL, Shen Y. Zhu Futang practice of pediatrics[M]. Beijing: People’s Medical Publishing House, 2015. | |
[4] |
Camfield PR, Bahi-Buisson N, Trinka E. Transition issues for children with diffuse cortical malformations,multifocal postnatal lesions,(infectious and traumatic) and Lennox-Gastaut and similar syndromes[J]. Epilepsia, 2014, 55(Suppl 3):24-28.
DOI URL |
[5] |
Reger KL, Hughes-Scalise A, O’Connor MA. Development of the transition-age program(TAP):review of a pilot psychosocial multidisciplinary transition program in a level 4 epilepsy center[J]. Epilepsy Behav, 2018, 89:153-158.
DOI URL |
[6] |
Gray V, Palmer L, Whelby K, et al. Exploring the role of know-ledge of condition and psycho-social profiles of young people with epilepsy during transition[J]. Epilepsy Behav, 2017, 73:156-160.
DOI URL |
[7] |
Jurasek L, Ray L, Quigley D. Development and implementation of an adolescent epilepsy transition clinic[J]. J Neurosci Nurs, 2010, 42(4):181-189.
PMID |
[8] |
Mc Govern EM, Maillart E, Bourgninaud M, et al. Making a ‘JUMP’ from paediatric to adult healthcare:a transitional program for young adults with chronic neurological disease[J]. J Neurol Sci, 2018, 395:77-83.
DOI PMID |
[9] |
Blum RW, Garell D, Hodgman CH, et al. Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the society for adolescent medicine[J]. J Adolesc Health, 1993, 14(7):570-576.
DOI URL |
[10] |
American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians-American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs[J]. Pediatrics, 2002, 110(6 Pt 2):1304-1306.
DOI URL |
[11] |
Camfield PR, Andrade D, Camfield CS, et al. How can transition to adult care be best orchestrated for adolescents with epilepsy?[J]. Epilepsy Behav, 2019, 93:138-147.
DOI PMID |
[12] |
Brown LW, Camfield P, Capers M, et al. The neurologist’s role in supporting transition to adult health care:a consensus statement[J]. Neurology, 2016, 87(8):835-840.
DOI URL |
[13] |
Willis ER, McDonagh JE. Transition from children’s to adults’ services for young people using health or social care services (NICE Guideline NG43)[J]. Arch Dis Child Educ Pract Ed, 2018, 103(5):253-256.
DOI PMID |
[14] |
American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, et al. Supporting the health care transition from adolescence to adulthood in the medical home[J]. Pediatrics, 2011, 128(1):182-200.
DOI URL |
[15] |
Andrade DM, Bassett AS, Bercovici E, et al. Epilepsy:transition from pediatric to adult care. Recommendations of the Ontario epilepsy implementation task force[J]. Epilepsia, 2017, 58(9):1502-1517.
DOI URL |
[16] |
Crowley SL, Byrne S, McNulty S, et al. The temple star transitional model of care for epilepsy;the outcome of a quality improvement project[J]. Epilepsy Behav, 2018, 79:4-8.
DOI URL |
[17] |
Sawicki GS, Lukens-Bull K, Yin X, et al. Measuring the transition readiness of youth with special healthcare needs:validation of the TRAQ:Transition Readiness Assessment Questionnaire[J]. J Pediatr Psychol, 2011, 36(2):160-171.
DOI URL |
[18] |
Wood DL, Sawicki GS, Miller MD, et al. The Transition Rea-diness Assessment Questionnaire(TRAQ):its factor structure,reliability,and validity[J]. Acad Pediatr, 2014, 14(4):415-422.
DOI URL |
[19] |
Sato Y, Ochiai R, Ishizaki Y, et al. Validation of the Japanese Transition Readiness Assessment Questionnaire[J]. Pediatr Int, 2020, 62(2):221-228.
DOI URL |
[20] |
Anelli CG, Len CA, Terreri MTRA, et al. Translation and validation of the transition readiness assessment questionnaire (TRAQ)[J]. J Pediatr (Rio J), 2019, 95(2):180-187.
DOI URL |
[21] | González F, Roizen M, Rodríguez Celin ML, et al. Validation of the Argentine Spanish version of Transition Readiness Assessment Questionnaire for adolescents with chronic conditions[J]. Arch Argent Pediatr, 2017, 115(1):18-27. |
[22] |
Jensen PT, Paul GV, LaCount S, et al. Assessment of transition readiness in adolescents and young adults with chronic health conditions[J]. Pediatr Rheumatol Online J, 2017, 15(1):70.
DOI PMID |
[23] | Roth JD, Szymanski KM, Cain MP, et al. Factors impacting transition readiness in young adults with neuropathic bladder[J]. J Pediatr Urol, 2020, 16(1):45.e1-45.e7. |
[24] |
Philpott JR, Kurowski JA. Challenges in transitional care in inflammatory bowel disease:a review of the current literature in transition readiness and outcomes[J]. Inflamm Bowel Dis, 2019, 25(1):45-55.
DOI PMID |
[25] |
Zhang LF, Ho JS, Kennedy SE. A systematic review of the psychometric properties of transition readiness assessment tools in adolescents with chronic disease[J]. BMC Pediatr, 2014, 14:4.
DOI URL |
[26] |
Ferris ME, Harward DH, Bickford K, et al. A clinical tool to measure the components of health-care transition from pediatric care to adult care:the UNC TR(x)ANSITION Scale[J]. Ren Fail, 2012, 34(6):744-753.
DOI PMID |
[27] |
Zhong Y, Gilleskie DB, van Tilburg MAL, et al. Longitudinal self-management and/or transition readiness per the TRxANSITION index among patients with chronic conditions in pediatric or adult care settings[J]. J Pediatr, 2018, 203:361-370.
DOI URL |
[28] | Crosby LE, Hood A, Kidwell K, et al. Improving self-management in adolescents with sickle cell disease[J]. Pediatr Blood Cancer, 2020, 67(10):e28492. |
[29] |
Ferris M, Cohen S, Haberman C, et al. Self-management and transition readiness assessment:development,reliability,and factor structure of the STARx questionnaire[J]. J Pediatr Nurs, 2015, 30(5):691-699.
DOI PMID |
[30] | UNC STARx Program. Versions of the STARx Questionnaire[EB/OL].(2018-03-21)[2021-05-25]. https://www.med.unc.edu/transition/transition-tools/trxansition-scale/. |
[31] |
Nazareth M, Hart L, Ferris M, et al. A parental report of youth transition readiness:the parent STARx questionnaire (STARx-P) and Re-evaluation of the STARx child report[J]. J Pediatr Nurs, 2018, 38:122-126.
DOI PMID |
[32] | Ma J, Yu Q, Ding W, et al. Psychometric properties of the ‘Self-Management and Transition to Adulthood with Rx = Treatment Questionnaire’ in Chinese children and young people with chronic diseases[J]. Int J Nurs Pract, 2021, 27(2):e12880. |
[33] |
Clark SJ, Beimer NJ, Gebremariam A, et al. Validation of EpiTRAQ,a transition readiness assessment tool for adolescents and young adults with epilepsy[J]. Epilepsia Open, 2020, 5(3):487-495.
DOI URL |
[34] |
Wohlrab GC, Rinnert S, Bettendorf U, et al. Famoses:a modular educational program for children with epilepsy and their parents[J]. Epilepsy Behav, 2007, 10(1):44-48.
DOI URL |
[35] | Weissberg-Benchell J, Shapiro JB. A review of interventions aimed at facilitating successful transition planning and transfer to adult care among youth with chronic illness[J]. Pediatr Ann, 2017, 46(5):e182-e187. |
[36] |
Suzuki S, Kita S, Morisaki M, et al. Nurses’ perceptions regarding transitional care for adolescents and young adults with childhood- onset chronic diseases[J]. Jpn J Nurs Sci, 2020, 17(3):e12323.
DOI PMID |
[37] | Nabbout R, Teng T, Chemaly N, et al. Transition of patients with childhood onset epilepsy:perspectives from pediatric and adult neurologists[J]. Epilepsy Behav, 2020, 104(pt a):106889. |
[38] | Boyce DM, Devinsky O, Meskis MA. Barriers to transition from pediatric to adult care for patients with Dravet syndrome:a focus group study of caregivers[J]. Epilepsy Behav, 2020, 109:107096. |
[39] | 崔璀, 陈文劲, 李双子. 癫痫青少年参与健康照护行为意向影响因素的质性研究[J]. 护士进修杂志, 2021, 36(4):317-322. |
Cui C, Chen WJ, Li SZ. Qualitative research for the influencing factors of adolescents patients with epilepsy participated in health care[J]. J Nurses Train, 2021, 36(4):317-322. | |
[40] |
Chabrol B, Milh M. Transition from paediatric to adult care in adolescents with neurological diseases and handicap[J]. Rev Neurol (Paris), 2020, 176(1/2):37-42.
DOI URL |
[41] | 蔡立柏, 刘延锦, 孙箫音, 等. 青少年癫痫患者疾病感受和体验的质性研究[J]. 中华护理杂志, 2021, 56(1):86-91. |
Cai LB, Liu YJ, Sun XY, et al. A qualitative research on perceptions and experience of adolescents with epilepsy[J]. Chin J Nurs, 2021, 56(1):86-91. | |
[42] | 杜宜修, 吴芳琴, 卢晓英, 等. 多学科团队延续性护理模式在心房颤动患者中的应用研究[J]. 中华护理杂志, 2020, 55(7):969-974. |
Du YX, Wu FQ, Lu XY, et al. The application effects of continuous nursing care in management of patients with atrial fibrillation by a nurse-led multidisciplinary team[J]. Chin J Nurs, 2020, 55(7):969-974. | |
[43] | 董婷, 刘素珍, 李继平, 等. 社区护士主导的团队对高血压患者的管理及效果评价[J]. 中华护理杂志, 2017, 52(6):680-685. |
Dong T, Liu SZ, Li JP, et al. Effects of nurse-led team management on self-management and hypertension control of hypertensive patients[J]. Chin J Nurs, 2017, 52(6):680-685. |
[1] | MAI Qiulu, WANG Junxin, YANG Dan, LI Xuejing, ZHANG Xiaoyan, HAO Yufang. Studies on adaptation of guidelines in clinical nursing practice in China: a scoping review [J]. Chinese Journal of Nursing, 2022, 57(1): 105-112. |
[2] | ZHANG Wenjie, GE Juan, HAN Yuqin, LI Ruihong. Research progress on the current situation of sharps waste disposal outside health care facilities among patients with diabetes [J]. Chinese Journal of Nursing, 2022, 57(1): 113-117. |
[3] | XU Jinghua, XU Haidong, TANG Min, LIANG Jing, LI Xiaoyang, WANG Jun, ZHU Daqiao, JING Feng. Design and application of an infusion drip counter [J]. Chinese Journal of Nursing, 2022, 57(1): 124-128. |
[4] | LI Doudou, YAO Yao, CAO Lin, ZHENG Rendong, HE Zhiwei, YAO Ping, WANG Yalin, SUN Yu, ZHU Dengyue, LIU Chao. Construction and application of shared medical appointments for patients with type 2 diabetes led by specialist nurses [J]. Chinese Journal of Nursing, 2022, 57(1): 17-22. |
[5] | LIU Rui, ZHOU Chunlan, LIU Yuxia, ZHANG Mingyang, ZHANG Yinying, NIE Fang. Comparison of 4 balance function assessments in patients with chronic obstructive pulmonary disease [J]. Chinese Journal of Nursing, 2022, 57(1): 23-28. |
[6] | CAI Mengqian, CUI Miaoling, NONG Ying, QIN Jinlian, MO Sucai, YANG Zhenjiao. The current status of patient reported outcomes and its influencing factors in patients with stable chronic obstructive pulmonary disease [J]. Chinese Journal of Nursing, 2022, 57(1): 29-35. |
[7] | WANG Jingjing, BAI Chenxiao, ZHANG Zeyi, YI Mo, JIA Yuanmin, CHEN Ou. The current status of exercise perception and its influencing factors in elderly patients with chronic obstructive pulmonary disease [J]. Chinese Journal of Nursing, 2022, 57(1): 36-41. |
[8] | XIAO Dan, GUO Ting, TU Hui, LI Xin, LIU Jiawen, CHEN Hua, WEI Wenting, YI Fengyi, XIONG Xiaoyun. Influence of blood pressure fluctuation on operative side palm swelling in patients with radial artery compression after percutaneous coronary intervention [J]. Chinese Journal of Nursing, 2022, 57(1): 56-60. |
[9] | XIANG Yang, NI Weilian. Development and application of early warning and decision support system for unplanned endotracheal extubation [J]. Chinese Journal of Nursing, 2022, 57(1): 61-65. |
[10] | YANG Juan, LI Muling, LI Chunmei, HUANG Qinghui, LIN Shaoqin, ZHOU Hongzhen. Construction and preliminary verification of the Fall Risk Assessment Scale for Inpatients in ophthalmology department [J]. Chinese Journal of Nursing, 2022, 57(1): 66-72. |
[11] | LIN Weitong, LIU Lifang, WAN Jingjing, LIU Jingjing, YANG Meng, MA Hangxia. The status and factors associated with fear of progression in recipients of renal transplantation [J]. Chinese Journal of Nursing, 2022, 57(1): 73-78. |
[12] | HAO Ruixia, LI Yuling, XU Yong, YANG Lijie, HAN Xue. Study on the development and application effect of an intelligent negative emotion improvement program for patients with coronary heart disease [J]. Chinese Journal of Nursing, 2021, 56(9): 1285-1292. |
[13] | YAN Meiqin, WANG Jiao, LIU Yina, ZHANG Huijun, REN Yonglian. Observation on the effect of group health care model during pregnancy in childbirth outcome of pregnant women with gestational diabetes [J]. Chinese Journal of Nursing, 2021, 56(9): 1305-1311. |
[14] | HUANG Na, ZHOU Yingfeng, LI Li, LIU Qiaoyan, ZHU Jialei, WANG Ling, PAN Xiuhong, GUO Nafei. The decision-making behavior and influencing factors of blood glucose management in pregnant women with gestational diabetes mellitus [J]. Chinese Journal of Nursing, 2021, 56(9): 1312-1317. |
[15] | JIN Wei, XIAO Qi, YANG Lingyan, ZENG Tieying. Research progress of maternal psychological health issues after emergency cesarean section:a review [J]. Chinese Journal of Nursing, 2021, 56(9): 1335-1339. |
Viewed | ||||||
Full text |
|
|||||
Abstract |
|
|||||