Chinese Journal of Nursing ›› 2022, Vol. 57 ›› Issue (1): 79-82.DOI: 10.3761/j.issn.0254-1769.2022.01.012

• Clinical Practice • Previous Articles     Next Articles

Postoperative nursing care of 6 children with classic maple syrup urine disease undergoing liver transplantation

WANG Fang(), LU Fangyan(), WANG Yan   

  • Received:2021-01-12 Online:2022-01-10 Published:2022-01-11
  • Contact: LU Fangyan

6例经典型枫糖尿病患儿行肝移植的术后护理

王芳(), 卢芳燕(), 王燕   

  1. 310003 杭州市 浙江大学医学院附属第一医院肝移植中心
  • 通讯作者: 卢芳燕
  • 作者简介:王芳:女,本科,主管护师,E-mail: 787993514@qq.com

Abstract:

This article summarized the postoperative nursing experience of 6 children with classic maple syrup urine disease undergoing liver transplantation. Key points of nursing care included:precisely take immunosuppressants to prevent acute rejection;early rehabilitation exercises to promote the development of the nervous system;closely observe changes in the condition and do emergency care for gastrointestinal bleeding;structured skin care to reduce diaper dermatitis;provide multiple forms of support to relieve family pressure;implementation of the "Internet +" follow-up model,continuous family rehabilitation care. After careful treatment and care,the 6 children recovered and were discharged after surgery. They were followed up for 15 days to 4 months and recovered well up to now.

Key words: Maple Syrup Urine Disease, Liver Transplantation, Pediatric Nursing, Perioperative Nursing

摘要:

总结6例经典型枫糖尿病患儿行肝移植的术后护理经验。护理要点包括:精确服用免疫抑制剂,预防急性排异反应;早期康复功能锻炼,促进神经系统发育;密切观察病情变化,做好消化道出血的急救护理;实施结构化皮肤护理,减轻尿布性皮炎症状;提供多形式支持,缓解家属压力;实施"互联网+"随访模式,持续家庭康复护理。经过精心的治疗与护理,6例患儿术后康复出院,随访15 d~4个月,恢复效果良好。

关键词: 枫糖尿病, 肝移植, 儿科护理学, 围手术期护理