预立医疗照护计划利益相关者评估工具的研究进展

doi:10.3761/j.issn.0254-1769.2019.12.007

摘要/Abstract

摘要：

该文基于预立医疗照护计划利益相关者概念范围对预立医疗照护计划利益相关者评估工具进行综述,从预立医疗照护计划接受者及提供者角度介绍预立医疗照护计划利益相关者评估工具的特点及应用现状,以期为我国预立医疗照护计划相关研究的开展提供参考。

Key words: Stakeholder, Advance Care Planning, Measurement Tool, Hospice Care, Review

朱婷婷, 陈长英, 史岩, 刘东玲, 张璟, 高乔乔, 李嘉音, 王子辰. 预立医疗照护计划利益相关者评估工具的研究进展[J]. 中华护理杂志, 2019, 54(12): 1800-1804.

参考文献 42

[1]	Bioethics C, Minnesota U . End of life care:an ethical overview[EB/OL]. ( 2005 -12-30)[2019-02-02]. http:www.ahc.umn.edu/img/assets/26104/End-of-Life.pdf.
[2]	Schell JO, Cohen RA . Communication strategies to address conflict about dialysis decision making for critically ill patients[J]. Clin J Am Soc Nephrol, 2018,13(8):1248-1250. DOI URL PMID
[3]	刘凌云, 刘晓丹, 李璐 , 等. 重症监护室患者临终决定的研究进展[J]. 中华护理杂志, 2017,52(6):675-679.
[4]	王心茹, 绳宇 . 预立医疗照护计划在肿瘤患者中的应用进展[J]. 中华护理杂志, 2019,54(2):306-310.
[5]	Johnston FM, Neiman JH, Parmley LE , et al. Stakeholder perspectives on the use of community health workers to improve palliative care use by African Americans with cancer[J]. J Pa-lliat Med, 2019,22(3):302-306. DOI URL PMID
[6]	王粲霏, 贾会英, 吴珂 , 等. 多学科协作模式在安宁疗护中的应用研究进展[J]. 中华护理杂志, 2018,53(12):866-871.
[7]	Clark BT, Burkardt N, King D . Watershed management and organizational dynamics:nationwide findings and regional variation[J]. Environ Manage, 2005,36(2):297-310. DOI URL
[8]	Keele RL, Buckner K, Bushnell S . Identifying health care sta-keholders:a key to strategic implementation[J]. Health Care Stra-teg Manage, 1987,5(9):4-10. DOI URL PMID
[9]	Concannon TW, Meissner P, Grunbaum JA , et al. A new taxonomy for stakeholder engagement in patient-centered outcomes research[J]. J Gen Intern Med, 2012,27(8):985-991. DOI URL
[10]	Oliver SR, Rees RW, Clarke-Jones L , et al. A multidimensional conceptual framework for analysing public involvement in health services research[J]. Health Expect, 2008,11(1):72-84. DOI URL PMID
[11]	Deverka PA, Lavallee DC, Desai PJ , et al. Stakeholder participation in comparative effectiveness research:defining a framework for effective engagement[J]. J Comp Effect Res, 2012,1(2):181-194. DOI URL
[12]	Nielsen CP, Lauritsen SW, Kristensen FB , et al. Involving sta-keholders and developing a policy for stakeholder involvement in the European network for health technology assessment,EUnet HTA[J]. Int J Technol Assess Health Care, 2009,25(2):84-91.
[13]	Elwyn G, Crowe S, Fenton M , et al. Identifying and prioritizing uncertainties:patient and clinician engagement in the identification of research questions[J]. J Eval Clin Pract, 2010,16(3):627-631. DOI URL PMID
[14]	Mccleskey SG, Cain CL . Improving end-of-life care for diverse populations:communication,competency,and system supports[J]. Am J Hosp Palliat Care, 2019,36(6):453-459. DOI URL PMID
[15]	Miller H, Tan J, Clayton JM , et al. Patient experiences of nurse-facilitated advance care planning in a general practice setting:a qualitative study[J]. BMC Palliat Care, 2019,18(1):25. DOI URL PMID
[16]	Coppola KM, Bookwala J, Ditto PH , et al. Elderly adults’ preferences for life-sustaining treatments:the role of impairment,prognosis,and pain[J]. Death Stud, 1999,23(7):617-634. DOI URL PMID
[17]	Bangerter LR, Van Haitsma K, Heid AR , et al. “Make me feel at ease and at home”:differential care preferences of nursing home residents[J]. Gerontologist, 2016,56(4):702-713. DOI URL PMID
[18]	Lai PS, Mohd MS, Chinna K , et al. The development and validation of the advance care planning questionnaire in Malaysia[J]. BMC Med Ethics, 2016,17(1):61-65. DOI URL PMID
[19]	Htut Y, Shahrul K, Poi PJ . The views of older Malaysians on advanced directive and advanced care planning:a qualitative study[J]. Asia Pac J Public Health, 2007,19(3):58-67. DOI URL PMID
[20]	Reading T . The Flesch reading ease readibility formula[EB/OL].( 2015 -12-06)[2019-02-01]. http://www.readabilityformulas.com/flesch-reading-ease-readability-formula.php.
[21]	Tay M, Chia SE, Sng J . Knowledge,attitudes and practices of the advance medical directive in a residential estate in Singapore[J]. Ann Acad Med Singapore, 2010,39(6):424-428. URL PMID
[22]	Akabayashi A, Slingsby BT, Kai I . Perspectives on advance directives in Japanese society:a population-based questionnaire survey[J]. BMC Med Ethics, 2003,4(5):1-9. DOI URL PMID
[23]	Sudore RL, Schickedanz AD, Landefeld CS , et al. Engagement in multiple steps of the advance care planning process:a descriptive study of diverse older adults[J]. J Am Geriatr Soc, 2008,56(6):1006-1013. DOI URL PMID
[24]	Bandura A . Self-efficacy:toward a unifying theory of behavioral change[J]. Psychol Rev, 1977,84(2):191-215. DOI URL PMID
[25]	Brian HS, William RC . Interpersonal communication competence[M]. London:SAGE Publications, 1984.
[26]	Sudore RL, Stewart AL, Knight SJ , et al. Development and va-lidation of a questionnaire to detect behavior change in multiple advance care planning behaviors[J]. PLoS One, 2013,8(9):1-8. DOI URL PMID
[27]	Fried TR, Redding CA, Robbins ML , et al. Promoting advance care planning as health behavior change:development of scales to assess decisional balance,medical and religious beliefs,and processes of change[J]. Patient Educ Couns, 2012,86(1):25-32. DOI URL
[28]	Sudore RL, Heyland DK, Barnes DE , et al. Measuring advance care planning:optimizing the advance care planning engagement survey[J]. J Pain Symptom Manage, 2017,53(4):669-681. DOI URL PMID
[29]	Cattagni KA, Santos-Eggimann B, Fustinoni S , et al. Advance care planning dispositions:the relationship between knowledge and perception[J]. BMC Geriatr, 2019,19(1):118. DOI URL PMID
[30]	Kassam A, Douglas ML, Simon J , et al. Behaviors in Advance Care Planning and Actions Survey (BACPACS):development and validation part 1[J]. BMC Palliat Care, 2017,16(1):1-8. DOI URL PMID
[31]	Smith TJ, Temin S, Alesi ER , et al. American Society of Clinical Oncology provisional clinical opinion:the integration of palliative care into standard oncology care[J]. J Clin Oncol, 2012,30(8):880-887. DOI URL
[32]	Network NCC. Practice guidelines in oncology[EB/OL].( 2017 -01-09)[2019-01-08]. http://www.nccn.org/professionals/physici-an_gls/f_guidelines.asp.
[33]	Brown AJ, Shen MJ, Urbauer D , et al. The Advance Care Pla-nning Readiness Scale:development and validation of a measure of willingness to discuss and acceptance of end-of-life care in gynecologic cancer patients[J]. Int J Gynecol Cancer, 2017,27(4):838-846. DOI URL PMID
[34]	周雯, 毛靖, 闻曲 , 等. 晚期肿瘤患者及家属对预先指示态度的一致性研究[J]. 中华护理杂志, 2018,53(1):27-32.
[35]	Zhang Q, Xie C, Xie S , et al. The attitudes of Chinese cancer patients and family caregivers toward advance directives[J]. Int J Environ Res Public Health, 2016,13(816):1-11. DOI URL PMID
[36]	Hubert S, Wainschtein S, Hugues A , et al. Advance directives in France:do junior general practitioners want to improve their implementation and usage? A nationwide survey[J]. BMC Med Ethics, 2019,20(1):1-7. DOI URL PMID
[37]	van Scoy LJ, Day AG, Howard M , et al. Adaptation and preliminary validation of the advance care planning engagement survey for surrogate decision makers[J]. J Pain Symptom Ma-nage, 2019,57(5):980-988. DOI URL PMID
[38]	Jezewski MA, Brown J, Wu YW , et al. Oncology nurses’ know-ledge,attitudes,and experiences regarding advance directives[J]. Oncol Nurs Forum, 2005,32(2):319-327. DOI URL PMID
[39]	Jezewski MA, Meeker MA, Robillard I . What is needed to assist patients with advance directives from the perspective of emergency nurses[J]. J Emerg Nurs, 2005,31(2):150-155. DOI URL PMID
[40]	Baughman KR, Ludwick R, Fischbein R , et al. Development of a scale to assess physician advance care planning self-efficacy[J]. Am J Hosp Palliat Care, 2017,34(5):435-441. DOI URL PMID
[41]	Teno J, Okun S, Casey V . Toolkit of instruments to measure end of life care（TIME）[EB/OL]. ( 2001 -01-03)[2019-01-08]. http://www.chcr.brown.edu/pcoc/resourceguide/resourceguide.pdf.
[42]	Howard M, Day AG, Bernard C , et al. Development and psychometric properties of a survey to assess barriers to implementing advance care planning in primary care[J]. J Pain Sy-mptom Manage, 2018,55(1):12-21. DOI URL PMID

预立医疗照护计划利益相关者评估工具的研究进展

RichHTML

PDF

可视化

摘要/Abstract

引用本文

使用本文

参考文献 42

相关文章 15

编辑推荐

Metrics

[1]	麦秋露, 王君鑫, 杨丹, 李学靖, 张小艳, 郝玉芳. 我国临床护理实践指南改编研究的范围综述[J]. 中华护理杂志, 2022, 57(1): 105-112.
[2]	张雯杰, 葛娟, 韩玉琴, 黎瑞红. 糖尿病患者医疗机构外锐器废物处置现状的研究进展[J]. 中华护理杂志, 2022, 57(1): 113-117.
[3]	陈海丽, 肖志田, 叶敬花, 田小琴. 癫痫患者从青少年到成人过渡期护理的研究进展[J]. 中华护理杂志, 2022, 57(1): 118-123.
[4]	金微, 肖琦, 杨凌艳, 曾铁英. 紧急剖宫产术后产妇心理健康问题的研究进展[J]. 中华护理杂志, 2021, 56(9): 1335-1339.
[5]	李莹爽, 吕培华, 徐艳华, 宋海玲. 帕金森病患者冻结步态评估工具的研究进展[J]. 中华护理杂志, 2021, 56(9): 1415-1419.
[6]	刘媛, 陈菲菲, 费文海, 徐红丽, 张家香, 林兴凤. 老年慢性病患者出院准备服务的研究进展[J]. 中华护理杂志, 2021, 56(9): 1420-1425.
[7]	赵茜, 钮美娥, 吴振云. 呼吸系统疾病患者正确掌握药物吸入技术的研究进展[J]. 中华护理杂志, 2021, 56(9): 1426-1430.
[8]	苏孟宇,王真,张玉玺,王婷,吴金凤. 居家安宁疗护对晚期癌症患者生活质量和情绪影响的Meta分析[J]. 中华护理杂志, 2021, 56(8): 1249-1254.
[9]	栾琳琳,丁敏,卢振玲,张娟,于乔文,杨丽娟. 虚拟现实技术在ICU危重症患者中的应用进展[J]. 中华护理杂志, 2021, 56(8): 1255-1260.
[10]	顾嘉鑫,王泠,刘晓黎,颜霞. 白血病患儿症状群评估工具的研究进展[J]. 中华护理杂志, 2021, 56(8): 1261-1266.
[11]	胥露,江智霞,鲁鑫,王颖,张芳. 早期功能锻炼预防ICU获得性衰弱的研究进展[J]. 中华护理杂志, 2021, 56(8): 1267-1271.
[12]	郜心怡,陈怡杨,温华,董诗奇,唐涵,陈长英. 安宁疗护护士沟通中角色功能及体验的研究进展[J]. 中华护理杂志, 2021, 56(7): 1093-1097.
[13]	李雪阳,宋润珞,陈海燕,孙妞妞,段真真,陈明霞,嵇艳. 护理领域中可信赖专业活动的范围综述[J]. 中华护理杂志, 2021, 56(7): 1098-1104.
[14]	江莹,黎万汇,陈莹莹,仝贝贝,康晓凤,于艳艳,刘亚平. 经外周静脉输注血管活性药物风险管理范围的综述[J]. 中华护理杂志, 2021, 56(7): 1105-1110.
[15]	蒲树英,姚芡芡,蒋玮,罗艳芳. 中文版安德森脑肿瘤症状评估量表的信效度检验[J]. 中华护理杂志, 2021, 56(6): 855-860.